Experience Design Kayla J. Heffernan Agenda 1. Crowdsourcing for - - PowerPoint PPT Presentation

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Experience Design Kayla J. Heffernan Agenda 1. Crowdsourcing for - - PowerPoint PPT Presentation

Aug 14, 2022 153 likes •462 views

Lessons from Patient Experience Design Kayla J. Heffernan Agenda 1. Crowdsourcing for clinical research 2. Vitamin D status with an app 3. Insertable device usage 4. Epilepsy diagnosis and management 5. Precision medicine as a patient 6.

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Lessons from Patient Experience Design

Kayla J. Heffernan

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Agenda

  • 1. Crowdsourcing for clinical research
  • 2. Vitamin D status with an app
  • 3. Insertable device usage
  • 4. Epilepsy diagnosis and management
  • 5. Precision medicine as a patient
  • 6. What does this mean for precision medicine?

@kaylajheffernan

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Crowdsourcing for clinical research

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Crowdsourcing for Clinical Research

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Opportunities and Benefits

@kaylajheffernan

Birch, K. E., & Heffernan, K. J. (2014). Crowdsourcing for clinical research: an evaluation of maturity. In Proceedings of the 7th Australasian Workshop on Health Informatics and Knowledge Management-Volume 153(pp. 3-11). Australian Computer Society.

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Birch, K. E., & Heffernan, K. J. (2014). Crowdsourcing for clinical research: an evaluation of maturity. In Proceedings of the 7th Australasian Workshop on Health Informatics and Knowledge Management-Volume 153(pp. 3-11). Australian Computer Society.

Prominent Example

@kaylajheffernan

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Prominent Example

@kaylajheffernan

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Crowdsourcing Future Opportunities

@kaylajheffernan

Birch, K. E., & Heffernan, K. J. (2014). Crowdsourcing for clinical research: an evaluation of maturity. In Proceedings of the 7th Australasian Workshop on Health Informatics and Knowledge Management-Volume 153(pp. 3-11). Australian Computer Society.

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Improving Vitamin D status with an app-based intervention

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Personalised Recommendations

Don’t smoke Get more vitamin D through sun exposure. But don’t get too much sun exposure because you might get skin cancer. And ‘too much’ depends on your skin type... how much skin you have exposed… clothing... if you’re wearing sunscreen... your location... the UV... the cloud cover... the pollution...

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Based on individual & external factors

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Behavioural intervention requires a trigger

1Fogg, B. J. (2009, April). A behavior model for persuasive design. In Proceedings of the 4th international Conference on Persuasive Technology (p. 40). ACM.

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Make the patient care

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Insertable Device Usage

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Insertable Device Usage

@kaylajheffernan

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Insertable Device Usage

@kaylajheffernan

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Epilepsy Diagnosis and Management

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Epilepsy screening

@kaylajheffernan

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Tracking seizures

@kaylajheffernan

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UX is important in tracking seizures

@kaylajheffernan

User feedback that duration selection is confusing Confusing navigation Small hit areas Event type upfront to reduce data entry errors Increased readability Simplified duration selection

  • Simplified navigation
  • Increased hit areas
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UX is important in tracking seizures

@kaylajheffernan

  • Small hit areas
  • Clinician focused language
  • Small hit areas
  • Confusing navigation

Patient centric language Simplified navigation Increased hit areas

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Notifications for medication compliance

@kaylajheffernan For a behaviour to occur

  • ne must have the:
  • Motivation
  • Ability
  • Prompt

Prompts remind them to take medication, however must be able to be snoozed so they are re-reminded when they have the ability to take them.

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Seizure Forecasting

  • Personalised mobile

forecast

  • Integrate behaviour,

environment, physiology

  • Unify measurements

from wearable devices + mobile apps

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Precision medicine as a patient

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Individualized RCT Results

@kaylajheffernan

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Global patient experiences are confusing

@kaylajheffernan

🇧 🇻 🇪 🇩

Rx ❌ I.D

🧃

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What does this mean for precision medicine?

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Precision Medicine

  • 1. Patient experiences are key
  • 2. People are already experimenting
  • 3. Harness untapped patients data (ethically)
  • 4. For interventions with digital component:
  • a. Store static information rather than prompting for it
  • b. Default to the inputs last used, rather than requiring re-entry
  • c. Determine external information without user interventions
  • d. Research usability before launch and monitor
  • 5. Tailor recommendations per patient
  • 6. People are going to do whatever they want to their bodies if they have deemed

the rewards are better than the risk

  • 7. People are becoming more comfortable with devices inside their bodies
  • 8. People are complex
  • 9. Think globally

@kaylajheffernan

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Questions?