Building a Patient-Centered Research Collaborative for Psychosocial - - PowerPoint PPT Presentation

Building a Patient-Centered Research Collaborative for Psychosocial Oncology

WE L COME PCRC Me mb e rs

Who’s on the Call

• 15 AOSW me mb e rs
• 15 Pa tie nt Advo c a te s
• Bra d Ze b ra c k
• L

isa K e lle y

• K

una l Numb a lla

• PCRC E

xe c utive Pla nning Co mmitte e me mb e rs

• AOSW Bo a rd me mb e rs

Overview of Call

• Why a re we do ing this?
• What is a Pa tie nt- Ce nte re d Re se a rc h Colla bora tive?
• Ho w will it wo rk?
• Que stio ns?
• Logistics & Homework

Why: Our health care system is broken

• Pe o ple a re suffe ring
• So me a re suffe ring unne c e ssa rily
• Qua lity o f c a re is c o mpro mise d – NE

E D a nd DE MAND e xc e e d the c a pa c ity OF T HE SYST E M to se rve

WHERE’S THE EVIDENCE?

Determinants of Excellence

6

Safety effective Patient- centered timely efficient equitable

Institute of Medicine. Crossing the Quality Chasm, 2001.

Leading Causes of Death in the US

• 1. He a rt Dise a se (614,000 de a ths)
• 2. Ca nc e r (592,000)
• 3. ADVE

RSE ME DICAL E VE NT S (250,000-400,000)

• 4. Chro nic Re spira to ry Dise a se (147,000)
• 5. Ac c ide nts (136,000)

US Centers for Disease Control and Prevention, 2015

Any good news?

YE S!

30+ Years of Oncology Social Work Research

Advanc e d unde rstanding o f the psyc ho so c ial ne e ds o f c anc e r patie nts and familie s

• Distre ss, de pre ssio n
• F

ina nc ia l impa c t

• Sympto m b urde n
• Qua lity o f life

30+ Years of Oncology Social Work Research

De mo nstrate d value o f psyc ho so c ial inte rve ntio ns

• Co g nitive Be ha vio ra l T

he ra py

• De c isio n-ma king , Pro b le m-so lving
• Psyc ho the ra py, Psyc ho -e duc a tio n
• Gro up suppo rt inte rve ntio ns
• Mindfulne ss

Psyc ho so c ial inte rve ntio ns e nhanc e q uality AND q uantity

• f life

To Assure Quality Cancer Care in the 21st Century

Impr

• ve d patie nt & family e xpe r

ie nc e Impr

• ve d Population He alth

He alth c ar e c ost c ontr

• l

SECTORS THAT INFLUENCE ACCESS TO, AND QUALITY , OF CARE Practice Research Policy

Oppor

• rtu

tuni nity ty

What is a Patient-Centered Research Collaborative (PCRC)?

Clinical Practice Policy, Advocacy Quality Cancer Care Patient Outcomes & Experience Population Health Cost Control Research

Patient Advocates Oncology Social Workers Academic Researchers Key Stakeholders

PCRC for Psychosocial Oncology

HOW WILL IT WORK?

A Patie nt-Ce nte re d Re se arc h Co o pe rative Gro up (PCRCG) fo r Psyc ho so c ial Onc o lo g y?

Project Aims

• AI

M 1. E sta b lish a re se a rc h c o o pe ra tive g ro up c o mprise d o f

• nc o lo g y so c ia l wo rke rs, pa tie nt a dvo c a te s, a nd a c a de mic

re se a rc he rs.

• AI

M 2. E nha nc e the c a pa c ity o f the re se a rc h g ro up to c o nduc t hig h-q ua lity Pa tie nt-Ce nte re d Re se a rc h

• AI

M 3. E ng a g e the g ro up in g e ne ra tio n, prio ritiza tio n, a nd c o nduc t o f Pa tie nt-Ce nte re d Re se a rc h.

• AI

M 4. Disse mina te a nd c o mmunic a te re se a rc h finding s to info rm pra c tic e a nd po lic y

AIM 1. Establish a research cooperative group comprised of

• ncology social workers, patient advocates, and academic

researchers.

• Do ne !

Aim 2. Enhance the capacity of the research group to conduct high-quality Patient-Centered Research

• Re se a rc h I

nstitute s (2017 & 2018)

• Cre a tio n o f re se a rc h tra ining a nd skills-b uilding mo dule s
• Mo nthly te le c o nfe re nc e c a lls (July, 2017 - ? )

AIM 3. Engage the group in generation, prioritization, and conduct

• f Patient-Centered Research
• E

sta b lish c o re princ iple s a nd pro c e dure s

• Cre a te c o mmitte e struc ture s a nd wo rk g ro ups

AIM 4. Disseminate and communicate research findings to inform practice and policy, change systems, improve cancer care

• F

e e db a c k study re sults to o ur o wn c a nc e r pro g ra ms

• E

.g ., Ca nc e r Co mmitte e s

• I

nte ra c t with AOSW me mb e rship

• I

de ntify o ur stre ng ths; ha rne ss o ur re so urc e s a nd po we r

Summary

• 1. Increase research comfort and skills for OSWs and patient advocates
• 2. Increase and support meaningful participation of OSWs and patient advocates in

clinical research at their cancer programs

• 3. Increase recognition of OSWs and patient advocates as critical contributors to

evidence-informed policies and practices that improve quality of cancer care

• 4. Form collaborative investigative teams to conduct research of relevance to patients

and families

• 5. Identify and obtain resources to sustain our efforts

QUESTIONS?

What What How Why

Logistics

• Orie nta tio n ma nua l
• Re se a rc h I

nstitute

• Wha t to e xpe c t
• Afte r the Re se a rc h I

nstitute

• T

ra ve l I ssue s:

• Co nta c t L

isa K e lle y, a o sw-pc rc @ umic h.e du

Homework: Have a think…

• Wha t do yo u wa nt o r ne e d to kno w to e nha nc e the

q ua lity o f c a nc e r c a re a nd ACCE SS to tha t c a re ?

• Wha t do yo u think he a lth c a re pro vide rs ne e d to kno w

to e nha nc e a c c e ss to a nd q ua lity o f c a nc e r c a re ?

• Wha t a re to pic s a nd issue s tha t a rise fre q ue ntly in the

c a re o f c a nc e r pa tie nts, a nd fo r whic h g e nuine c linic a l unc e rta inty e xists?