2/27/2012 PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE - - PowerPoint PPT Presentation

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2/27/2012 PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE - - PowerPoint PPT Presentation

2/27/2012 PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE PCORIs Board Represents the Entire Health Care Community About PCORI Patients PCORI is an independent, non-profit organization


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Gail Hunt, member, PCORI Board of Governors

PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE

PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

About PCORI

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  • PCORI is an independent, non-profit organization created

by Congress in 2010.

  • PCORI’s mission is to fund research that will provide

patients, their caregivers and clinicians with the evidence- based information needed to make better-informed health care decisions.

  • PCORI is committed to continuously seeking input from

patients and a broad range of stakeholders to guide its work.

PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

PCORI’s Board Represents the Entire Health Care Community

  • Patients
  • Caregivers
  • Physicians, nurses and clinicians
  • Hospitals and health systems
  • Health plans
  • Health services researchers
  • State and federal health officials
  • Pharmaceutical, device, and

diagnostic manufacturers

  • Private payers
  • Employers

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PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

PCORI’s Core Duties

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  • Establish national research priorities
  • Establish and carry out a research agenda
  • Develop and update methodological standards
  • Disseminate research findings

PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

PCORI’s Path from Priorities to Research Patients can Use

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Future priorities and agendas will be informed by the development process,

  • ngoing stakeholder engagement, and PCORI’s research results.

PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

Establishing National Priorities and a Research Agenda

  • Developed over five months:

– Reviewed previous national priority-setting processes and comparative effectiveness research initiatives. – Evaluated these against criteria laid out for PCORI in law. – Identified the questions that must be addressed so that patients can make better, more personalized decisions about their health. – Informally vetted with patients, caregivers and other stakeholders through small meetings and focus groups.

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PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

Text

Translating National Priorities into a Translating National Priorities into a Research Agenda Research Agenda

Priorities Priorities PCORI Criteria* PCORI Criteria*

Impact on Health of Individuals and Populations Improvability via Research Inclusiveness of Different Populations Addresses Current Gaps in Knowledge/ Variation in Care Impact on Health Care System Performance Potential to Influence Decision Making Patient-Centeredness Rigorous Research Methods Efficient Use of Research Resources

PCORI Research Agenda PCORI Funding Announcement(s) * Criteria Provided in PCORI Statute

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Accelerating PCOR and Methodological Research Addressing Disparities Communications and Dissemination Research Improving Healthcare Systems Assessment of Prevention, Diagnosis, and Treatment Options

PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

Comparisons of alternative clinical options Identifying patient differences in response to therapy Studies of patient preferences for various outcomes Improved support of patient self-management Coordination of care for complex conditions Comparing alternative strategies for workforce deployment Understanding and enhancing shared decision-making Alternative strategies for dissemination of evidence Understanding differences in effectiveness across groups Understanding differences in preferences across groups Reducing disparities through use of findings from PCOR Improving study designs and analytic methods of PCOR Building and improving clinical data networks Methods for training researchers, patients to participate in PCOR Facilitating the study of rare diseases Addressing Addressing Disparities Disparities Improving Improving Healthcare Healthcare Systems Systems Accelerating Accelerating PCOR and PCOR and Methodological Methodological Research Research Communication & Communication & Dissemination Dissemination Research Research

Assessment Assessment of

  • f

Options for Options for Prevention, Diagnosis, Prevention, Diagnosis, and Treatment and Treatment

Content of Draft Research Agenda Content of Draft Research Agenda

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PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

Please Provide Formal Comment

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  • www.pcori.org
  • Now through March 15
  • “National Patient and

Stakeholder Dialogue” event February 27 in Washington, DC

  • Register to participate in

person or by webcast

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PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

Questions about the National Priorities and Research Agenda

  • How well do the priorities cover the research PCORI should do?
  • Are each of the priorities clearly understandable?
  • What percentage of PCORI’s research budget should be invested in

each priority area?

  • If future versions of the research agenda focus on specific conditions

and diseases, how should PCORI choose which ones to target?

  • How could PCORI address conditions that are rare and understudied?

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PATIENT-CENTERED O UTCO MES RESEARCH INSTITUTE

Next Steps

  • Public Comment Period on draft national priorities and research agenda

January 23 January 23-

  • March 15, 2012

March 15, 2012

  • National Patient and Stakeholder Dialogue

February 27, 2012 February 27, 2012

  • Analysis of public comment received

March March-

  • April 2012

April 2012

  • Adoption of first National Priorities for Research and Research Agenda

April 2012 April 2012

  • First Methodology Report posted for public comment

May 2012 May 2012

  • Broad funding announcements issued

May 2012 May 2012

  • Brainstorming workshop to advance agenda specificity

June 2012 June 2012

  • Broad funding applications due

July 2012 July 2012

  • Advisory Groups formed to advance agenda specificity

Summer 2012 Summer 2012

  • Broad funding awards announced

December 2012 December 2012

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