SLIDE 1 Case Study of the AKU Society: Trusts, the EC and Crowdfunding
Oliver Timmis Head of Projects, AKU Society
SLIDE 2 Awards for All Charity - workshops BLF - research programme Research - development of AKU model Childwick Trust Research - observational study Genetic Alliance UK Charity - route maps Rosetrees Trust Research - joint destruction in AKU The Monument Trust Charity - website development HQIP Charity - online registry National Specialised Services Charity - patient identification and support Research - national assessment centre BLF - Reaching Communities Charity - develop online communities EU FP7 Charity - patient identification and support Research - European clinical trials Jeans for Genes Charity - workshops
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Preparation
1) Identify the problem and solution 2) Identify the trust
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Trusts
1) What are they looking for? 2) Past grants, read the guidelines
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Application
1) Read carefully and answer the questions 2) Proofread and proofread
SLIDE 6 Flexible deadlines, grants between £10,000 - £500,000
- People have better chances in life, with better access
to training and development to improve their life skills
- Stronger communities, with more active citizens,
working together to tackle their problems
- Improved rural and urban environments, which
communities are better able to access and enjoy
- Healthier and more active people and communities
Example Trust
BLF Reaching Communities
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What does your project involve? Is it based on existing work? What problems will your project solve? How do you know there is a need? How does your project meet that need? Who benefits from the project? What difference will it make? Key Outcomes. Can your organisation deliver? What’s the budget?
DESCRIPTION PREPARATION IMPACT MANAGEMENT
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Research Applications
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- Established research team
- Work with university departments
- Show that you are useful – researchers need you
- Plan ahead
General tips
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Specific:
– Rosetrees – Arthritis Research UK
Top three in UK:
– Wellcome Trust – MRC (Medical Research Council) – NIHR (National Institute of Health Research)
European Commission
Trusts
SLIDE 11 Example Grant
DevelopAKUre, co-funded by the European Commission
SLIDE 12 DevelopAKUre Consortium
Vital to identify the right partners: ideally you should already have a working relationship
SLIDE 13 Two stage process: Started in May 2011 Approval Feb 2012 Start Nov 2012 Funding Jan 2013 Stage 2: 125 pages
Example Grant
DevelopAKUre, co-funded by the European Commission
Rigid structure:
- 1. Scientific and Technical Quality
- 2. Implementation and Partners
- 3. Impact
- 4. Ethics
- 5. Consideration of Gender aspects
- 6. Bibliography
SLIDE 14 S/T quality:
“The overall project is presented very clearly, in a systematic
- manner. The description perfectly addressed all relevant aspects of
the call.”
Implementation:
“The project structure is well designed and appropriate. The parties involved are highly skilled, providing an excellent mix of scientific, strategic and operational skills.”
Impact:
“The plans for dissemination were extremely well prepared. The IP Policy was seen as exemplary.” Evaluation: 15/15
Feedback
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Crowdfunding
Case Study – Help Us Cure Black Bone Disease, AKU Society
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50 days, 1,469 donors online gave $98,685 + offline donations = total $121,012
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1) Crowdfunding is a marathon
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2) Crowdfunding relies on social media
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3) The key is a personal appeal
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4) A video is vital
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5) But Perks Are Essential
SLIDE 22 “These trials have given us great hope. This treatment could completely change our lives. We’re that one step closer to a cure.”
SLIDE 23
Thank You!
Contact me: oliver@akusociety.org Twitter: @OliverTimmis
