MINNESOTA Great Lakes LEND Collaboration Focus on Autism October - - PowerPoint PPT Presentation

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MINNESOTA Great Lakes LEND Collaboration Focus on Autism October - - PowerPoint PPT Presentation

Nov 29, 2023 465 likes •602 views

MINNESOTA Great Lakes LEND Collaboration Focus on Autism October 4, 2012 2010/11 MN Demographics Population 5,344,861 (2011) Generally mirrors the U.S. Higher percentage of whites (87% MN, 78% US) Higher percentage of high school

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MINNESOTA

Great Lakes LEND Collaboration Focus on Autism October 4, 2012

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2010/11 MN Demographics

  • Population 5,344,861 (2011)
  • Generally mirrors the U.S.

– Higher percentage of whites (87% MN, 78% US) – Higher percentage of high school graduates – Slightly higher incomes

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MN Demographics

  • Minnesota’s geographical and cultural diversity is

a great challenge.

– Half of all Minnesotans live in rural areas

  • shortages of mental health professionals and credentialed

providers

– In urban areas we have growing populations of East African and Southeast Asian immigrants who are under- represented in the service system

  • MN is moving forward with an autism waiver

which would secure funding for more families, but the provider shortage throughout the state remains problematic.

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Relevant Data

– The % of students with an educational label of autism is higher in MN (1.4%) than any other state in the nation – Funding for services in MN have been a challenge many years.

  • no insurance mandate or autism waiver.
  • Medicaid has paid for medically-necessary autism

services (including ABA) without a firm dollar or age- cap

  • Heavy reliance on PCA services
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Individuals Served under Autism Spectrum Disorders (ASD) Category MN Child Count Data (Birth-21 yrs.)

331 434 551 726 959 1284 1730 2242 2814 3759 4786 5929 7307 8691 9929 11314 12704 13879

2000 4000 6000 8000 10000 12000 14000 16000

1992 - 2009

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MN Definition Educational Criteria for Eligibility (2000)

  • “…Range of pervasive developmental disorders that

adversely affect a pupil’s functioning and result in the need for special education instruction and related services.”

  • “…Characterized by an uneven developmental profile

and a pattern of qualitative impairments in several areas of development: social interaction, communication, or restricted repetitive and stereotyped patterns of behavior, interests, and activities, with onset in childhood.”

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Autism State Plan Highlights

  • Two existing state plans are being merged (Act

Early team + Legislative Task Force)

– Outcomes identified for

  • early screening and assessment
  • evidence-based intervention
  • transition from school to post-secondary education/work
  • funding/social services across the lifespan
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Key Summit Group Partners

  • Autism Society of Minnesota
  • Arc Greater Twin Cities
  • Arc Minnesota
  • Center for Advanced Studies in Child Welfare
  • MN Chapter – American Academy of Pediatrics
  • MN Department of Education
  • MN Department of Health
  • Minnesota Department of Human Services
  • Minnesota Early Autism Project
  • MN Governor’s Council on Developmental Disabilities
  • MN Head Start
  • MN House/Senate Autism Task Force
  • Somali American Autism Foundation
  • University of Minnesota Autism Spectrum Disorders Clinic
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Accomplishments and Successes

– Secured AMCHP funding for Learn The Signs Act Early dissemination project – moving us forward on our early screening & intervention goals – Aligning key partners and agencies statewide & holding summit on November 8-9 to learn from SC and WI Act Early teams and formalize our dissemination plan – Act Early Ambassador – Shivani Pandit – State Plan development and integration of Act Early Summit group work with state agency partners added in new Legislative Task Force – Emerging research effort on ASD in MN

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Challenges or Struggles

– Alignment of the moving parts

  • service providers,
  • policy changes and evolution with

divisions/departments,

  • multiple advocacy positions

– Plan development – Informal ad hoc summit group initial development now in the hands of formal Legislative Task Force – Resource

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Next Steps/Future Plans

  • Act Early Summit November 8-9
  • Complete State Plan
  • Complete ASD Surveillance project

– Surveillance moving forward

  • Complete ASD residential services study
  • Form statewide stakeholder advisory council
  • n autism services, report recommendations

to Department of Human Services

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Resources

  • Autism Speaks

http://www.autismspeaks.org/

  • Autism Society of Minnesota

http://www.ausm.org/

  • MN State Autism Network

www.mnlowincidenceprojects.org/asd.html

  • MN LEND

www.lend.umn.edu