Palliative Care Services for Teenagers & Young Adults Claire - - PowerPoint PPT Presentation

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Apr 10, 2023 404 likes •518 views

Palliative Care Services for Teenagers & Young Adults Claire Pendlebury Lead Nurse TYA Team STH Claire.pendlebury@sth.nhs.uk @clairenurse9 Aims of our session National Picture Local Services Challenges of delivering

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Palliative Care Services for Teenagers & Young Adults

Claire Pendlebury Lead Nurse TYA Team STH Claire.pendlebury@sth.nhs.uk @clairenurse9

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Aims of our session

National Picture
Local Services
Challenges of delivering palliative care for TYA
Skills & opportunities
Relationship with TYA Team and other Healthcare Teams
Looking after yourself

Resources TYA Service Specification (NHS England 2019) Children’s & Young Peoples Palliative Care Service Model (NHS England 2019) Palliative & End of Life Care for children & young people (Anne Grinyer 2012) Palliative Care for Young People Aged 13-24 (Rosemary Thornes 2001)

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What is important to young people?

Relationships, sexuality and identity, friends, peer group approval, aspirations, education, work, risk taking behaviour, creativity, social interaction. Readjustment of relationships and social interactions Unpredictability and inconsistency are normal – no two days, hours or minutes are the same.

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Community (Sheffield) Palliative Care Pathway 16 & 17 year old

Story IE 17 years

Learning Points

Financial considerations Sustainability Response of teams Changes in practice (syringe drivers) If it happened tomorrow…

Teams Challenges

Capacity of teams Prioritisation of services Different practices & processes Expertise & confidence Funding Communication

Palliative diagnosis

TYA CNS Needs

Physical, meds, symptom control , personal care, nutrition. Psychological, emotional, family and friends. TYA specific (behaviour & development) Support of the care delivery team.

Night team POON’s CCN

BBW

Claire Pendlebury TYA Lead Nurse STH May 2019

What worked well

Goodwill & Can do attitude Flexibility Excellent communication Weekly MDT’s Key Worker & Flexible Leader Accessibility of team members Assess, review, adapt model

Med Onc Pharmacy TYA CNS Community pharmacy

Paed Onc.

Future Planning

Patient voice Advance care planning BBW – Family support Value of each team member

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Looking after yourself

Boundary Setting Supervision Perspective Peer Support Family support

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