People with dementia have rights too Gavin Terry Policy Manager - - PowerPoint PPT Presentation
People with dementia have rights too Gavin Terry Policy Manager People with dementia have rights too Introduction Alzheimers Societys position on the rights of people with dementia Our calls for a rights-based approach to
Gavin Terry Policy Manager
Alzheimer’s Society’s position on the rights of people with dementia Our calls for a rights-based approach to dementia care and support Wider work on the rights of people with dementia and available support What else are we doing?
Introduction
Alzheimer’s Society
Alzheimer’s Society
There are 850,000 people with dementia in the UK, with numbers set to rise to over
1 million by 2025. This will soar to 2 million by 2051.
225,000 will develop dementia this year, that’s one every three minutes. 1 in 6 people over the age of 80 have dementia. 70 per cent of people in care homes have dementia or severe memory problems. There are over 45,000 people under 65 with dementia in the UK. More than 25,000 people from black, Asian and minority ethnic groups in the UK
are affected.
Alzheimer’s Society
Two thirds of the cost of dementia is paid by people with dementia and their
families.
Unpaid carers supporting someone with dementia save the economy £11 billion a
year.
Dementia is one of the main causes of disability later in life, ahead of cancer,
cardiovascular disease and stroke. As a country we spend much less on dementia than on these other conditions.
Alzheimer’s Society
Alzheimer’s Society
People with dementia should be treated with dignity and receive care and support
based on individual need, rather than assumptions about the condition
Ageism Stigma and discrimination associated with dementia Lack of capacity to challenge or report incidents that occur Contravention of human rights due to these three key reasons
Alzheimer’s Society
An end to discrimination because of reduced mental capacity An end to age discrimination towards older people An end to age discrimination towards younger people Improved support for people from black, Asian and minority ethnic (BAME)
communities
Improved care and support Robust action on abuse Fairer care funding Continued action on the inappropriate prescription of antipsychotic drugs
Alzheimer’s Society
Participation Accountability Non-discrimination and
equality
Empowerment Legality
Bringing together information
about rights in one place
What are rights? Why rights matter Decision making and
planning ahead
Public services and benefits How can you use your
rights?
Support and advocacy Legal action
Information and advice Publications The Dementia Guide National Helpline Talking Point online forum
Alzheimer’s Society
Alzheimer’s Society
A new brand and strategy The rallying point for people affected by dementia Making dementia impossible to ignore Giving everybody affected by dementia a voice Developing a rights based approach Building capacity within Alzheimer’s Society Rights Entitlements to good care
Alzheimer’s Society
Clarity on what good care looks like Clarity on what care to expect Organisational understanding that enables us to act Developing an approach to:
Alzheimer’s Society