Great Lakes Collaboration Focus on Autism October 4, 2012 - - PowerPoint PPT Presentation

great lakes collaboration focus on autism october 4 2012
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Great Lakes Collaboration Focus on Autism October 4, 2012 - - PowerPoint PPT Presentation

Great Lakes Collaboration Focus on Autism October 4, 2012 POPULATION BREAKDOWN Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%) Economic differences Chicago public school district: 617


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SLIDE 1

Great Lakes Collaboration Focus on Autism October 4, 2012

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SLIDE 2

POPULATION BREAKDOWN

 Overall state population:

12,869,257

 Chicago Metropolitan Area

population: 9,729,825 (76%)

Economic differences

  • Chicago public school district: 617

schools, ~400,000 students (86% low income).

  • New Trier school district: 2 schools,
  • approx. 4,000 students (4% low

income).

  • Pope county school district: 2

schools, 569 students (54% low income).

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SLIDE 3

Autism prevalence urban vs. rural

1 in 144 8-year olds in Illinois has autism (2009-2010 public school data)

  • Cook county: 6,558 students with autism
  • Pope county: 2 students with autism

Data from ISBE IDEA Count December 2002, 2004, 2010 provided by the Illinois Autism Training and Technical; Assistance Project IATTAP

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SLIDE 4

Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP

1960 2305 2904 3662 4330 5175 6125 7193 8293 9455 10608 12239

13764 15224 16432

17895

2000 4000 6000 8000 10000 12000 14000 16000 18000 20000 1996- 1997 1997- 1998 1998- 1999 1999- 2000 2000- 2001 2001- 2002 2002- 2003 2003- 2004 2004- 2005 2005- 2006 2006- 2007 2007- 2008 2008- 2009 2009- 2010 2010- 2011 2011- 2012 number of children school year

Number of Children in Ilinois Receiving Special Education under the Category of Autism Ages 3-21

Source: Illinois State Board of Education IDEA Child Count Data December 1, 2011

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SLIDE 5

Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP

641 1248 1757 2545 4171 8027 947 2496 6627 197 378 1484 1000 2000 3000 4000 5000 6000 7000 8000 9000 1999-2000 2004-05 2011-12 # of students Students with Autism in Illinois by Age Group 03-05 06-11 12-17 18-21

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SLIDE 6

 PUNS is a database of people in Illinois with DD

who need services.

  • 4,898 individuals receiving waiver; 1,685 on wait-

list

 Wait-list and provision of services not

guaranteed.

 Children’s Home-Based Support Services

Waivers

  • Allows state to provide home and community-

based services/supports for children and young adults (3-21 yrs.) so they may live at home with their families and avoid residential placement.

8/6/12

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SLIDE 7

 Data counts of children approaching national prevalence

rates.

 Developing family/workforce competencies:

  • ASD Certificate program across disciplines;
  • Training and support across the lifespan for families in each

region; and

  • Training in academic, residency and practice settings for health

care providers.

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SLIDE 8
  • Funding for community-based services and supports ensured

through:

  • Reforms to Medicaid for better home and community based

services & supports;

  • Leverage EPSDT mandate for the diagnosis and treatment of

children (0-21) with ASD; and

  • Opportunities to utilize Community

Health Centers and/or FQHCs in the provision of coordinated care for persons with ASD and DD (lifespan with a target of individuals 21+)

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SLIDE 9
  • IL Dept. of Human Services Autism Task Force
  • The Autism Program of Illinois (TAP)
  • Illinois Autism Training & Technical Assistance Project

(IATTAP)

  • Early Intervention Bureau
  • Autism Speaks – Chicagoland Chapter
  • Illinois Chapter of the American

Academy of Pediatrics (ICAAP)

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SLIDE 10
  • Data collection
  • Improved diagnostic reporting in EI system
  • Funding
  • Ligas lawsuit allowed

adults with DD access services in the community

  • Behavioral treatments

now reimbursed through early intervention system

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SLIDE 11
  • Family competencies in supporting people with ASDs
  • IATTAP model family support program;
  • TAP network of family support and bilingual workshops
  • Strong Autism Speaks Chicagoland Chapter
  • Grupo SALTO
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SLIDE 12

 Workforce Competencies

  • IATTAP developed a graduate level program for educators that is available

through IL State University (ISU);

  • Autism Task Force is tracking trainings related to ASD to be posted in an
  • nline Clearinghouse;
  • ICAAP offers (at no charge) online training on screening and referral for

developmental concerns

  • IL LEND targeted health care providers in underserved areas in southern IL for

training on early identification; and

  • Updates in diagnostic trainings (e.g., toddler ADOS) have been made available

for providers in diagnostic programs.

8/6/12

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SLIDE 13
  • Inconsistent data collection;
  • Disparities & gaps in family supports;
  • Non-standardized professional training;
  • ESL issues;
  • Disparities in diagnostics and service provision;
  • Limited post-secondary transition services;
  • Limited services for adults; &
  • FUNDING!!!
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SLIDE 14
  • Improve systematic collection of Early Intervention data;
  • Expand Early Identification training to health care

professionals in underserved areas;

  • Expand Basic Level Online Autism Training Courses from

IATTAP across state;

  • Implement competency-based pediatric residency

training on ASDs across residency programs state-wide

  • Address funding disparities:
  • Partner with Autism Speaks to enhance insurance

coverage

  • Work with legislators regarding approval

mechanisms for FQHCs

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SLIDE 15

8/6/12

Questions