How Data Supports Advocacy Using Mapping as an Advocacy Tool Hosted by Southern Women’s Advocacy Response Mobilization (Project SWARM) a project of Positive Women’s Network - USA Feb 10, 2015 www.pwn-usa.org Positive Women's Network-USA www.pwn-usa.org
Southern W omen’s Advocacy Response Mobilization Project SWARM • Proje ject ct SWARM is an advocacy action network led by women living with HIV based in the U.S. South. • The purpose of Project SWARM is to build skills among women living with HIV to meaningfully participate in advancing policy and culture changes that impact women living with and vulnerable to acquiring HIV. Positive Women’s Network -USA 2 www.pwn-usa.org
Our Distinguished Presenters Barb Cardell , is a Boulder, Alexandra Ricca – MPH , is a Sharon DeCuir , is a well Colorado-based Senior Public Health Program recognized advocate for nationally known Associate at Emory University in women, social justice, HIV advocate and leader. She Atlanta, GA, where she is and a member of PWN- USA’s is Vice-Chair of responsible for leading the Project SWARM. the People Living with coordination of AIDSVu, an Sharon is the Leadership and HIV National Caucus , interactive online map depicting Advocacy Coordinator at Senior member of PWN- the HIV epidemic in the United HIV/AIDS Alliance for Two Inc. USA- Colorado’s Regional States. (HAART), Baton Rouge, LA. In Chapter and PWN- USA’s addition Sharon is PWN- USA’s Board of Directors Board of Directors Chairperson. Vice-Chair Positive Women ’ s Network-USA www.pwn-usa.org
Illustrating HIV/AIDS in the United States How Data Supports Advocacy – Using Data Mapping in Advocacy Alexandra Ricca, MPH Emory University Positive Women’s Network -USA Tuesday, February 10, 2015 Positive Women's Network-USA www.pwn-usa.org
About AIDSVu AIDSVu is a compilation of interactive, online maps that allows users to visually explore the HIV epidemic in the U.S. alongside critical resources such as HIV testing and treatment center locations. AIDSVu ’s mission is to make HIV prevalence data widely accessible and locally relevant. AIDSVu provides users with an intuitive, visual way to connect with complex information about persons living with an HIV diagnosis at national, state and local levels. Positive Women's Network-USA www.pwn-usa.org
Interactive Maps National, State, and Local Maps • Persons living with an HIV diagnosis by state, county, ZIP code and census tract • Social determinants of health (e.g., poverty, lack of health insurance, educational attainment) • HIV transmission modes • HIV testing and treatment center locations • NIH-funded HIV Prevention, Vaccine & Treatment Trials Sites Positive Women's Network-USA www.pwn-usa.org
2014 Update Bridgeport-Stamford Boston Milwaukee Detroit Chicago New Haven Newark Denver New York Philadelphia Oakland San Francisco Washington, DC Richmond Memphis Hampton Roads Charlotte Jackson Dallas Los Angeles Columbia Atlanta San Diego Jacksonville Orlando Houston New Orleans West Palm Beach Existing AIDSVu Baton Rouge City Tampa Ft. Lauderdale New AIDSVu City Miami in 2014 San Juan New census tract maps: Updated census tract maps: Neighborhood maps: Chicago Philadelphia Chicago Positive Women's Network-USA Washington, D.C. Washington, D.C. www.pwn-usa.org
Local Statistics • City and state demographics • HIV prevalence rate ratios by race/ethnicity • HIV transmission modes, late diagnoses and mortality data • HIV/AIDS federal grant funding and programs • STD quick facts • Website links for city- and state-level HIV/AIDS resources Positive Women's Network-USA www.pwn-usa.org
Other AIDSVu Features HIV Testing Site Locator • CDC National Prevention Information Network • Search by ZIP code or city & state HIV Treatment Site Locator • Ryan White HIV/AIDS Medical Care Providers • Search by ZIP code or city & state Downloadable Resources • Slide decks with high-resolution maps • Data sets Positive Women's Network-USA www.pwn-usa.org
AIDSVu : Supporting the National HIV/AIDS Strategy • Prevent new HIV infections • Improve linkage to prevention, care and treatment • Reduce HIV-related health disparities Positive Women's Network-USA www.pwn-usa.org
Rates of Persons Living with an HIV Diagnosis, by County, Southeastern U.S., 2010 * Data are not shown to protect privacy. ** State health department requested not to release data. Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to account for reporting delays and missing risk-factor information, but not for incomplete reporting. Positive Women's Network-USA Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS www.pwn-usa.org Prevention.
Rates of Black and White Persons Living with an HIV Diagnosis, by County, Southeastern U.S., 2010 Black Rates White Rates * Data are not shown to protect privacy. ** State health department requested not to release data. Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to account for reporting delays and missing risk-factor information, but not for incomplete reporting. Positive Women's Network-USA Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS www.pwn-usa.org Prevention.
Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Atlanta, 2011 * Data are not shown to protect privacy because of a small number of cases and/or a small population size. Notes: Rates include persons living with an HIV or AIDS diagnosis in Clayton, Cobb, Douglas, DeKalb, Fulton, and Gwinnett Counties at the end of 2011 and who were reported as of 12/31/2013. Data have not been adjusted for reporting delays. Positive Women's Network-USA Data Source: Georgia Department of Public Health, Division of Health Protection, Epidemiology Program, HIV/AIDS Epidemiology Section. www.pwn-usa.org
Rates of Black & White Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Atlanta, 2011 Black Rates White Rates * Data are not shown to protect privacy because of a small number of cases and/or a small population size. Notes: Rates include persons living with an HIV or AIDS diagnosis in Clayton, Cobb, Douglas, DeKalb, Fulton, and Gwinnett Counties at the end of 2011 and who were reported as of 12/31/2013. Data have not been adjusted for reporting delays. Positive Women's Network-USA Data Source: Georgia Department of Public Health, Division of Health Protection, Epidemiology Program, HIV/AIDS Epidemiology Section. www.pwn-usa.org
Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Columbia MSA, 2011 * Data are not shown to protect privacy because of a small number of cases and/or a small population size. Notes: Rates include persons living with an HIV or AIDS diagnosis in Columbia MSA at the end of 2011 and who were reported as of 05/07/2014. Data have not been adjusted for reporting delays. Data Source:South Carolina Department of Health and Environmental Control, Bureau of Disease Control, Division of Surveillance and Technical Support. Positive Women's Network-USA www.pwn-usa.org
Rates of Black & White Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Columbia MSA, 2011 Black Rates White Rates * Data are not shown to protect privacy because of a small number of cases and/or a small population size. Notes: Rates include persons living with an HIV or AIDS diagnosis in Columbia MSA at the end of 2011 and who were reported as of 05/07/2014. Data have not been adjusted for reporting delays. Data Source:South Carolina Department of Health and Environmental Control, Bureau of Disease Control, Division of Surveillance and Technical Support. Positive Women's Network-USA www.pwn-usa.org
Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Jackson, 2011 * Data are not shown to protect privacy because of a small number of cases and/or a small population size. Notes: Rates include persons living with an HIV or AIDS diagnosis in Jackson at the end of 2011 and who were reported as of 05/01/2014. Data have not been adjusted for reporting delays. Data Source: Mississippi Department of Health, STD/HIV Office. Positive Women's Network-USA www.pwn-usa.org
Rates of Black & White Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Jackson, 2011 Black Rates White Rates * Data are not shown to protect privacy because of a small number of cases and/or a small population size. Notes: Rates include persons living with an HIV or AIDS diagnosis in Jackson at the end of 2011 and who were reported as of 05/01/2014. Data have not been adjusted for reporting delays. Data Source: Mississippi Department of Health, STD/HIV Office. Positive Women's Network-USA www.pwn-usa.org
Caveats & Limitations of AIDSVu Maps • Data on AIDSVu may differ from data released in state and local HIV surveillance reports. • Maps are inclusive of incarcerated persons and should be interpreted with caution. • AIDSVu maps do not reflect undiagnosed cases. • Caution should be exercised when comparing maps because the scales change when viewing data overall and by race/ethnicity, sex and age group breakdowns. Positive Women's Network-USA www.pwn-usa.org
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