PCRC Survey JACKI LASICH & DONNA LONG COWELL FAMILY CANCER - - PowerPoint PPT Presentation
PCRC Survey JACKI LASICH & DONNA LONG COWELL FAMILY CANCER CENTER ~ TRAVERSE CITY MICHIGAN Purpose of survey To evaluate insight and interest into the continuation of the PCRC collaborative To engage in reflective discussion of how
JACKI LASICH & DONNA LONG COWELL FAMILY CANCER CENTER ~ TRAVERSE CITY MICHIGAN
To evaluate insight and interest into the continuation of
the PCRC collaborative
To engage in reflective discussion of how to meet the
needs and goals of members and stakeholders in the research process
To initiate forward movement with the PCRC
Oncology Social Workers ➢ 12 respondents Patient Advocates ➢ 10 respondents Total: 22
valuable for you?
Communication and coordination Patient advocate perspectives and involvement Learning how the social worker role functions Making cross country connections with colleagues and patients Collaborative group process and creating space where everyone
can participate
Relationships developed and supported Opportunity to share experiences as a cancer patient and provide
a voice to improve clinical outcomes
Gaining understanding of the complex process required for
developing an organized & efficient collaborative
The immense effort required to create a collaborative from
the ground up
Appling research principles The value of patient participation and ensuring the patient
voice is heard
Buy-in of all participants required for successful collaboration Gaining perspective on the state of cancer care
Unclear & shifting focus of research project Lack of communication ~ In-person ~ Technical challenges with
Blue Jeans ~ Between committees/social workers/patient advocates
Prioritizing important tasks of both the PCRC & committee groups Loss of momentum Getting group members to jump in and take ownership of projects Ensuring patient advocate voices were heard and incorporated Lack of clarity for over all direction of the PCRC Coordinating life/jobs/PCRC more challenging than expected
If resolved, how so? If not, what steps/actions do you think are/were needed to resolve the challenge?
Mandatory check in times between PA and SW Create action plans/deadlines for important tasks & initiatives Sending out similar surveys to get feedback and then move
forward with decisions
Establish communication among PA’s to ensure their input
into PCRC
Identify needs and specific tasks to be done by committee
members and/or create sub-committees
Manage scheduling through “Doodle Bug” to allow for
greater participation
successfully achieve the primary purpose of the PCRC: To conceptualize and facilitate the conduct of patient-centered research
Clarification of the goals & objectives of PCRC ~ Identify a research
study to complete ~ “Site specific” projects around a common theme
Clear action items for committees Clarity of who wants to continue to participate Continued Patient Advocate involvement ~ With role descriptions Funding ~ Grants List from experts on what is left to complete More committee face to face time ~ Networking with key stakeholders
for education, research, resources and mentoring
Yes ~ 11
Enjoy collaboration Important for Social Work practice Enjoy learning process Continue to develop frameworks and resources to assist
future researchers
Believe in the process Believe in making a difference
Unsure ~ 9
In need of clearer understanding of PCRC goals and commitment
expectations ~ participation ~ time
Assurance that PA’s would continue to be utilized More value and deliverables for my institution Work/PCRC schedule conflicts
No ~ 2
Unsure of the longevity of this research Would like to regain balance between professional and personal life
Grateful for the meaningful opportunity to be a part of this
project!
Special thanks to Brad and Lisa for their hard work and effort
in getting the PCRC off the ground!
Great pleasure to meet other team members & hopes that
the PCRC is successful in finding ways to assist cancer patients through their treatment & care
We need to continually focus on building on our
accomplishments
PCRC original Ad for involvement
The Association of Oncology Social Work’s Patient-Centered Research Collaborative (PCRC) for Psychosocial Oncology is accepting applications for participation. This is an exciting opportunity to enhance your research skills, participate in research and use research to improve the quality of cancer care. Benefits include: Research training, skill-building and mentorship Opportunity to contribute to research that will enhance the quality of cancer care Networking and collaboration with established OSW researchers
►PCORI stated aims Aim 1: Establish a research cooperative group comprised of oncology social workers, patient advocates, and academic researchers. Aim 2: Enhance the capacity of the research group to conduct high-quality Patient-Centered Outcomes Research (PCOR) Aim 3: Engage the group in generation and prioritization of Patient-Centered Research
How do we make this happen?