Development and Implementation of Cure4kids: Success Factors and - - PowerPoint PPT Presentation

Raul C. Ribeiro, MD Department of Oncology Division of Leukemia Lymphoma

• St. Jude Children’s Research Hospital

Development and Implementation of Cure4kids: Success Factors and Lessons Learned

Cure4Kids

Cure4Kids:Usage—2017

• An annual average of 8,000 active users, from 160
• countries. Of those over 850 are from Brazil
• Overall, educational content has been viewed over

947,000 times by over 25,900 unique users

• In the last year, members have viewed over 62,650

items from the website.

• The offerings include more than 1,580 online seminars;

37 online self-paced courses and 35 instructor-led courses related to specific disease topics; and recorded sessions from 89 international conferences.

Cure4Kids

Cure4kids:Usage

• The Oncopedia section offers a growing collection of 211

reviewed clinical cases, 169 image cases, 77 images of the week, 87 polls, 98 image challenges, and 73 disease chapters in both English and Spanish, with interactive commentary from an international board of editors and

• ther members
• Over 250 international groups actively use Cure4Kids

meeting rooms for education and collaboration, including 73 groups with members from Brazil. Cure4Kids web conferences have been used 286,000 times since 2002. In 2016, the site hosted a total of 2042 scheduled live meetings.

Cure4Kids

Board Meeting June 2003 Educational Opportunities Travel Fellowship

• To observe the St. Jude approach to

integrate research into patient care

• Passive Role
• Language barrier
• Discrepancy between the practice at St.

Jude and that on other countries

Continuing Education

• Selected journals and books
• National/international meetings
• Video-taped lectures
• Visiting staff

Continuing Education

• Restricted access

– Medical students/Residents – Nurses – Parents/community

• Benefits difficult to measure

Educational Opportunities Standard US Fellowship Pediatric Oncology Training Program

• Critical mass to support partners
• Leadership role in pediatric oncology
• Many changed their initial plans and stayed in the

US

• Cut ties with their country of origin

Telemedicine in 1990’s

• Increasing number of interactive video

programs

• Tele-radiology, store-and-forward,

remains most common application

• Technology was rapidly changing and

costs were decreasing

Teleconference

Beneficial to patients 38/40 (95%) cases

Ano 1998 3 8 1999 38 28 2000 37 20 2001 45 9 2002 69 4 2003 72 3 Total 264 72

Teleconferences

Proctored Surgery

Training of pediatric

• ncology

surgeons

Telepathology

• Train general pathologists

in pediatric hem/oncology pathology

– Decrease the number of

wrong diagnosis

• Systematic quality control
• f tissue diagnosis

– Store-forward digital

images

– Web-based real-time

tissue examination

Infrastructure

• Video conference system
• Cameras each end
• TV screens/computers each end
• Various medical peripherals
• Video connection
• T-1 line
• Satellite

Creating Learning Communities

Education and Training

Patient Consultation Continuing Education

Cure4Kids Principles

• Learning and Training rather than hardware

were the essence of the program

• Consumer-oriented and cultural-sensitive

approach to maintain interest and motivation

• Focus on the poor and disadvantage rather

than communities which want more technology

The Learning Providers Corporation Texas A&M University Research Park College Station, TX

Electronic Library

• Full-text journals and books
• Evidence-based treatment protocols
• Policies & procedures
• Manuals and references
• Patient-friendly reference material

Classroom (on demand)

• Lectures
• Courses
• Instructional material

for parents and patients

Conference Room (real time)

• Online conference meeting facility

–Online audio conference (Web)

• Chat rooms
• Bulletin Boards, newsgroups
• Online patient support groups

What Friedman means by "flat" is "connected": Globalization 3.0, as he calls it, is driven not by major corporations or giant trade organizations like the World Bank, but by individuals: desktop freelancers and innovative startups all

• ver the world.

The World is Flat—Thomas Friedman

Global Online Discussions

Oncopedia Polls and Image Challenge

Oncopedia Chapters

Pediatric Blood and Cancer Articles

Data Repository

• Electronic medical record
• Hospital-based tumor

registry activities

• Support for research
• Outcome measures

• POND4Kids – hospital-based tumor registry
• Facilitates meaningful comparison of information

among centers for clinical improvement

• Each clinic can have its own private secure site
• Common interface provides uniform data collection
• Sharing of patient record is done without any

patient identifiers and only at discretion of clinical directors

POND4Kids.org

POND4Kids.org

Diagnosed Cancers “Standard” Clinical Forms Customized “Quickforms”

Guatemala Survival Curves

POND4Kids.org

User Friendly Interface

• Simple, low-graphic interface (Yahoo-like)
• Security Manager (log on)
• Fast loading, low bandwidth requirements
• Access based on who, what, where

categories

• Multilingual support
• Patient information confidential
• Patient support groups or links to such

groups

Project Management

• Built in ongoing cost analysis
• Demonstrable results of site

success

• Site evaluation & feedback
• Content ratings and evaluations

Training Education Increase Survival

Research Opportunities

Cure for All

VISION

Improve Quality

• f Life

Cure4Kids

Success Factors

Lessons Learned

• An environment connecting individuals and

stimulating the sharing of ideas and experiences

• Ingredients: community with a domain of

interest, a place to meet, a facilitator, and passion for acquiring knowledge

• It is not about bringing knowledge but about

helping to grow the internally existent knowledge in the context of the local culture

Responsibilities

• Champion/Sponsor is able to envision the services over time, and

should have a sense of how the group can interact

• Facilitator/Coordinator consulting, connecting, facilitating, helping,

guiding.

• Leader serves an integral role in the community's success by

energizing the sharing process and providing continuous nourishment for the community

• Librarian organizes information/data
• Technical Steward understands business needs and ensure the

appropriate tools are available to meet these needs.

• Experts are the subject matter specialists
• Members/Participants without these there is no community; the

essence of a community is its members.

Final Thoughts