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Members Day Breakfast Briefing: New members Saturday 29 March: 8:00 am Park & Ascot Suite @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations Speakers Jo Groves, IAPO : Introduction to Congress theme


  1. Members’ Day Breakfast Briefing: New members Saturday 29 March: 8:00 am Park & Ascot Suite @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations

  2. Speakers Jo Groves, IAPO : Introduction to Congress theme • Jolanta Bilińksa , IAPO Chair Elect: History of • Congress and previous Congress experiences Roger Kendell, Epilepsy HERE : previous Congress • experiences Group discussion and close • #GPC2014

  3. Discussion questions Expectations: What do I hope and expect to learn and • get out of the Congress? Input: What I am going to contribute to the event. • #GPC2014

  4. We wish you the best for Congress 2014. Please do follow and contribute on social media: @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations The IAPO AGM will follow at 9:30 in the Windsor & Eton Suite after a brief refreshments break.

  5. Members’ Day Introduction: Building patient involvement in universal health coverage globally Saturday 29 March, 11:30 am Windsor & Eton Suite @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations

  6. Chair • Kin-ping Tsang , IAPO Chair Speakers • Jo Groves , IAPO • Rachel Seal-Jones , IAPO #GPC2014

  7. Why did IAPO choose access to healthcare as the theme of the 6 th Global Patients Congress? Access is the number one key issue identified by our • members. Universal health coverage is a priority area for the World • Health Organization (WHO) and Member States. However, there is a lack of understanding of what UHC is • and how we get there. The patient perceptive is key – as the recipient of • healthcare services so should have a say in how universal health coverage (UHC) is defined. #GPC2014

  8. What is universal coverage? “Universal health coverage is the single most powerful concept that public health has to offer.” - Margaret Chan, Director General, WHO Universal coverage ensures that all people can use health services without financial hardship. #GPC2014

  9. Universal health coverage Objectives of universal health coverage: • Equity in access to health services • High quality of health services • Financial-risk protection. This requires: • A strong, efficient, well-run health system. • A system for financing health services. • Access to essential medicines and technologies. • A sufficient capacity of well-trained, motivated health workers. #GPC2014

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  12. UHC Information Paper ‘IAPO Information Paper: • Universal health coverage ’, provides an introduction to universal health coverage ‘Country examples towards universal health coverage’, • examples from six countries; Mexico, Rwanda, Japan, Ghana, Thailand, and Chile, expanding healthcare coverage #GPC2014

  13. Conclusion and next steps It is imperative that patients are involved in the • development and implementation of UHC strategies. Members will work to develop patient-centred principles • on UHC. The principles will be finalised after the Congress. • IAPO will use these principles to develop a policy position • on UHC. IAPO will share this position at the World Health • Assembly in May 2014. #GPC2014

  14. Members Day Opening plenary: Achieving access to healthcare Saturday 29 March, 11:45 Windsor & Eton Suite @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations

  15. Chair Durhane Wong-Rieger , IAPO Governing Board • Speakers Eva Maria Ruiz de Castilla , IAPO Governing Board • and ESPERANTRA Matthias Weinold , European AIDS Treatment Group • Orajitt Bumrungskulswat , Heart to Heart • Foundation #GPC2014

  16. Issues to be covered What are the main barriers to achieving access to • healthcare from your experience? What initiatives and approaches have you found • helpful in overcoming these barriers, and improving access? What principles, from a patient perspective, will the • concept of UHC need to include to achieve better access to healthcare? #GPC2014

  17. Regional breakout sessions Please don’t forget the regional breakout sessions that will follow lunch, in allocated rooms: Africa - Brockenhurst • Asia Pacific - Park & Ascot • Eastern Mediterranean - Lyndhurst • Europe - Windsor & Eton Suite • Latin America - Devonish • North America - Wentworth • #GPC2014

  18. Members’ Day Regional Workshops feedback session: Patient involvement in access to healthcare Saturday 29 March, 14:45 Windsor & Eton Suite @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations

  19. Chair Linda Craig , IAPO Structure 1. Presentations from each region: Africa • Asia Pacific • Eastern Mediterranean • Europe • Latin America • North America • 2. Group discussion to draft list of principles on UHC #GPC2014

  20. World cafe: Principles on universal health coverage from a patient’s perspective Saturday 29 March, 16:15 Windsor & Eton Suite @IAPOtweets #GPC2014 www.facebook.com/internationalallianceofpatientsorganizations

  21. Chair • Jo Groves , IAPO • Facilitation support: Megan MacGarry, IAPO Structure Break into groups: one principle per table • Please appoint a Chair who remains at the table • Brief discussion sessions, then move tables • Chair to present key findings back to the main group • #GPC2014

  22. Common principles/ themes • Equality • Empowerment, education and communication • Quality, accountability, standards • Patient-centred, changing systems • Engagement and collaboration • Value, not cost of healthcare #GPC2014

  23. Round up and conclusions • Kin ping Tsang , IAPO Chair • Jo Groves , IAPO #GPC2014

  24. Conclusion and next steps It is imperative that patients are involved in the • development and implementation of UHC strategies. Members will work to develop patient-centred principles • on UHC. The principles will be finalised after the Congress. • IAPO will use these principles to develop a policy position • on UHC. IAPO will share this position at the World Health • Assembly in May 2014. #GPC2014

  25. Message from Joshua Wamboga Magawa, of The AIDS Support Organisation (TASO) Uganda- on election to the IAPO Board “Glory is to the Almighty God. I am humbled! Thank you the great IAPO team for working diligently to organize a successful 2014 congress. I am happy to join, learn, share experiences and in unison advance and champion the patients agenda. IAPO has done and achieved a lot, and yet still, much more needs to be done to see a patient at the centre of health care across the globe. For now I am happy to know and I pledge my total commitment to the cause of IAPO as I have done before. To the entire congress, say thank you! The trust and confidence put in me is much appreciated and I believe it shall bear fruits Best Regards, Joshua” #GPC2014

  26. Thank you for your participation in Members Day. The Welcome reception will take place at 18:30 in the Windsor & Eton Bar. All delegates are invited to attend. Important reminder: Please don’t forget to turn your clocks forward an hour overnight. #GPC2014

  27. Contact Us Please visit our website to find out more: www.patientsorganizations.org Tel: +44 20 7250 8280 Fax: +44 20 7250 8285 Email: info@patientsorganizations.org www.facebook.com/internationalallianceofpatientsorganizations @IAPOtweets #GPC2014 #GPC2014

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