Wisconsin Great Lakes LEND Collaboration Focus on Autism October - - PowerPoint PPT Presentation

Wisconsin

Great Lakes LEND Collaboration Focus on Autism October 4, 2012

Demographics

• Population estimate (2011):1 5,711,767

– Children under 18 yrs: 1,325,129 (23.2%)

• Ethnicity

– White—not Hispanic: 83.1% – Black: 6.5% – Hispanic: 6.1% – Asian: 2.4% – American Indian: 1.1%

• Poverty

– Persons living below FPL: 11.6% – Children living below FPL: 18.8% (248,924)

1Source U.S. Census Bureau: State and County QuickFacts (http://quickfacts.census.gov/qfd/states/55000.html)

Children and Youth with Special Health Care Needs (CYSHCN)

• CYSHCN: 15.5% of children (201,529)
• CYSHCN living below FPL: 17.2% of CYSHCN2
• Prevalence of ASD:

1 in 1293

• Spec Educ.:

leveling off at >1%4

12009/10 National Survey of Children with Special Health Care Nee www.childhealthdata.org/browse/snapshots/cshcn-profiles?rpt=9&geo=51#) 3Data Source: WISADDS 2008 data year (https://www.waisman.wisc.edu/wisadds/assets/Wisconsin.pdf) 4Source Maenner & Durkin 2010 in Pediatrics (Oct 25): www.waisman.wisc.edu/news/docs/maenner_durkin_pediatrics_2010.pdf

2 4 6 8 10 12 2002 2004 2006 2008 Prevalence per 1,000 children Surveillance Year

Overall ASD Prevalence

All ADDM Sites WISADDS Prevalence

Relevant Data and Information

• Children’s Long-Term Support Waiver covering

intensive therapy for autism

• Autism Insurance Mandate

– first applied November 1, 2009 – coverage of at least $50,000 for intensive-level services per year for up to 4 years – coverage of at least $25,000 per year for non- intensive level services

• Access to therapy varies

– Region, including rural and urban – Language – County – Whether covered by mandate-covered health insurance

Relevant Data and Information

• Early childhood focus among

collaborating state partners

• Variable access to diagnostic

assessment

• Regional Centers for Children

and Youth with Special Health Care Needs

• Wisconsin First Step-MCH

hotline & online database

Autism State Plan Highlights

• Five Goal Areas

I. System of Early Identification and Referrals B-3, 3-5

• II. Assessment, Evaluation and Diagnosis
• III. Intervention and Treatment
• IV. Supports for Families
• V. Overall Systems Coordination

Key Partners

I. System of Early Identification and Referrals B-5

Lead Group: Healthy Children Committee of Wisconsin Early Childhood Collaborating Partners

II. Assessment, Evaluation and Diagnosis

Lead Group: UCEDD

• III. Intervention and Treatment

Lead Group: Department of Public Instruction, Department of Health Services, UCEDD

• IV. Supports for Families

Lead Group: Autism Society of Southeastern Wisconsin

• V. Overall Systems Coordination

Lead Group: Title V CYSHCN

Accomplishments and Successes

• Goal 5:

– Collaboration – Coordinated with and extending existing work

• Goal 1:

– Act Early Wisconsin

• Goal 2:

– Progress on diagnostic training and best practice concensus

Accomplishments and Successes

• Act Early Wisconsin

– Customization – Common language

• Collaboration

– Apply for funds – Print materials

Accomplishments and Successes

• Goal 2:

– Autism Diagnostics Work Group (2010)

• Autism diagnostics best practices guidelines

development and dialogue

– UCEDD trainings

• ASD early identification and assessment
• ADOS

– Autism Diagnostics Forum (2012)

Challenges or Struggles

• Team composition / turnover
• Data collection
• Balancing progress on goals (e.g., increased

screening and capacity to meet diagnostic and intervention needs)

• Urban and rural issues, cultural diversity

Next Steps/Future Plans

• Reconvene the Act Early State Team, including

new partners and agency/organization participants

• Assess progress on goals, and identify

priorities and opportunities for action

• Webinar through Autism Diagnostics Forum
• n integration of diagnostic capacity into

Group Health Cooperative SCW provider network

List of State Team Partners (2011)

Team Member Agency/Organization Carrie Arneson WISADDS, UCEDD Chris Breunig, Arianna Keil NE CYSHCN Regional Center & Medical Home Hub Sharon Fleischfresser & Amy Whitehead Title V CYSHCN Anne Harris, Gail Chodron WI LEND, UCEDD Lilly Irvin-Vitela Supporting Families Together Brian Johnson (-> Daniel Parker) DPI Barbara Katz Family Voices of Wisconsin Emily Levine Autism Society of Southeastern Wisconsin Kim Liebhart LEND grad, DPI NE Regional Early Childhood Coach Mala Mathur Group Health Cooperative SCW, WI AAP Bill Murray, Terri Enters DHS Bureau of Long-Term Supports Dana Romary WI Birth to 3 Program Michelle Sherman Wisconsin Early Autism Project Linda Tuchman, Dan Bier UCEDD Michelle Urban Department of Children and Families