Show Me the Data! Research Department United Network for Organ - - PowerPoint PPT Presentation

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Show Me the Data! Research Department United Network for Organ - - PowerPoint PPT Presentation

Feb 10, 2023 433 likes •1.29k views

Show Me the Data! Research Department United Network for Organ Sharing 1 UNOS Research Department Clinical Data and Registries Data Analytics Team Scientists and Analysts Matthew Prentice, MPH Julia Barnhart, MS Wida Cherikh, PhD Alex

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Show Me the Data!

Research Department United Network for Organ Sharing

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UNOS Research Department

Clinical Data and Registries

Matthew Prentice, MPH Alex Garza Brooke Chenault, CCRA Tiffany Hardy Mohamed Roshanali

Data Scientists

Andrew Placona, MSPPM Harris McGehee

Leadership

Ryan Ehrensberger, PhD, FACHE David Klassen, MD Bob Carrico, PhD Sarah Taranto Cherri Taylor

Data Analytics Team

Julia Barnhart, MS Jeremy Winslow Eric Beeson Tim Baker Jude Maghirang, MS Yulin Cheng John Beck, MSME Denise Tripp Wes Rosson Alice Toll Aparna Sadavarte, MS Anne Zehner, MPH Heather Lansdell, MS Ginny Grafton, MS

Scientists and Analysts

Wida Cherikh, PhD John Rosendale, MS Darren Stewart, MS Amber Wilk, PhD Laura Cartwright, MPH, PhD Jennifer Wainright, PhD Read Urban, MPH Amanda Robinson, MS Rebecca Lehman, PhD Samantha Noreen, PhD Gabe Vece, MSPH Chris Custer, MS Julia Foutz, MPH Kelsi Lindblad, PhD Victoria Garcia, MPH

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  • Current UNOS Data Services Portal Reports

 UNOS Benchmark Reports (Center and OPO)  RUM Report  Kidney Waiting List Management Tool

  • Big Changes Coming SOON: Data Services 2.0
  • Other ventures with Data

Offer Filters SimNet

  • How Else Can We Help?

Outline / Agenda

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UNOS Data Services Portal

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  • Benchmark Report
  • Kidney Waiting List

Management Tool

  • Report of Organ Offers

(ROO)

  • Recovery & Usage Maps

(RUM)

  • Center STAR files
  • Data Quality & Submission

Monitoring Tools

  • Commonly Requested

Reports

UNOS Data Services Portal

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Benchmark Report

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Kidney – KDPI of Transplants

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Liver – WL Status

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Demographics

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Interactive: Kidney Transplant Benchmark Report

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OPO Benchmark

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Offer Efforts

How far do we go to place

  • rgans?

Supply

Donors recovered

  • r

attempted

Demand

Waiting list in DSA Region Nation

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OPO Benchmark Report

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Offers – Center Offers

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Supply – Utilization and Discard Rates

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Interactive: OPO Benchmark Report

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Customization Options

Corporate Branding Additional Fields Different Comparison Groups External Data Integration

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The Recovery and Usage Maps (RUM) Report

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Recovery and Usage Maps (RUM) Report

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Recovery and Usage Maps (RUM) Report

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Recovery and Usage Maps (RUM) Report

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Interactive: RUM Report

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Kidney Waiting List Management Tool

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Almost 40% of kidney waiting list currently inactive Need ability to focus on those patients (active and inactive) with high chance of transplant based on total allocation points. Identify patients most likely to get an offer Need ability to monitor candidates inactive for specific reasons (insurance, weight, etc.)

Challenges of Kidney Waiting List Management

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Interactive: Kidney Waitlist Management Tool

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Data Portal 2.0 Coming September 2018! (in a couple weeks!)

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  • High-level overview of activity when

log into portal

OPO or Center- Specific Dashboard

  • Transplant, Waiting List, Organ Offer Data
  • Design, Save, and Reuse a Custom Report Specifying

Data Elements and Cohort

Self Service Report Generation

  • Filtering of Reports
  • Easily see what is new or updated

Improved Function

Data Services Portal 2.0

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Custom Report Builder

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Offer Filters Project

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Increase Transplants Get to YES Faster

  • Reduce Unwanted Offers
  • Decrease Cold Time
  • Increase Organ Acceptance

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Recursive Partitioning

(Decision Tree Analysis)

Kidney offers to ABCD-TX1 Cross-clamp – Pre vs. Post KDPI ≤ 30 vs. > 30

3/50

0/72

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Offer Filters Explorer

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  • ~5,000 Data Derived Filters
  • ~30% Reduction in Kidney Offers
  • ~60 fewer offers required for each allocated kidney donor
  • Low allocation risk

Impact

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UNOS Labs

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  • Virtual center for experimental research in transplantation
  • Collaboration with the most innovative minds in healthcare,

technology and research

Behavioral Science Predictive Analytics Big Data Translational Research Information System Innovations Optimize User Experience Experimental Design Decision Support Tools Machine Learning Idea Incubator

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  • Over 100 kidney surgeon &

physician participants in 2017

  • Review and respond to ~20

hypothetical offers (1-2 per day)

  • Participate by smartphone or PC
  • Receive a personalized response

pattern analysis

Kidney Offer Simulation Studies

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  • Must be a kidney surgeon or physician responsible

for offer acceptance decisions

  • Must be available to respond to offers during study

period, Oct 29 – Nov 16

  • Must be willing to respond to 24 offers
  • Sign up by Oct 5 here: https://labs.unos.org/study3

Offer Simulation Study #3: Are You Interested in Participating (Oct 29 – Nov 16)?

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Or here!

Questions? Email us at UNOS.Labs@unos.org

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  • Living Kidney Donor Follow-up Dashboard
  • Data Quality and Submission Monitoring Reports
  • Custom Center Tableau Dashboards
  • Statistical Consulting

Other Products and Services

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UNOS Research Department

Clinical Data and Registries

Matthew Prentice, MPH Alex Garza Brooke Chenault, CCRA Tiffany Hardy Mohamed Roshanali

Data Scientists

Andrew Placona, MSPPM Harris McGehee

Leadership

Ryan Ehrensberger, PhD, FACHE David Klassen, MD Bob Carrico, PhD Sarah Taranto Cherri Taylor

Data Analytics Team

Julia Barnhart, MS Jeremy Winslow Eric Beeson Tim Baker Jude Maghirang, MS Yulin Cheng John Beck, MSME Denise Tripp Wes Rosson Alice Toll Aparna Sadavarte, MS Anne Zehner, MPH Heather Lansdell, MS Ginny Grafton, MS

Scientists and Analysts

Wida Cherikh, PhD John Rosendale, MS Darren Stewart, MS Amber Wilk, PhD Laura Cartwright, MPH, PhD Jennifer Wainright, PhD Read Urban, MPH Amanda Robinson, MS Rebecca Lehman, PhD Samantha Noreen, PhD Gabe Vece, MSPH Chris Custer, MS Julia Foutz, MPH Kelsi Lindblad, PhD Victoria Garcia, MPH

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Extra Slides

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Benchmark Report

Kidney Waiting List Management Tool

Report of Organ Offers (ROO) Recovery and Usage Maps (RUM) Center STAR Files Data Quality and Submission Monitoring Tools Commonly Requested Reports

Data Services Portal Products

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Living Kidney Donor Follow-up Dashboard

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  • OPTN Policy 18.5.A: Reporting Requirements after Living Kidney

Donation

  • “….report accurate, complete, and timely follow-up data….”
  • Question from Centers: What does that actually mean, how can I

figure out how I am doing, and how do I improve?

Background

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Data Quality and Submission Monitoring Reports

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Data Quality Report

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Data Submission Compliance Report

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Data Submission Compliance Report

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Follow-up Forms Expected Report

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