Wednesday 11 th October 2017 1 Agenda 9.30am Registration and - - PowerPoint PPT Presentation

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Wednesday 11 th October 2017 1 Agenda 9.30am Registration and - - PowerPoint PPT Presentation

Transforming Cancer Services Team for London Excellent Psychological Care for those affected by Cancer Second Consultation event: Key principles and recommendations for a Pan- London psychological care pathway Wednesday 11 th October 2017 1


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Transforming Cancer Services Team for London

Excellent Psychological Care for those affected by Cancer Second Consultation event: Key principles and recommendations for a Pan- London psychological care pathway

Wednesday 11th October 2017

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9.30am Registration and coffee 10.15am Welcome and Introduction Liz Price, Associate Director LWBC, Transforming Cancer Services Team Dr Philippa Hyman, Macmillan Mental Health Clinical Lead, Transforming Cancer Services Team 10.20am The emotional and psychological impact of cancer: A service user’s perspective Dr Philippa Hyman, Macmillan Mental health clinical lead and Clinical Psychologist in conversation with Lauren Mahon, Service user. Living With and Beyond cancer context Liz Price, Associate Director LWBC (TCST) Psychological care pathway context and update Dr Philippa Hyman, Macmillan Mental Health Clinical Lead, Transforming Cancer Services Team 11.20am Psychological care pathway-the service user’s perspective and the referrer’s perspectives Dr Philippa Hyman, Macmillan Mental Health Clinical Lead, TCST 11.45am Facilitated table discussion 1) Does the pathway make sense? 2) How do we improve primary (community) and secondary (acute) care collaboration? 12.30pm- 13.30pm Lunch break 13.30pm Feedback on the pathway 14.00pm STP groups table discussion-What do you have in your area? What’s missing? How could this pathway work in your area? What might the obstacles be? 15.00pm Tea break 15.20pm Feedback from STP areas-how can you take ideas forward in your STP area? What support do you need? 15.50pm Next steps and closing remarks-Liz Price and Philippa Hyman, TCST 16.00pm End

Agenda

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01

Transforming London’s health and care together

Emotional and psychological impact of cancer: a service user’s perspective

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Dr Philippa Hyman, Macmillan Mental Health Clinical Lead and Clinical Psychologist Lauren Mahon, Service User

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02

Transforming London’s health and care together

Living with and beyond cancer context and update

Liz Price, Associate Director, Transforming Cancer Services Team

Psychological Care Pathway Context and update

Dr Philippa Hyman, Macmillan Mental Health Clinical Lead and Clinical Psychologist

4

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What living with and beyond cancer means to us

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National drivers

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London’s strategic planning groups for cancer

Camden Hillingdon Harrow Brent Ealing Hounslow Central London Barnet Enfield Haringey Islington Richmond Merton Croydon Wandsworth Kingston Bromley Bexley Greenwich South- wark Lambeth Newham Tower Hamlets City & Hackney Havering Redbridge Waltham Forest Sutton Barking & Dagenham Hammersmith & Fulham West London Commissioning Lewisham Camden 7 *TCST also serves West Essex CCG which borders Enfield, Waltham Forest, Redbridge and Havering

  • CCGs. West Essex is part of the

Hertfordshire & West Essex STP

North East STP (WELC) North Central STP North West STP South West STP South East STP North East STP (BHR)

Cancer Vanguard and Alliance geography

  • Royal Marsden Partners:

North West & South West

  • London Cancer/UCLH

Cancer Collaborative: North Central, North East London, West Essex

  • SE London ACN: South

East London

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National quality of life metric (in development)

As part of the Cancer Dashboard, the new quality of life metric will provide, for the first time, an indication of how well people are living after cancer treatment and not just how long they are alive. 5 pilot sites in England, including UCLH CC (UCLH and Barts Health). Pilot and evaluation period runs from Sep 2017 – early 2019. “One of our key ambitions is to put cancer patient experience front and centre. Everyone is unique, with different views and priorities, so it’s vital that they receive personalised support, this new measure will help ensure local NHS can see where things are going well and where improvements can be made.” - NHSE

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National Cancer Patient Experience Survey London STPs Overview Barbara Gallagher

September 2017

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10 20 30 40 50 60 70 80 90 100 NWL SWL SEL NCL NEL NAT 2015 2016

Q15 before you started you treatments were you also told about any side effects of the treatment that could affect you in the future

It is important that patients have all the information they need to make an informed choice about their treatment and care. The side effects of treatment for certain cancers can be life changing, affecting long term recovery, family relationships, work prospects and future health and wellbeing. The implications for psychological wellbeing are recognised. Patients need to make choices about treatment confident that they know what the likely outcomes will be.

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10 20 30 40 50 60 70 80 90 100 NWL SWL SEL NCL NEL NAT 2015 2016

Q22 Did hospital staff give you information about how to get financial help or benefits?

It is important that patients are given this information as soon as a diagnosis is made to enable them to plan for the short and long term. A diagnosis of cancer can have a serious effect on a patients financial wellbeing. Prolonged periods of ill health can result in loss of wages or unemployment. The employment status now of many people is to be on short term, zero hours or hourly rates contracts meaning that any time taken for appointments, treatment or ill health due to the effects of the cancer or the side effects of treatment can seriously affect a person’s finances. This will create a great deal of anxiety for patients and their families and may lead to a patient missing appointments, cancelling treatment sessions or withdrawing from treatment altogether

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10 20 30 40 50 60 70 80 90 100 NWL SWL SEL NCL NEL NAT 2015 2016

Q49 Hospital staff gave the family or someone close all the information needed to help care at home?

Without this information relatives lack confidence in caring for the patient. This may cause increased worry and anxiety for both the patient and their family resulting in increased access to GP and hospital services.

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10 20 30 40 50 60 70 80 90 100 NWL SWL SEL NCL NEL NAT 2015 2016

Q50 Patient definitely given enough support from health or social services during treatment

Care from community services during treatment will contribute to a patient’s ability to remain at home during their treatment and may contribute to a reduction in the short term side effects of their treatment.

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10 20 30 40 50 60 70 80 90 100 NWL SWL SEL NCL NEL NAT 2015 2016

Q53 Practice staff definitely did everything they could to support the patient

If the patient feels unsupported by the practice staff they may be less inclined to see their GP or practice nurse when a problem occurs. This may have a detrimental effect on their recovery.

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Detailed Detailed can cancer pr cer prevalenc valence estima e estimates tes 199 1995-201 2015 in L 5 in Lond

  • ndon
  • n

Transforming Cancer Services Team Produced by Molly Loughran— molly.loughran@phe.gov.uk in partnership with Public Health England and Macmillan Cancer Support 21 Sept 2017

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Background

  • Request by TCST Living With and Beyond Cancer team
  • Need data to inform the actions of the LWBC work stream.

E.g. modelling service needs, rehab, psychological care

  • NCRAS request to extend work to all of England

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Aim: To provide a view of prevalent cancer in London (and across England) of all people with cancer and those with subsequent cancers

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Project(s) Status Status

  • Three workbooks to be published by end of Sept and mid-Oct
  • Posters:
  • PHE Conference Sept 12-13—subsequent tumours London
  • IACR Oct 17-19—prevalence England

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Methods

Outputs

  • Prevalence for England
  • London cut of prevalence
  • Prevalence of subsequent cancers for England

Prevalence estimates cut by three factors per measure:

  • Geography—region, cancer alliance, STP, CCG)
  • Sex
  • Measure—years since diagnosis, deprivation, age at

diagnosis and at 2015, ethnicity (10 yr. prevalence), stage (4 yr. prevalence)

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Methods

  • Data source: Cancer Registry
  • ICD-10 C00-C96 excluding C44 cancers diagnosed 1995-

2015 (21 year prevalence) were included.

  • Patients needed to be alive on 31/12/2015.
  • Patients counted once for all cancers. For tumour-specific

counts, they are counted once per cancer type.

  • Demographic data was used from the first cancer

diagnosis in time period.

  • Ethnicity uses 10 years of data, stage uses 4 years.

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Prevalence—top line results

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  • London
  • Persons 209,538 (2415.78 per 100,000)
  • Males: 94,316 (2188.55 per 100,000)
  • Females: 115,222 (2640.16 per 100,000)
  • For comparison to England:
  • Persons: 1,791,366 (3,269.73 per 100,000)
  • Males: 805,944 (2,981.74 per 100,000)
  • Females: 985,422 (3,550.17 per 100,000)
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Prevalence—deprivation by region

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1,000 2,000 3,000 4,000 5,000 East Midlands East of England London North East North West South East South West West Midlands Yorkshire and The Humber Crude rate per 100,000

Region in England

1 - least deprived 2 3 4 5 - most deprived

Deprivation quintile:

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Prevalence—time since diagnosis by cancer alliance

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1,000 2,000 3,000 4,000 5,000 Cheshire and Merseyside East Midlands East of England Humber, Coast and Vale Kent and Medway Lancashire and South Cumbria National Cancer Vanguard: Greater Manchester National Cancer Vanguard: North Central and North East London National Cancer Vanguard: North West and South West London North East and Cumbria Peninsula Somerset, Wiltshire, Avon and Gloucestershire South East London South Yorkshire, Bassetlaw, North Derbyshire and Hardwick Surrey and Sussex Thames Valley Wessex West Midlands West Yorkshire

Crude rate per 100,000

0 yr 1 yr 2-4 yrs 5-9 yrs 10-14 yrs 15-21 yrs

Time since diagnosis:

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Workbook example by CCG

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Prevalence—by age at 2015

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Cases 0-14 15-24 25-44 45-64 65-69 70-74 75-79 80-84 85+ Total All Ages

London

3,170 3,641 33,646 89,995 27,700 21,767 16,140 8,799 4,680 209,538

National Cancer Vanguard: North Central and North East London

1,247 1,346 12,206 31,442 9,553 7,612 5,723 3,107 1,561 73,797

National Cancer Vanguard: North West and South West London

1,289 1,628 14,225 39,264 12,146 9,533 6,990 3,785 2,122 90,982

South East London

634 667 7,215 19,289 6,001 4,622 3,427 1,907 997 44,759

North Central London

544 594 5,804 14,994 4,619 3,739 2,593 1,459 684 35,030

North East London

703 752 6,402 16,448 4,934 3,873 3,130 1,648 877 38,767

North West London

707 903 7,557 21,121 6,628 5,238 3,846 2,074 1,124 49,198

South East London

634 667 7,215 19,289 6,001 4,622 3,427 1,907 997 44,759

South West London

582 725 6,668 18,143 5,518 4,295 3,144 1,711 998 41,784

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Prevalence—age at 2015 by CCG and STP

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2000 4000 6000 8000 10000 12000 NHS Barnet NHS Camden NHS Enfield NHS Haringey NHS Islington NHS Barking & Dagenham NHS City and Hackney NHS Havering NHS Newham NHS Redbridge NHS Tower Hamlets NHS Waltham Forest NHS Brent NHS Central London (Westminster) NHS Ealing NHS Hammersmith and Fulham NHS Harrow NHS Hillingdon NHS Hounslow NHS West London NHS Bexley NHS Bromley NHS Greenwich NHS Lambeth NHS Lewisham NHS Southwark NHS Croydon NHS Kingston NHS Merton NHS Richmond NHS Sutton NHS Wandsworth NHS West Essex North Central London STP North East London STP North West London STP South East London STP South West London STP WE

Prevalent Patients CCG-STP 20-39 40-59 60-74 75+ Age group:

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Prevalence—Ethnicity by CCG and STP

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1000 2000 3000 4000 5000 6000 7000 8000 9000 NHS Barnet NHS Camden NHS Enfield NHS Haringey NHS Islington NHS Barking & Dagenham NHS City and Hackney NHS Havering NHS Newham NHS Redbridge NHS Tower Hamlets NHS Waltham Forest NHS Brent NHS Central London (Westminster) NHS Ealing NHS Hammersmith and Fulham NHS Harrow NHS Hillingdon NHS Hounslow NHS West London NHS Bexley NHS Bromley NHS Greenwich NHS Lambeth NHS Lewisham NHS Southwark NHS Croydon NHS Kingston NHS Merton NHS Richmond NHS Sutton NHS Wandsworth NHS West Essex North Central London STP North East London STP North West London STP South East London STP South West London STP WE

Prevalent Patients CCG-STP

White Chinese Black Asian Mixed Unknown Other Ethnicity:

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  • Background context
  • Service user perspectives
  • E-HNA data
  • Integrating physical and mental health
  • London prevalence data and Service

Modelling.

Psychological Care Pathway context and update Presentation Outline

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Background Context (1) Commissioning guidance for cancer care in London

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  • Recognition that

commissioning and provision

  • f psychological support

remains uncoordinated.

  • The pathway is unclear, from

diagnosis of cancer through to living with cancer as a long term condition and end of life.

  • Service level quality and

productivity standards have not been agreed for London.

  • Macmillan has funded the TCST to

develop a pan London: end to end psychological care pathway and service specification.

  • Dr Philippa Hyman, a clinical

psychologist, is leading this project from January – December 2017, three days per week.

  • Philippa is working very closely with
  • ur partners and service users

through a working group.

  • A first engagement event was held
  • n May 4th to obtain feedback on a

preliminary pathway and principles for the specification.

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Background Context (2)

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  • Those who have the poorest experience of

cancer care in the National Cancer Patient Experience Survey are younger people and those from ethnic minorities.

  • Londoners continue to report worse

experiences compared to people in other areas of the country.

Patient experiences

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  • “I found support out there myself. No-one told me. If I’d

been directed to stuff earlier I would have accessed it earlier which would have really helped”

  • “Somebody should be telling you what services are out

there”

  • “There should be a place where all the support is listed”
  • “All the information seems to be focused on older people

with cancer, or women with children or you have the Teenage Cancer Trust. It all felt like a different life stage to me. It didn’t fit for me. I found things out because I’m

  • utgoing and on social media. Information needs to fit

for young people.”

Service user experience: Information and Signposting

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  • “After treatment it was quite difficult to find a reason to

leave my front door. The anxiety and depression hit me then”

  • “Contact with the nurse gets less and less at the end of

treatment when that’s the time you feel you need more and more reassurance”

  • “I’m unsure where things sit after treatment-when do I

go to the GP, when to the hospital, when should I worry. It’s quite scary”

  • “It’s overwhelming, I’m under lots of different people,

but there’s no point of contact for me”

  • “I feel like my GP should be involved but isn’t”

Service user experiences: Post-treatment support

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  • “I do think psychological support is really important. I

feel I’m a positive and resilient person and I still feel I need help, so how do people less resilient cope?”

  • “There’s a disconnect between services-in the hospital

between physical/medical side and the psychological side.”

  • “In primary care I was seen within an IAPT service,

there was sympathy about cancer but a lack of understanding”

  • “During treatment I was told I could see a psychologist,

which was so helpful, but after treatment it doesn’t feel like it’s offered”

Service user experiences: Psychological support

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  • “There needs to be more support for people with the

financial implications of cancer. There’s no safety net

  • financially. You shouldn’t be fighting to keep your

home, when you’re facing cancer”

  • “The chat about fertility needs to be more prominent”
  • “Oncologists are fantastic on focusing on cancer but

they might not know the finer details of fertility.”

  • “I know women who haven’t had those chats and now

after having treatment are being told about fertility”

Service User experiences: Wider impact of cancer

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E Holistic Needs Assessment results

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E Holistic Needs Assessment results

Collated by Pan- Cancer Vanguard Informatics team Contact - rmpartners.informatics@nhs.net Data provided by Macmillan Cancer Support – sourced from E-HNA tool

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Integration of physical health and mental health is essential

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  • A Nuffield Trust evaluation (2014) showed that

15 months after diagnosis, people with cancer had:

  • 60 % more A&E attendances
  • 97% more emergency admissions
  • 50% more primary care contacts compared to

a population of the same age/gender

The economic argument…

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  • The healthcare costs of long term conditions

are 50% higher in people affected by depression and/or anxiety.

  • Psychological therapy reduces physical

healthcare costs by 20 % (meta-analysis of 91 studies)

The economic argument…

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London prevalence data and modelling example

  • Prevalence figures can be used to estimate number
  • f patients requiring a service.
  • Scenario:

54% of patients have a psychological issue within 10 years of their diagnosis. We would like to know how many people that equates to in each CCG.

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Modelling example

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CCG 0-9 years since dx Multiplier Number of people

NHS Barking & Dagenham

2916

× 54% =

1575

NHS Barnet

7192

× 54% =

3884

NHS Bexley

5497

× 54% =

2968

NHS Brent

5210

× 54% =

2813

NHS Bromley

7663

× 54% =

4138

NHS Camden

3880

× 54% =

2095

NHS Central London (Westminster)

2781

× 54% =

1502

NHS City and Hackney

3860

× 54% =

2084

NHS Croydon

7643

× 54% =

4127

NHS Ealing

5836

× 54% =

3151

NHS Enfield

6073

× 54% =

3279

NHS Greenwich

4333

× 54% =

2340

NHS Hammersmith and Fulham

3143

× 54% =

1697

NHS Haringey

4292

× 54% =

2318

NHS Harrow

4619

× 54% =

2494

NHS Havering

5827

× 54% =

3147

NHS Hillingdon

5101

× 54% =

2755

NHS Hounslow

4406

× 54% =

2379

NHS Islington

3478

× 54% =

1878

NHS Kingston

3348

× 54% =

1808

NHS Lambeth

5135

× 54% =

2773

NHS Lewisham

4821

× 54% =

2603

NHS Merton

4024

× 54% =

2173

NHS Newham

3594

× 54% =

1941

NHS Redbridge

4912

× 54% =

2652

NHS Richmond

4437

× 54% =

2396

NHS Southwark

4600

× 54% =

2484

NHS Sutton

4304

× 54% =

2324

NHS Tower Hamlets

2742

× 54% =

1481

NHS Waltham Forest

4326

× 54% =

2336

NHS Wandsworth

5330

× 54% =

2878

NHS West Essex

7602

× 54% =

4105

NHS West London

3726

× 54% =

2012

Limitation: this will not take into account those who have had a psychological event and have since died.

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London prevalence data and modelling example

  • Prevalence figures can be used to estimate number
  • f patients requiring a service.
  • Scenario:

“In the year following diagnosis, around one in ten patients will experience symptoms such as anxiety and depression severe enough to warrant intervention by specialist psychological/psychiatric services” (NICE, 2004)

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Delivery Units Locality CCG Code CCG Name 1 Yr Prevalence (Cases - 2015 Diagnosis) 10% Requiring Intervention UCLH Cancer Collaborative BHR 07L NHS BARKING AND DAGENHAM CCG 486 49 08F NHS HAVERING CCG 982 98 08N NHS REDBRIDGE CCG 873 87 WELC 07T NHS CITY AND HACKNEY CCG 655 66 08M NHS NEWHAM CCG 667 67 08V NHS TOWER HAMLETS CCG 472 47 08W NHS WALTHAM FOREST CCG 709 71 NCL 07M NHS BARNET CCG 1051 105 07R NHS CAMDEN CCG 599 60 07X NHS ENFIELD CCG 980 98 08D NHS HARINGEY CCG 669 67 08H NHS ISLINGTON CCG 550 55 West Essex 07H NHS WEST ESSEX CCG 1175 118 RM Partners NWL 07P NHS BRENT CCG 894 89 09A NHS CENTRAL LONDON (WESTMINSTER) CCG 416 42 07W NHS EALING CCG 878 88 08C NHS HAMMERSMITH AND FULHAM CCG 479 48 08E NHS HARROW CCG 734 73 08G NHS HILLINGDON CCG 825 83 07Y NHS HOUNSLOW CCG 652 65 08Y NHS WEST LONDON CCG 578 58 SWL 07V NHS CROYDON CCG 1251 125 08J NHS KINGSTON CCG 495 50 08R NHS MERTON CCG 602 60 08P NHS RICHMOND CCG 693 69 08T NHS SUTTON CCG 717 72 08X NHS WANDSWORTH CCG 835 84 South East London SEL 07N NHS BEXLEY CCG 922 92 07Q NHS BROMLEY CCG 1267 127 08A NHS GREENWICH CCG 757 76 08K NHS LAMBETH CCG 724 72 08L NHS LEWISHAM CCG 715 72 08Q NHS SOUTHWARK CCG 736 74 STP Localities North London 3849 385 East London 4844 484 North West London 5456 546 South East London 5121 512 South West London 4593 459 Vanguard/Alliance Geographies UCLH Cancer Collaberative 9868 987 RM Partners 10049 1005 South East London 5121 512 TCST Region (includes West Essex) 25038 2504 London Region 23863 2386

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Modelling example

  • 2504 people in London (including West Essex)
  • Vanguard/Alliance Geography:
  • UCLH Cancer Collaborative

987

  • RM Partners

1005

  • South East London

512

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03

Transforming London’s health and care together

Psychological care pathway: a patient’s perspective and referrer’s perspective

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Dr Philippa Hyman, Macmillan Mental Health Clinical Lead at TCST

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  • Patient must be at centre of pathway
  • Activity needs to be described at different levels
  • Concern at inequity of services Pan-London e.g

Psycho-oncology services, IAPT waiting times

  • Appropriate training needed at levels 1 and 2
  • Does the pathway take into account needs of

BME groups, age, severity/complexity of mental health difficulties/harder to reach groups?

  • Primary care/Community-what is missing?

Key themes from May 4th event (1)

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  • Need for directory of resources/information to be refreshed

and updated to include social media support groups.

  • Primary care-what’s missing? E.g Level 2 support for people

with LTCs including cancer

  • Communication-how to improve both verbal and written

communication including CCRs, HNAs and treatment

  • summaries. Poor communication impacts on mental health
  • Role of keyworker/care coordinator role-clarity for patient and

professionals regarding who coordinates care. Very important for those with rarer cancers or those treated in a number of different hospitals. Key themes (2)

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  • Importance of patient choice-how can we enable

people to make choices?

  • Pathway must not be linear
  • There needs to be flexibility and fluidity-recognition of

changing needs and complexity (age, tumour type, point on the pathway)

  • Consideration of whole family system
  • Team working and collaboration must improve across

whole pathway-especially between primary and secondary care

  • Clinical supervision, support and training for

CNS/Practice nurses/GPs (junior and senior staff)

Key principles

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  • IAPT (Improving Access to Psychological Therapies)-significant

progress that cancer is now coded as a LTC for integrated IAPT. Further work needed in training and consultation for working with cancer, inclusion/exclusion criteria and ensuring outcome measures are appropriate.

  • 38 % of STPs nationally have no IAPT-LTC service at all
  • Inequity of Psycho-oncology services Pan-London-mapping being

currently refreshed

  • Opportunity to use Quality of Life metric (in development which

will be part of Cancer dashboard) to keep this work high up on the

  • agenda. How best to ensure this happens with focus on early

diagnosis and 62 day standard?

  • Pan-London approach will be essential to move this work forward

and to ensure effective implementation of recommendations.

Context Update

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SLIDE 50

London

Coastal West Sussex CCG Crawley and Horsham CCG Mid Sussex CCG Windsor, Ascot & Maidenhead CCG Slough CCG Bracknell and Ascot CCG Aylesbury Vale CCG Chiltern CCG Herts Valleys CCG West Essex CCG Cambridgeshire & Peterborough CCG Greater Huddersfield CCG North Kirklees CCG Harrogate & Rural District CCG NEW Devon CCG North East Hampshire & Farnham CCG Wokingham CCG Newbury and District CCG North and West Reading CCG South Reading CCG North Staffordshire CCG Stoke on Trent CCG Blackburn with Darwen CCG East Lancashire CCG Warrington CCG Oxfordshire CCG Swindon CCG Portsmouth CCG Richmond CCG Hillingdon CCG Sunderland CCG Nottingham West CCG Calderdale CCG North Tyneside CCG

Key

IAPT Wave 1 CCGs

Wave 1 Wave 2

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London

Brent CCG Harrow CCG Central London CCG West London CCG

  • Hammer. & Fulham CCG

Ealing CCG Hounslow CCG South Cheshire CCG Vale Royal CCG Ashford CCG Canterbury & Coastal CCG South Kent Coast CCG Thanet CCG Sheffield CCG Hardwick CCG North Derbyshire CCG Southern Derbyshire CCG Erewash CCG Haringey CCG Islington CCG Thurrock CCG South East Staffordshire & Seisdon CCG Cannock Chase CCG Stafford & Surrounds CCG East Staffs CCG North East Lincolnshire CCG Solihull CCG Dorset CCG Wyre and Fylde CCG Chorley & South Ribble CCG West Lancashire CCG Lancashire North CCG Bath and North East Somerset CCG Wiltshire CCG Coventry & Rugby CCG South Warwickshire CCG Warwickshire North CCG Nottingham City CCG Telford & Wrekin CCG

IAPT Wave 2 CCGs

Key Wave 1 Wave 2

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Excellent Cancer Psycho-social care: Service user’s perspective

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I rely on my own strength I look for support from friends & family I join peer groups & online communities I get information I need, in a way I can understand All staff listen and communicate compassionately I feel reassured by prompt and reliable systems I trust the staff dealing with my care to communicate and share information I need expert help to cope with my treatment and its consequences I’m feeling stuck and cannot move on I feel overwhelmed, hopeless and unsafe

I have a cancer keyworker who knows my situation, will ask about my feelings, give advice & reassurance and coordinate my care

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Prompt, reliable administration Patient Information Service Support groups & courses e.g. HOPE 3rd sector support centres Level 1 communication training for staff HWBEs

Psycho-oncology Hospital Liaison Psychiatry Community Mental Health

Holistic Needs Assessment Level 2 training Level 2 supervision Treatment Summ.

L e v e l 1 L e v e l 2 L e v e l 3 / 4

reliable administration Single point of contact (e.g Macmillan Navigators) Level 1 communication skills training embedded 3rd sector support (e.g. Maggie’s ) support groups & courses (e.g. HOPE) accessible patient information & advice H&WB Events Psycho-oncology

(incl. neuropsych, psychosexual)

Hospital Liaison Psychiatry Holistic Needs Assessment CNS/AHPs with Level 2 skills consultation/ joint work Treatment Summary EOT Review

Cancer psychosocial care – Hospital

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demonstrate kindness and reliability actively listen to preferences, concerns & priorities, and work with these reassure and challenge sensitively help other professionals ‘be on the same page’ allow processing time where possible respect differences in information preferences reflect on and manage own feelings detailed psychological, cognitive and interpersonal understanding psychotherapeutic/ pharmacological advice & management ‘holistic’ – know the person’s circumstances, history and culture explore particular or unusual needs and concerns explore ambivalence, adherence and avoidance reasonable adjustment

  • f procedures

supporting access to tests & treatments

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Prompt, reliable administration Patient Information Service Support groups & courses e.g. HOPE 3rd sector support centres Level 1 communication training for staff HWBEs

Psycho-oncology Hospital Liaison Psychiatry Community Mental Health

Holistic Needs Assessment Level 2 training Level 2 supervision Treatment Summ. reliable administration effective information sharing Local information services e.g. CAB 3rd Sector cancer support centres Social prescribing 3rd Sector IAPT Step 3-4 Community Mental Health Community Palliative Care GP Cancer Care Review Cancer Keyworker IAPT Step 1-2 3rd Sector

Cancer psychosocial care – Community

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SLIDE 57

Excellent Psychosocial Care

from the

Excellent Cancer Psycho-social care: Referrer and system perspective

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SLIDE 58

I need someone who will help me understand what’s going on, and guide me through every step I need somewhere that’s welcoming, not clinical, where I can get advice and information I need somewhere where I can meet and talk to other people like me With cancer treatment behind me, I need to learn strategies to cope with my worry I am at home, and feel mentally unwell and unsafe As my cancer is advancing, I need specialists to deal with pain and symptoms without going into hospital I need to talk to my family about dying

P s y c h o s o c i a l C a r e N e e d s

I am so overwhelmed I cannot carry on with the treatment I need I need to deal with the changes to my body and the impact on my family I need to feel I can trust and rely on my GP and primary care team Community Psychological Therapies (IAPT) Community Mental Health Services (CMH) Psycho-oncology Third-sector & other cancer support centres Community Palliative Care Team (CPCT) Cancer keyworker (CNS) GP & Practice Nurse Hospital Liaison Psychiatry I am in hospital, and feel mentally unwell and unsafe

R e s o u r c e s

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SLIDE 59

P r e v e n t i n g d i s t r e s s & p r o m o t i n g a d j u s t m e n t

GP / Practice Nurse Community Psychological Therapy Services (IAPT) Community Mental Health Services (CMH)

All Staff

NICE Level 1

Psycho-oncology

CNS / Hospital cancer keyworker

  • preventing distress & promoting adjustment
  • developing psychologically-minded pathways, teams and organisational culture
  • joint working, consultation, supervision & training

Cancer Psychosocial Care in the Hospital Cancer Psychosocial Care in the Community

Community Palliative Care Team (CPCT) Primary care cancer keyworker co-ordination Hospital Liaison Psychiatry NICE Level 2 NICE Level 3/4

Third- sector cancer info & support

HNA CCR co-ordination

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SLIDE 60

P r e v e n t i n g d i s t r e s s & p r o m o t i n g a d j u s t m e n t

GP / Practice Nurse Community Psychological Therapy Services (IAPT) NICE Level 1

CNS / Hospital cancer keyworker

  • preventing distress & promoting adjustment
  • developing psychologically-minded pathways, teams and organisational culture
  • joint working, consultation, supervision & training

Cancer Psychosocial Care in the Hospital Cancer Psychosocial Care in the Community

Community Palliative Care Team (CPCT) Primary care cancer keyworker co-ordination NICE Level 2 NICE Level 3/4

Third- sector cancer info & support

HNA CCR co-ordination Community Mental Health Services (CMH)

All Staff

Psycho-oncology

Hospital Liaison Psychiatry

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SLIDE 61

P r e v e n t i n g d i s t r e s s & p r o m o t i n g a d j u s t m e n t

Community Psychological Therapy Services (IAPT) Community Mental Health Services (CMH)

All Staff

NICE Level 1

CNS / Hospital cancer keyworker

  • preventing distress & promoting adjustment
  • developing psychologically-minded pathways, teams and organisational culture
  • joint working, consultation, supervision & training

Cancer Psychosocial Care in the Hospital Cancer Psychosocial Care in the Community

Community Palliative Care Team (CPCT) Primary care cancer keyworker co-ordination Hospital Liaison Psychiatry NICE Level 2 NICE Level 3/4

Third- sector cancer info & support

HNA CCR co-ordination GP / Practice Nurse

Psycho-oncology

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SLIDE 62

P r e v e n t i n g d i s t r e s s & p r o m o t i n g a d j u s t m e n t

GP / Practice Nurse Community Psychological Therapy Services (IAPT) Community Mental Health Services (CMH) NICE Level 1

CNS / Hospital cancer keyworker

  • preventing distress & promoting adjustment
  • developing psychologically-minded pathways, teams and organisational culture
  • joint working, consultation, supervision & training

Cancer Psychosocial Care in the Hospital Cancer Psychosocial Care in the Community

Primary care cancer keyworker co-ordination Hospital Liaison Psychiatry NICE Level 2 NICE Level 3/4

Third- sector cancer info & support

HNA CCR co-ordination

All Staff

Psycho-oncology

Community Palliative Care Team (CPCT)

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SLIDE 63
  • Patients, families and carers are communicated with compassionately by

all staff. Good communication between all staff

  • Patients, families and carers have access to information on local services

(health and social care) which is kept up to date and includes online support

  • Prompt, efficient and reliable systems in place across whole pathway
  • Recognition and support for how socio-economic factors impact on mental

health

  • Identification of who may need extra support early on to prevent distress

and promote adjustment (e.g past losses, mental health history, social isolation)

  • Psychologically minded culture within cancer services with more emphasis
  • n integration between physical health and psychological well-being.
  • Recovery package used effectively-focus on quality and patient experience
  • HNA and Care planning
  • Treatment summaries (completely and shared swiftly to reduce anxiety)
  • Cancer Care Reviews (opportunity to identify psychological impact of

cancer and its treatment)

  • Health and well-being events

P r e v e n t i n g d i s t r e s s & p r o m o t i n g a d j u s t m e n t

P s y c h o s o c i a l C a r e A c t i v i t y

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SLIDE 64

Level 1 Role-Psychosocial care activity includes:

  • Recognition of psychological need
  • Look for indications of distress, low mood, worry
  • Be proactive, raise it-”how are you feeling in yourself?”/what

impact is…having on your life?

  • Actively listen
  • Asking and listening can be an intervention in itself
  • How is the patient coping? Are they accessing support? Are their

difficulties interfering with their life and accessing treatment?

  • Signpost to support that patient finds relevant-discuss with them
  • Communicate with compassion
  • Ensure all professionals are communicating effectively with each
  • ther across the pathway.
  • Discuss with a CNS/Level 2 worker
  • Contact psycho-oncology service for advice/consultation

All Staff

P s y c h o s o c i a l C a r e A c t i v i t y

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SLIDE 65

Level 2 Role – requires specific training and regular supervision Psychosocial care activity includes:

  • meet the person at diagnosis – a reliable relationship
  • explore and address the person’s information preferences
  • include and involve family and carers
  • track person’s adjustment throughout pathway
  • guide and coordinate care, including support
  • contribute psychosocial perspective to MDT decisions
  • signpost to internal and third-sector resources, e.g. welfare

advice

  • undertake holistic needs assessment (HNA) at key transitions
  • offer first-line psychological support (Level 2)
  • consult with, work jointly with and refer to Level 3/4 services
  • link and coordinate care with external services (e.g. learning

disability)

C a n c e r Ke y w o r ke r C N S / A H P

P s y c h o s o c i a l C a r e A c t i v i t y

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SLIDE 66
  • Cancer specialists
  • Embedded within cancer pathways
  • Work with inpatients and outpatients
  • Vital role in supporting patients to access cancer investigations ,

treatments and care thus improving patient outcomes

  • Provide support for patients, families and carers
  • Work with full range and severity of difficulties associated with cancer

including :

  • anxiety, depression, deliberate self-harm, alcohol and drug-related issues,

mild cognitive impairment, helping people with adjustment issues, decision-making, body image difficulties, problems with personal relationships and relationships with professionals

  • Provide consultation and expert advice on cancer and psychological issues

to MDT teams and other professionals across the pathway

  • Provide training, consultation and supervision for Level 2 workers (e.g

CNS)

  • Provide specialist functions such as Neuropsychological assessment,

psycho-sexual interventions

Level 3 / 4 Psych o -

  • n colog y

P s y c h o s o c i a l C a r e A c t i v i t y

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SLIDE 67

Cancer specialist nurse, embedded within a cancer MDT, guides and coordinates care incl. support, undertakes holistic needs assessment (HNA), offers first-line psychological support (Level 2) Independent organisations, physical or online, with a focus on cancer: typically, provide information, peer support groups and activities, and (often) psychological care in groups or individually Community-based, primary services, offering self-help resources and structured psychological therapies (group and individual) for mild-moderate mental health problems e.g. anxiety, depression. Community-based, secondary psychiatric services for acute and severe mental illness (e.g. active bipolar disorder or psychosis) and related active risk. Community-based, specialist multidisciplinary teams for the holistic palliative management of advanced and end-stage disease, including supportive and psychological care; often linked to hospices.

P s y c h o s o c i a l R e s o u r c e s

Cancer specialist, embedded within cancer pathways – inpatients and outpatients, patients and carers : coping with treatment, adjustment, decisions, body changes, relationships w professionals GP team coordinates care for the patient with consideration of health, both physical and mental health and social care needs. Community Psychological Therapies (IAPT) Community Mental Health Services (CMH) Psycho-oncology Third-sector & other cancer support centres Community Palliative Care Team (CPCT) Cancer keyworker (CNS) GP & Practice Nurse Hospital Liaison Psych Specialist psychiatric service based within acute hospitals, including A&E and wards, for acute and severe mental illness and related active risk

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SLIDE 68

On your tables:

  • Please capture on flipchart paper:
  • What are your thoughts about the service user

dial?

  • What improvements could be made to the

pathway?

  • What would good primary (community) and

secondary (acute) care collaboration look like? What needs to happen to get us there?

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SLIDE 69
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SLIDE 70
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SLIDE 71

On your tables:

  • Please capture on flipchart paper:
  • What services do you have in your area?
  • What’s missing?
  • How could this pathway work in your

area?

  • What might the obstacles be?

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SLIDE 72

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SLIDE 74

If you have any further questions or queries, please contact: Dr Philippa Hyman Clinical Psychologist and Macmillan Mental Health Clinical Lead Philippa.hyman@nhs.net England.TCSTLondon@nhs.net This is a consultation event. Your feedback is vital to this process

And finally…..