People with dementia have rights too Gavin Terry Policy Manager - PowerPoint PPT Presentation

People with dementia have rights too Gavin Terry Policy Manager

People with dementia have rights too Introduction  Alzheimer’s Society’s position on the rights of people with dementia  Our calls for a rights-based approach to dementia care and support  Wider work on the rights of people with dementia and available support  What else are we doing?

About Dementia Alzheimer’s Society

The statistics  There are 850,000 people with dementia in the UK, with numbers set to rise to over 1 million by 2025. This will soar to 2 million by 2051.  225,000 will develop dementia this year, that’s one every three minutes.  1 in 6 people over the age of 80 have dementia.  70 per cent of people in care homes have dementia or severe memory problems.  There are over 45,000 people under 65 with dementia in the UK.  More than 25,000 people from black, Asian and minority ethnic groups in the UK are affected. Alzheimer’s Society

The cost  Two thirds of the cost of dementia is paid by people with dementia and their families.  Unpaid carers supporting someone with dementia save the economy £11 billion a year.  Dementia is one of the main causes of disability later in life, ahead of cancer, cardiovascular disease and stroke. As a country we spend much less on dementia than on these other conditions. Alzheimer’s Society

Our position on the rights of people with dementia Alzheimer’s Society

Our position  People with dementia should be treated with dignity and receive care and support based on individual need, rather than assumptions about the condition  Ageism  Stigma and discrimination associated with dementia  Lack of capacity to challenge or report incidents that occur  Contravention of human rights due to these three key reasons Alzheimer’s Society

Our calls  An end to discrimination because of reduced mental capacity  An end to age discrimination towards older people  An end to age discrimination towards younger people  Improved support for people from black, Asian and minority ethnic (BAME) communities  Improved care and support  Robust action on abuse  Fairer care funding  Continued action on the inappropriate prescription of antipsychotic drugs Alzheimer’s Society

Wider work on the rights of people with dementia and available support Alzheimer’s Society

Charter of  Participation  Empowerment Rights for  Accountability  Legality People with  Non-discrimination and Dementia and equality their Carers in Scotland

 Bringing together information Our Dementia, about rights in one place Our Rights  What are rights?  Why rights matter  Decision making and planning ahead  Public services and benefits  How can you use your rights?  Support and advocacy  Legal action

Alzheimer’s  Information and advice Society  Publications information  The Dementia Guide and support  National Helpline  Talking Point online forum

What else are we doing? Alzheimer’s Society

What else are we doing?  A new brand and strategy  The rallying point for people affected by dementia  Making dementia impossible to ignore  Giving everybody affected by dementia a voice  Developing a rights based approach  Building capacity within Alzheimer’s Society  Rights  Entitlements to good care Alzheimer’s Society

What else are we doing?  Clarity on what good care looks like  Clarity on what care to expect  Organisational understanding that enables us to act  Developing an approach to: • Rights and care • Rights and employment • Rights and community Alzheimer’s Society

Thank you Alzheimer’s Society