28/05/2015 R e spe c ting Faculty/Presenter Disclosure and Addr - - PDF document

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R e spe c ting and Addr e ssing F ir st Nation, Mé tis and Inuit Palliative Car e Ne e ds

Leah Bergstrome, Aboriginal Patient Navigator Simcoe Muskoka Regional Cancer Program

Faculty/Presenter Disclosure

Presenter: Leah Bergstrome Relationships with commercial interests:

• Grants/Research Support: None
• Speakers Bureau/Honoraria: None
• Consulting Fees: None
• Other: Employee of Royal Victoria Regional Health Centre

Ob je c tive s



L E AP e ng a g e me nt se ssio ns - o utc o me s a s the y re la te to pa llia tive c a re ne e ds



Pe rspe c tive s o n living a nd dying



Mo ving fo rwa rd

L E AP E ng a g e me nt Se ssio ns

 Ba c kg ro und CCO / Pa llium Pa rtne rship  F

NMI Pa llia tive Ca re Curric ulum

 3 se ssio ns (Ma rc h 2014)  Pa rtic ipa nts  Re po rt o utc o me s

Re c urring T he me s

Pa llia tive a nd E nd-o f-L ife Ne e ds

 E

duc a tio n – re so urc e s

 Unde rsta nding o f so c ia l issue s  HCP’ s - o pe n-minde dne ss, re spe c t & trust  Co ntinuity o f c a re  Multi-dime nsio na l a ppro a c h  E

mpha sis o n se lf-de te rmina tio n

 Co mmunic a tio n  Advo c a c y fro m Ma instre a m pro vide rs

Bar r ie r s to Pa llia tive a nd E

nd-o f-L ife E q uita b le Ca re

 L

a c k o f c ultura l sa fe ty

 Ac c e ss to se rvic e s  L

a c k o f prima ry c a re a nd c o o rdina tio n o f c a re

 L

a c k o f a wa re ne ss a s to wha t se rvic e s a re a va ila b le

 Co mmunic a tio n / L

a ng ua g e b a rrie rs

 T

ra nspo rta tio n

 Re so urc e s  T

e c hno lo g y / OT N

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Re spe c t fo r Dive rsity

 133 F

irst Na tio ns c o mmunitie s in Onta rio (633 Ca na da / 50 distinc t la ng ua g e s)

 127 o f whic h re c o g nize d unde r the I

ndia n Ac t

 Mé tis & I

nuit po pula tio n

 I

mpa c t o f c o lo niza tio n a nd a ssimila tio n pra c tic e s

 Ho mo g e no us so c ie ty vs. He te ro g e ne o us so c ie ty

Dive rsity I n:

 Spiritua l pra c tic e s  T

ra ditio na l pra c tic e s

 Cultura l pra c tic e s  L

a ng ua g e g ro ups

 Ab o rig ina l pe o ple fro m o the r te rrito rie s living in Onta rio  E

xpe rie nc e s a nd inte ra c tio ns with “ma instre a m so c ie ty”

 All ha ve a n impa c t o n ho w Ab o rig ina l pe o ple a c c e ss

pa llia tive c a re se rvic e s

Da d 1944 - 2001

Pe rspe c tive s o n L ife a nd De a th

 Cr

e ation Stor ie s – le g a c y o f re la tio nships

with the a nc e sto rs fro m the b e g inning o f time to the pre se nt / c onne c tion to land

 Cir

c le of L ife – fo ur sta g e s in the jo urne y o f

the huma n spirit:

 Birth  L

ife

 De a th  Afte rlife (T

ra nsitio n / Cha ng ing o f Wo rlds) Ba a Ma a Pii

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“I re alize that de ath is no t the e ne my but the ultimate he aling.”

Ro b e rt Chi-No o din Pa lme r, MD  E

a c h o f us is b o rn with

 A spirit / ha ving a huma n e xpe rie nc e (3 pa rts)  Sa c re d Na me  Cla n o r na tio n  Gifts o r ta le nts / Inte rc o nne c te dne ss o f a ll thing s  De stiny in whic h we will fa c e ma ny c ha lle ng e s  E

nd o f life c a re a nd Ce re mo nie s re fle c t this

 Orig ins a nd e ve ntua l de stina tio n o f the spirit

E nd o f L ife & Dying

 Whe n dying , a tra ditio na l pe rso n will c a ll fo r

the c e re mo nie s, me dic ine a nd pra ye rs tha t will g uide his / he r spirit b a c k to the spirit wo rld

 Spiritua l le a de r o r me dic ine pe rso n c lo se to the

dying pe rso n will c o nduc t the c e re mo nie s

 F

a mily a nd c la n me mb e rs will b e pre se nt

 “Me dic ine ” in this c o nte xt me a ns spiritua l

po we r – a c o mb ina tio n o f a b ility a nd a utho rity –linke d to a n a b ility to a dvise a nd he a l

 F

a mily / g rie f

 Priva c y a nd pe a c e fulne ss

De a th

 At the time o f de a th, o ur o rig ina l mo the r,

Mo the r E a rth, who no urishe s o ur b o die s re c la ims o ur physic a l fo rm

 Our o rig ina l fa the r, the Cre a to r ta ke s o ur spirits

to re turn the m to the ir pla c e o f o rig in

Afte rlife

 Spirit c a n b e se e n a nd fe lt le a ving the b o dy  T

ra ve ls we stwa rd o ut thro ug h the We ste rn do o rwa y

 T

he Spirit live s fo re ve r a nd ta ke s it’ s pla c e in the spirit wo rld a c c o rding to de e ds c o mple te d

• n e a rth

 T

he Cyc le o f L ife is c o mple te whe n spirit re turns to its pla c e o f o rig in / Ce re mo nie s

Cre a to r

 Ne ithe r ma le no r fe ma le  Po we rful, a ll lo ving , a ll kno wing Spirit  Ho lds a ll po we r, a ll me dic ine , a ll wisdo m  Aide d b y  Our Anc e stor s a nd Wa rrio rs, b o th me n a nd

wo me n, who wa lke d b e fo re us

 Spirit b e ing s, Gra ndmo the rs a nd Gra ndfa the rs,

spirit he lpe rs

 Anima l he lpe rs, powe r

ful obje c ts

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Ce re mo nie s

 Na ture a nd pra c tic e va rie s fro m c o mmunity to

c o mmunity a nd c a n b e spe c ific to the le a de r

• r he a le r who c a rrie s the m

 Spiritua l He a ling a nd re c o nc ilia tio n c o ntinue s  R

e c laiming of ide ntity

 Priva c y / ritua ls a nd pe rso na l c e re mo nie s  T

e a c hing c e re mo nie s, lo ve o f the Cre a to r, tra nsitio n o f the spirit fro m physic a l to sky wo rld, e nc o ura g e me nt, stre ng th a nd suppo rt

 Sto rie s o f life , dre a ms, visio ns, fe a rs, re g re ts

a nd g uilt a re liste ne d to b y the he a le r

Miika a ns – L ittle Ro a ds Ce re mo nie s

 Pipe c e re mo ny  Pra ye r  Sa c re d So ng  Smudg ing  Sa c re d F

ire

 Dre a ms, Jo urne y’ s

a nd so ul re trie va l wo rk

 Pa tie nt is pre pa re d - the

mind is c le a re d a nd a b le to re c e ive the te a c hing a nd pre pa re fo r the spirits jo urne y

 L

• dg e / fa mily pra ye r

swe a t

 Ce re mo ny / impo rta nc e

to fa mily a nd frie nds

Mo ving F

• rwa rd

 Awa re ne ss a nd Ab o rig ina l He a lth E

q uity

 Cultura l Sa fe ty  Co nve rsa tio ns  Pe rso na l E

xpe rie nc e s Nia we n ko :wa , Miig we c h, Ma rse e , T ha nk Yo u

Que stio ns? Questions?