Merseyside 24/7 end of life care project Presented by Jan - - PowerPoint PPT Presentation

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Merseyside 24/7 end of life care project Presented by Jan - - PowerPoint PPT Presentation

Merseyside 24/7 end of life care project Presented by Jan Sutherland Oakes Director of Care Claire House Lesley Fellows Hospice to Home Manager Helen Dunning Specialist Palliative Care Nurse Outline Palliative care developments


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Merseyside 24/7 end of life care project

Presented by Jan Sutherland Oakes – Director of Care Claire House Lesley Fellows – Hospice to Home Manager Helen Dunning – Specialist Palliative Care Nurse

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Outline

 Palliative care developments – Merseyside

& Cheshire

 Issues and challenges – pre project  Opportunities  Aim of the project  Project Partners  Delivery of project  Benefits  Project evaluation  2014/15  Summary

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Palliative care developments – Merseyside & Cheshire

  • 1st Children's Community Nursing Team Liverpool 1992
  • Alder Hey Macmillan Nurse Specialists 1992
  • Claire House Children's Hospice 1998
  • New Opportunity (Lottery) Funding 2002
  • Specialist palliative care paediatrician & nurse consultant 2003
  • Some investment in children’s community nurses (CCN)
  • Children & Young People’s Palliative Care Network established
  • DH £30 million to develops palliative care services for children
  • Better Care Better Lives 2008
  • Pressure for greater investment in community nursing
  • Evolvement of other CCN services across Merseyside
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Issues and challenges – pre project

Small number of deaths in each area (estimated 11 deaths per CCG)

Unpredictable nature – peaks and troughs in disease trajectory

Skills, confidence and competence – difficulties maintaining skills when exposure limited

Changing roles for CCN’s e.g. GP referral, early discharge/admission avoidance

Capacity to step up to 24/7 – often existing services are weekday/daytime cover

Funding / financial constraints

Sustainability – may need to provide EOLC for weeks/months

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Opportunities

 Opportunity for economies of scale  Merseyside QIPP Project  Opportunity for statutory and

voluntary sector collaboration

 12 month funding secured through

QIPP for Pilot

 Collaborative project plan

developed and agreed

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Aim of the project

 To develop systems to support 24

hour end of life care for children and young people in their preferred place of care - home; through collaborative partnership working between local and specialist services across NHS Merseyside and the voluntary sector (Claire House)

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Partners in project

Child and family

Specialist Palliative care team Claire House H2H service Community children’s nursing teams GP

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How did the project work

  • perationally?

 Funding for project allowed additional

human resources for the Hospice to Home team

 Steering group formed to oversee

governance issues and track progress– included SPC Consultant; commissioners from NHS Merseyside CCG’s; CEO/Director

  • f Care from Claire House; Project

manager (H2H manager); Specialist palliative care nurse; CCN representation

 Stakeholder group formed to discuss cases

and operational issues – Nurses from each CCNT; H2H nurses and SPCT

 Scoping exercise was undertaken to find

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Cont….

  • Referrals flowcharts for escalation to the

24/7 EOLC service

  • Communication strategies – formalised a

shared handover of patients receiving EOLC; key communication messages

  • Shared policy for partnership working
  • Developed key roles:
  • Lead service for end of life care
  • Specialist palliative care advisory role
  • Supporting community nursing role

Togeth er er we achie ieve more for childre ldren and famil ilie ies

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Benefits

Child/family Providers in the project Commissioners

Home is always a realistic option for EOLC Rapid access to specialist palliative care advice Cost effective collaborative commissioning Continue to be supported by local services who know the child/family well Governance reassurance for lone working and medicines management Insurance policy approach Access to specialist symptom assessment and management 24/7 Education and training for CCNT Sustainability of services Access to therapy services from Hospice, counselling, play, music and complementary therapies Rapid access to 24 hour 7 day a week nursing care Sibling support Improved communication between teams due to collaborative working Single point of contact Financial investment to

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Project Evaluation – March 2013-2014

23% 41% 23% 23%

Referrals

Knowsley South Sefton Liverpool St Helen's Halton

100 200 300

Total number of nights of EOLC

Claire House 11% Home 67% Hospital 22%

Place of death

Claire House Home Hospital 2 4 6 8 10 Died Care stepped down Ongoing

Outcomes

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End of Life care 2014/15

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Summary

The pilot evaluation presented to all 6 Merseyside CCG lead nurses & Commissioners

Agreement reached that service provision was a cost effective option to providing a realistic and responsive 24/7 end of life care service

Model facilitated realistic choice for end of life care at home

Service commissioned across the 6 Merseyside CCG’s on a population basis

Service specification and service level agreement

Quarterly reports and annual overview

Model of service provision / commissioning offers

  • pportunity to support potential future funding models for

palliative care

NHS England potential funding options

 Population based  Service based  Outcomes and performance