A Valid Voice Virtual Seminar Series Bureau of Sages Opportunities - - PowerPoint PPT Presentation

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“A Valid Voice” Virtual Seminar Series

Bureau of Sages Opportunities

2018 Bureau of Sages Virtual Seminar Series

Thank you for joining our Virtual Seminar!

We will start soon.

Please take a moment to explore our Virtual Seminar CHAT and Q&A features!

WELCOME

We will use 2 engagement tools for this Virtual Seminar:

• Chat
• Q&A

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Erin McGaffigan, PhD

WELCOME

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To work collaboratively with those who have a direct stake in your research to ensure your focus, design, and findings are translatable, leading to sustainable solutions to well-recognized problems.

Providers Loved Ones/ Allies Participants/ Individuals Accessing Care Policy Makers Community Leaders

2018 Bureau of Sages Virtual Seminar Series

DEFINING STAKEHOLDER ENGAGEMENT IN RESEARCH

CONTINUUM OF COMMUNITY (STAKEHOLDER) ENGAGEMENT IN RESEARCH

Contents adapted from Wilkins CH et al. 2015

Ongoing Involvement Short-term Involvement PI or Co-PI Research Partners or Team Members Governance and Advisory Groups Reviewers, Interviewees, and consultants Knowledge Users and Experiencers # of Stakeholders Extent of Commitment

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Virtual Seminar Series

Date Focus Seminar 1 6/20/18 Introduced the Concept of Stakeholder Engagement Research and Reviewed Assumptions and Challenges Seminar 2 8/22/18 Recognized Common Challenges to Engagement in Research and Discussed Helpful Solutions Seminar 3 10/10/18 A Look at One Model: Bureau of Sages Opportunities

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Seminar 4 12/12/18 Deeper Dive on Engaging Frail Elders and Individuals from Diverse Backgrounds

This program was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (7206-CJE)

“A Valid Voice” Virtual Seminar Series

Bureau of Sages Opportunities

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Amy Eisenstein, PhD

1) Understand the background, vision and values of the Bureau of Sages 2) Explain the model of engagement and evaluation used in the Bureau of Sages 3) Discuss opportunities for researchers – Learning from other researchers – Engaging with/presenting to Stakeholder groups – Finding funding for engaged research & outlets for publications

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LEARNING OBJECTIVES

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PCORI’s Mission

PCORI helps people make informed healthcare decisions, and improves healthcare delivery and

• utcomes, by producing and promoting high-integrity,

evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community.

THE PATIENT CENTERED OUTCOMES RESEARCH INSTITUTE

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Bring together a variety of stakeholders to learn about and discuss research concepts in order to provide voice to the direction, design, and implementation of national research on aging.

PURPOSE OF BUREAU OF SAGES PROJECT

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BUREAU OF SAGES OBJECTIVES

2018 Bureau of Sages Virtual Seminar Series

To prepare a diverse group of Stakeholders with information, knowledge, and training on ‘Patient-Centered Outcomes Research’ and ‘Comparative Effectiveness Research’ in order for them to: 1. Serve as an advisory bureau to CJE SeniorLife’s internal research department. 2. Serve as an advisory bureau to local and national researchers wishing to conduct Comparative Effectiveness Research or Patient- Centered Outcomes Research. 3. Serve as individual advisors to larger Patient-Powered Research Networks (PPRNs). 4. Serve as champions and role models for incorporating the voice of diverse patient populations into research.

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WHO PARTICIPATED IN THE DEVELOPMENT OF THE BUREAU OF SAGES?

2018 Bureau of Sages Virtual Seminar Series

• Lieberman Community and

Virtual Senior Center Members gained experience in expressing their expertise as patients and users of healthcare.

• Clinicians and researchers gained

experience in listening for and identifying meaningful outcomes that matter to users of the health care system.

Mission:

Empowering nursing home community members and stay- at-home elders to learn and collaborate with researchers to advocate for timely, useful research that matters to them

Drawing credit to Katharine Houpt

https://www.youtube.com/watch?v=7UdKgmoXT14

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A SAGE PERSPECTIVE

2018 Bureau of Sages Virtual Seminar Series

▪ The use of technology (the Virtual Senior Center) to incorporate the voice of Stay-at-Home Elders. ▪ Facilitator guides for all assignments and meetings in

• rder to assist with the challenges of leading discussions

through multiple formats (virtually, in-person, and/or by phone). ▪ Training and presentation templates to present research to an audience with diverse abilities. ▪ Creation and implementation of hands-on evaluation method incorporating visual cues (see example below).

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STRATEGIES USED TO CREATE THE BUREAU

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INNOVATIVE SOLUTIONS: THE VIRTUAL SENIOR CENTER

2018 Bureau of Sages Virtual Seminar Series

HANDS ON EVALUATION

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Anna-Liisa LaCroix, MPH Administrator, Central Baptist Village "The Bureau of Sages model is unique since it is a vehicle for nursing home residents to express their voice and contribute to a greater effort. It also

• ffers an original way to engage

residents in an intellectual manner.”

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A RESEARCHER PERSPECTIVE

2018 Bureau of Sages Virtual Seminar Series

• It’s an ongoing rather than stand alone activity; this creates
• pportunities to build relationships, consider significant

questions or topics, and engage in stimulating discussion.

• It amplifies the voices of residents who traditionally have less
• f a chance to be heard on a large stage; many facilities practice

person-centered care and strive to connect residents to the larger community, but it can be a struggle.

• There is a framework for resident engagement ready for your
• use. Residents demonstrate satisfaction and increased self-

esteem by participating. They belong to something and have a unique identity separate from “nursing home resident.”

WHAT ELSE DO I LIKE ABOUT THE BUREAU OF SAGES MODEL?

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STRUCTURE OF CURRENT BUREAUS

2018 Bureau of Sages Virtual Seminar Series

Virtual Senior Center Bureau

Lieberman Community Bureau

Mesulam Bureau

Margaret Danilovich PT, DPT, PhD Department of Physical Therapy and Human Movement Sciences Feinberg School of Medicine, Northwestern University "The advice and feedback from the Bureau of Sages is invaluable to

• researchers. This opportunity is unlike any
• ther experience I have had as a

researcher by allowing me to share my ideas with the patient population I will be working with to get feedback in the formative stage.”

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A RESEARCHER PERSPECTIVE

2018 Bureau of Sages Virtual Seminar Series

• Grant-writing; shaping the approach
• Person-resources; orientation & training
• Academic-related benefits

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• Benefits of Engagement

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TAKEAWAYS FOR RESEARCHERS

2018 Bureau of Sages Virtual Seminar Series

• Process for contacting an existing bureau

– https://www.cje.net/research-education/bureau-sages/contact- bureau

• GSA Interest Group on Patient/ Person Engagement

in Research

– http://connect.geron.org/home

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• Opportunities for

Researcher Involvement

2018 Bureau of Sages Virtual Seminar Series

• Process for establishing a Bureaus

– Engagement Resources: https://www.cje.net/research- education/bureau-sages/sages-every-setting – Manual & Training Toolkit: https://www.cje.net/research-education/bureau- sages/resources

• Additional information

– Latest News! https://www.cje.net/research- education/bureau-sages/bureau-sages-news

OPPORTUNITIES FOR CREATING YOUR OWN BUREAU

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• Funding

– Check our resource list! https://www.cje.net/research- education/bureau-sages/sages-every-setting – Focus on necessary/appropriate time for partnership development and proper incentives

• Publications

– Progress in Community Health Partnerships: Research, Education, and Action. https://www.press.jhu.edu/journals/progress-community- health-partnerships-research-education-and-action – Lay publications

FUNDING AND PUBLICATIONS

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Please keep a look out in your email!

• Virtual Seminar Feedback Survey

– https://goo.gl/forms/x0XrrM4KfGVGTJih1

• Link to our Virtual Seminar website page

– https://www.cje.net/research-education/bureau- sages/sages-every-setting

– Registration for future Virtual Seminars – Today’s Recording, Slides, and Resource List

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• “A Valid Voice” Virtual Seminar Series

Bureau of Sages Opportunities

2018 Bureau of Sages Virtual Seminar Series

QUESTIONS AND ANSWERS

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“A Valid Voice” Virtual Seminar Series

Bureau of Sages Opportunities

2018 Bureau of Sages Virtual Seminar Series

Reminder! UPCOMING EVENTS!

Date Focus Seminar 4 12/12/18 Deeper Dive on Engaging Frail Elders and Individuals from Diverse Backgrounds

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“A VALID VOICE” VIRTUAL SEMINAR SERIES

ENGAGING STAKEHOLDERS IN RESEARCH

2018 Bureau of Sages Virtual Seminar Series