ONTARIO SCI ALLIANCE RETREAT APRIL 13, 2018 AN ORGANIZED & - - PowerPoint PPT Presentation

ONTARIO SCI ALLIANCE RETREAT

APRIL 13, 2018

AN ORGANIZED & MOBILIZED ONTARIO

Ontario Spinal Cord Injury Alliance Retreat Friday April 13, 2018

PRESENTED BY: Peter Athanasopoulos

Executive Director Ontario SCI Alliance

Our Membership

Bold New World 2014-2017

HEALTH SYSTEMS HOUSING EDUCATION TECHNOLOGY EMPLOYMENT TRANSPORTATION PEER & FAMILY SUPPORT COMMUNITY INCLUSION & INTEGRATION INFORMATION PORTALS KNOWLEDGE MOBILIZATION HEALTH SYSTEMS HOUSING ILY SUPPORT

Powerful Partnerships

for Ontarians with Spinal Cord Injuries

POWERFUL PARTNERSHIPS

Community Mobillization Research into Practice

Co-led by

Advocacy Capacity

Ontario SCI Research Network

• Globally renowned, multi-site

• Research and implementation

SCI Knowledge Mobilization Network

• Implements evidence-based

Public Policy Program

• Conducts policy analysis and

• Engages government
• Oversees Peer Activists

• Provide strategic advice

Insurance Bureau of Canada

• Premier Partners

• Facilitates information and resource sharing among researchers,

• Coordinates partner activities and initiatives in a strategic fashion
• Acts as a network of expertise on spinal cord injury in Ontario
• Addresses and resolves systemic barriers that impact Quality of Life

• Community Engagement
• Synergy and Integration among people

with SCI, their families, researchers, service providers, and policy makers

• Policy Change
• Ideas to put research in practice faster

What our Community Achieved

ONTARIO’S NETWORK OF NETWORKS

CROSS

CUTTING

PLATFORMS

THE SCI COMMUNITY

SPINAL CORD INJURY REHABILITATION CARE HIGH PERFORMANCE INDICATORS

www.sci-high.ca sci-high@uhn.ca @SCIHighProject

SCI-HIGH Project

To advance SCI rehabilitation care for Canadians in the first 18 months after inpatient rehabilitation admission by 2020.

SCI-HIGH AIM

18 months

“Establish a comprehensive framework of structure, process & outcome indicators to improve standards of spinal cord injury rehabilitation in Canada.”

THIS WILL BE ACCOMPLISHED THROUGH: Consultation with relevant stakeholders including Accreditation Canada, HSO, RHI, ONF, scientists, health policy makers, leaders, administrators, health care providers and leaders with lived experience in SCI.

SCI-HIGH Mission Statement

Reaching, Grasping & Manipulation Bladder Health Emotional Well Being Walking Community Participation & Employment Self Management Urinary Tract Infection Skin Integrity Sexual Health Wheeled Mobility Cardiovascular Health

DOMAINS

Science Evidence-Based Practices Implementation Science Service

IMPLEMENTATION: Purposeful activities at the practice, program, and system level designed to put into place a program or intervention.

Ontario SCI Knowledge Mobilization Network (KMN)

I M P L E M E N T A T I O N

Ontario SCI Knowledge Mobilization Network (KMN)

Site Site Site Site Site Mentorship Implementation MANAGEMENT DATA

PHYSICIAN ENGAGEMENT NETWORK

• Connect you to knowledge, expertise, and resources
• Access tools and physician support for your patients – Mobility Clinic
• Provide direct consult to specialists in spinal cord injury Best Practice
• Access our VIP4SCI Application
• Advocate for your examining room to be fully accessible
• Address gaps in support, like physician

billing, with the MOHLTC

• Learn about progress we are making

under the Patients First Act

• Become a member of the Spinal

Cord Injury Ontario community

Join our Network

THE BEST PRACTICE MODEL IN ONTARIO

Mobility Clinic

• Creating a Community of Practice
• Establishing a network among Primary

Care, Rehabilitation, and individuals with SCI

• Development of Mobility Clinic manual,

and primary care modules/toolkits

• Establishing physical

Mobility Clinics throughout Ontario and virtual support options

Outreach Efforts

VIP4SCI

YOU

Join our Network

Ontario Sci Research Network

• Globally renowned, multi-site SCI

clinical research

• Research and implementation

collaboration

Sci Ontario- Public Policy Program

ELECTION DAY IN ONTARIO IS JUNE 7, 2018

www.yourmoveontario.ca

54

22 00 00

DAYS HOURS MIN SECS

Today’s Focus

ENGAGEMENT

• Involve our community in the work that we do
• Strategies and ideas to keep us all connected

around a topic area

• Our community is bigger than people with SCI
• Hospitals, Service Providers, Researchers, Policy

Makers are a part of our community

• Our broader community outside this room also

needs to feel connected

COMMUNITY ENGAGEMENT

LEADERSHIP

Engagement in Research Engagement in Public Policy and Government Relations

COMMUNITY ENGAGEMENT

Questions

CO-LED BY IN PARTNERSHIP WITH

Hearing Our Community’s Voice Summit Consensus Survey Results

Emily E. Giroux

Peter Athanasopoulos

• Dr. Shane N. Sweet

• Dr. Heather L. Gainforth

• Develop survey to capture the voice of the SCI

community

• Reach consensus using Delphi Methodology
• Primary Care & Community Supports
• Neuropathic Pain
• Bladder Management
• Pressure Injuries

AIM

What is Delphi Methodology?

Survey 1

• Evidence-Based

Strategies and Supports

• Likert Scale (0-10)

What is Delphi Methodology?

Survey 1

• Evidence-Based

Strategies and Supports

• Likert Scale (0-10)

ANALYSIS

• Average Rating
• At least 8
• Consensus:
• 66%
• At least 8

What is Delphi Methodology?

Survey 1

• Evidence-Based

Strategies and Supports

• Likert Scale (0-10)

ANALYSIS

• Average Rating
• At least 8
• Consensus:
• 66%
• At least 8

Survey 2

• Re-Iterate Survey
• Present Survey 1 Results

Benefits of Delphi Methodology

Self-Administered

• Reach across the province

Equal Consideration

• Overbearing Voices

Group Interactions

• Positive Attributes
• Negative Attributes

Piloting of Survey

Development Methods

Refine Consensus Methods Co-Develop Consensus Methods

Survey Methods

Disseminate Survey #1 Disseminate Survey #2 Analyze Survey #2 Analyze Survey #1 Develop Action Plan

Results

Participants (Survey 1)

• 374 Participants (74% living with SCI)
• Average Age: 54.8 years, Gender: 32% women, 26% tetraplegia

Participants (Survey 2)

• 118 Participants (74% living with SCI)
• Average Age: 54.7 years, Gender: 33% women, 24% tetraplegia