SLIDE 1 We Can’t Do This Without You!
One F2F HIC’s Authentic Partnership With Their State’s Title V CYSHCN Program
Susan Colburn & Vera Spinks
- Family Voices of Alabama
- Alabama Department of Rehabilitation Services:
Children’s Rehabilitation Service
Presented by:
SLIDE 2 Our Objective for Today and Beyond:
Learn the history of Alabama’s CYSHCN Program and their commitment to family partnership. Learn specific activities which have helped both the F2FHIC and CYSHCN program in AL to enhance their work and improve outcomes for families in the state. Learn additional ideas, shared by colleagues, which will broaden your own work. Develop steps to be taken upon returning home, to develop new partnerships.
SLIDE 3
SLIDE 4
“Amazing person, I’d like to introduce you to another amazing person.”
SLIDE 5
SLIDE 6
SLIDE 7
SLIDE 8
Information and Referral Care Coordination Clinical Specialty Evaluation Clinical Medical Client/Family Education Parent Connection Youth Connection
CRS Service Programs
SLIDE 9 Clinical Specialty Evaluation Program
Augmentative communication/technology (ACT) Feeding and Nutrition Speech Pathology Hearing aid evaluation/orientation Teen transition Seating, positioning, mobility Evaluation Clinics:
SLIDE 10 CRS Parent Connection Program
- Parent Advisory Committees
- Parent Consultants
- Parent Connection Newsletter
- Resource Centers for Families
- Parent-to-Parent Network
SLIDE 11
Extending Our Reach Parent Consultant Partnership
SLIDE 12
Self Others Wider Community
SLIDE 13
Self Others Wider Community
SLIDE 14
Self Others Wider Community
SLIDE 15
- Home to the F2F HIC
- staffed by four family members, who each have
children/ youth with special health needs
- offer information, training, & technical assistance to families
and professionals
- mentor families via one-to-one contacts
SLIDE 16
- Home to the F2F HIC
- Provide information and resources via our website
(www.familyvoicesal.org).
- Nurture collaboration between families and professionals in
the state.
- Assist families to make more informed decisions about their
children’s health care and be better able to participate in systems building activities in their communities and states.
SLIDE 17
SLIDE 18 Our Program s
- Partners in Care Summit
- Family Leadership Development at annual Early
Intervention Conference
- Training and Workshops, including Emergency
Preparedness
- Printed information and products for families and
professionals
SLIDE 19
Family Leadership Development at Annual Early Intervention Conference
SLIDE 20
Where Policies Are Made Is Where Advocacy Is Needed
SLIDE 21
CoIIN for Children with Medical Complexity
SLIDE 22
#fvALPIC
SLIDE 23
National Presenters at the Partners in Care Sum m it
SLIDE 24
Alabam a Presenters at the Partners in Care Sum m it
SLIDE 25 You Are Invited! Family Voices of Alabama Partnering with CRS in Conducting The MCH 5 Year Needs Assessment
Recruit participants Meeting logistics Reimbursement to families who attend
SLIDE 26
“Family Engagement- Let’s Make a Commitment” CRS Leadership Retreat
SLIDE 27
SLIDE 28
SLIDE 29
SLIDE 30
Make a Wish Take a Chance Make a Change …
SLIDE 31
Bright Ideas for Authentic Partnership
What Does Your F2F Have to Offer? When I Return Home, I Will... List Possible Partnerships
SLIDE 32 We Can’t Do This Without You! The Mutual Benefits of Our F2F HIC’s Authentic Partnership with our State’s Title V CYSHCN Program
SLIDE 33 Vera Spinks Family Voices Alabama Parent Consultant Children’s Rehabilitation Service 205-562-1803 Vera.spinks@rehab.alabama.gov Susan Colburn Family Voices Alabama Co-Director State Parent Consultant Children’s Rehabilitation Service 334-293-7041 Susan.Colburn@rehab.alabama.gov
