The All Party Parliamentary Group (APPG) on Spinal Cord Injury Dan - - PowerPoint PPT Presentation

the all party parliamentary group appg on spinal cord
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The All Party Parliamentary Group (APPG) on Spinal Cord Injury Dan - - PowerPoint PPT Presentation

The All Party Parliamentary Group (APPG) on Spinal Cord Injury Dan Burden, Head of Public Affairs, SIA (UK) What is an APPG? An informal cross- party group of politicians No official status within Parliament However can be a


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The All Party Parliamentary Group (APPG) on Spinal Cord Injury

Dan Burden, Head of Public Affairs, SIA (UK)

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What is an APPG?

  • An informal cross-

party group of politicians

  • No official status

within Parliament

  • However can be a

powerful campaigning tool

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History of APPG on SCI

  • Launched May 2008
  • 100 members from

both Houses of Parliament and all political parties.

  • Chaired by Ian Lucas,

MP for Wrexham

  • SIA is secretariat
  • Over 100 observers
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Past work

  • Established National SCI Strategy Board
  • SCI Care Pathways
  • Specialist training for SCI consultants
  • Andy Burnham, Shadow Health Secretary,

attended group February 2014

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Establishing the APPG

  • ‘Preserving and Developing the SCI

Centres’ research project

  • Launch event in Parliament
  • Finding suitable chair was key
  • Members key to continued increase

interest of politicians

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Current work

  • National SCI Centre,

Stoke Mandeville

– Prime Minister’s Questions, July 2014 – 12 Parliamentary questions asked, July 2014 – Letter to Secretary of Health, Jeremy Hunt MP, raising group’s concerns

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Current work

  • NHS Continuing Healthcare

– Westminster Hall debate, September 2013 – Minister asked NHS England to produce report on the issue – 5 Parliamentary Questions asked in 2014 – Letter to Care and Support Minister, Norman Lamb MP, voicing concerns over the ‘Care Act 2014’

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Future work

  • Parliamentary Inquiry

into local health services for SCI

  • Joint meeting with

APPG on Stem Cell Research

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Any questions?

Dan Burden d.burden@spinal.co.uk www.spinal.co.uk