We Can’t Do This Without You! One F2F HIC’s Authentic Partnership With Their State’s Title V CYSHCN Program Presented by: Susan Colburn & Vera Spinks ● Family Voices of Alabama ● Alabama Department of Rehabilitation Services: Children’s Rehabilitation Service
Our Objective for Today and Beyond: Learn the history of Alabama’s CYSHCN Program and their commitment to family partnership. Learn specific activities which have helped both the F2FHIC and CYSHCN program in AL to enhance their work and improve outcomes for families in the state. Learn additional ideas, shared by colleagues, which will broaden your own work. Develop steps to be taken upon returning home, to develop new partnerships.
“Amazing person, I’d like to introduce you to another amazing person.”
CRS Service Programs Information and Referral Care Coordination Clinical Specialty Evaluation Clinical Medical Client/Family Education Parent Connection Youth Connection
Clinical Specialty Evaluation Program Evaluation Clinics: Hearing aid Augmentative communication/technology (ACT) evaluation/orientation Feeding and Nutrition Teen transition Speech Pathology Seating, positioning, mobility
CRS Parent Connection Program • Parent Advisory Committees • Parent Consultants • Parent Connection Newsletter • Resource Centers for Families • Parent-to-Parent Network
Extending Our Reach Parent Consultant Partnership
Self Others Wider Community
Self Others Wider Community
Self Others Wider Community
• Home to the F2F HIC • staffed by four family members, who each have children/ youth with special health needs • offer information, training, & technical assistance to families and professionals • mentor families via one-to-one contacts
• Home to the F2F HIC • Provide information and resources via our website (www.familyvoicesal.org). • Nurture collaboration between families and professionals in the state. • Assist families to make more informed decisions about their children’s health care and be better able to participate in systems building activities in their communities and states.
Our Program s • Partners in Care Summit • Family Leadership Development at annual Early Intervention Conference • Training and Workshops, including Emergency Preparedness • Printed information and products for families and professionals
Family Leadership Development at Annual Early Intervention Conference
Where Policies Are Made Is Where Advocacy Is Needed
CoIIN for Children with Medical Complexity
#fvALPIC
National Presenters at the Partners in Care Sum m it
Alabam a Presenters at the Partners in Care Sum m it
You Are Invited! Family Voices of Alabama Partnering with CRS in Conducting The MCH 5 Year Needs Assessment Recruit participants Meeting logistics Reimbursement to families who attend
“Family Engagement- Let’s Make a Commitment” CRS Leadership Retreat
Make a Wish Take a Chance Make a Change …
Bright Ideas for Authentic Partnership What Does Your F2F List Possible When I Return Home, I Will... Have to Offer? Partnerships
We Can’t Do This Without You! The Mutual Benefits of Our F2F HIC’s Authentic Partnership with our State’s Title V CYSHCN Program
Susan Colburn Family Voices Alabama Co-Director State Parent Consultant Children’s Rehabilitation Service 334-293-7041 Susan.Colburn@rehab.alabama.gov Vera Spinks Family Voices Alabama Parent Consultant Children’s Rehabilitation Service 205-562-1803 Vera.spinks@rehab.alabama.gov
Recommend
More recommend
