Exercise in Place: Part 2 Information to help guide your local - PowerPoint PPT Presentation

WELCOME TO Exercise in Place: Part 2 Information to help guide your local physical and occupational therapy teams and various exercises for myositis patients and how to modify them. An MSU webinar with Megan and Lauren, Occupational Therapy Fin and Ruben, Physical Therapy

WEBINAR PROVIDED BY Myositis Support and Understanding (MSU) MSU is an all-volunteer, patient-centered nonprofit organization founded by myositis patients for myositis patients and caregivers. We work to improve the day-to-day lives of those impacted by myositis. Learn more at: UnderstandingMyositis.org

Our Speakers Johns Hopkins Myositis Center Welcome back to MSU our speakers for today’s session, all who have joined us for past #MyositisLIFE video sessions, including part 1 of Exercise in Place. Occupational Therapy Physical Therapy Megan McGowan Fin Mears Lauren Burgess Ruben Pagkatipunan Jr. with the Johns Hopkins Myositis Center

Myositis Support and Understanding Question Resources in the next slides refer to the question: When I am ready to go back to physical therapy, what should be included in a physical therapy evaluation?

PT Functional Outcome Measures Used in Myositis DM/PM IBM Necrotizing Myopathy ·TUG · TUG Same as DM/PM · 6 MWT · 2 MWT/6MWT · Sit to stand tests: ( Five · Five Times Sit to Stand or 30 sec sit to stand (depends Times Sit to Stand/ 30 secs on severity of quad sit to stand) weakness) • Functional Index-2 • Timed Stair negotiation

Myositis Support and Understanding Functional Index-2: Assessment tool for measuring muscle endurance for PM/DM Source: Alexanderson, H., Broman, L., Tollbäck, A., Josefson, A., Lundberg, I. E., & Stenström, C. H. (2006). Functional index-2: Validity and reliability of a disease-specific measure of impairment in patients with polymyositis and dermatomyositis. Arthritis & Rheumatism , 55 (1), 114–122. doi: 10.1002/art.21715

Myositis Support and Understanding Source: Alexanderson, H., Broman, L., Tollbäck, A., Josefson, A., Lundberg, I. E., & Stenström, C. H. (2006). Functional index-2: Validity and reliability of a disease-specific measure of impairment in patients with polymyositis and dermatomyositis. Arthritis & Rheumatism , 55 (1), 114–122. doi: 10.1002/art.21715

Myositis Support and Understanding Source: Alexanderson, H., Broman, L., Tollbäck, A., Josefson, A., Lundberg, I. E., & Stenström, C. H. (2006). Functional index-2: Validity and reliability of a disease-specific measure of impairment in patients with polymyositis and dermatomyositis. Arthritis & Rheumatism , 55 (1), 114–122. doi: 10.1002/art.21715

Myositis Support and Understanding Question Resources in the next slides refer to the question: Should I include cardio exercise and if so, how?

Borg CR-10 scale – to rate perceived exertion Myositis Support and Understanding 0 No exertion To rate your perceived exertion 0.5 Extremely week (light) after an exercise session, just 1 Very light register the number that you feel 2 Light best represents your experience 3 Moderate 4 Somewhat strong Lower number correspond to lower 5 Strong (heavy) exertion, while higher number 6 describes a higher level of exertion 7 Very strong 8 The anchor words are there to help, 9 and you can always use numbers 10 Extremely strong (almost maximal) without an anchor word. For example: a 6 corresponds to an experience of exertion that is • Maximal stronger than a 5, but not exerting enough to be described as a 7. 23/08/2016 5 Helene Alexanderson

Myositis Support and Understanding Source: Myositis Support and Understanding webinar “Exercise as a treatment for myositis” by Helene Alexanderson, May 21, 2019

Contact Information Myositis Support and Understanding WAYS TO CONNECT WITH MSU MSU Website www.Understandingmyositis.org # MyositisLIFE Website www.MyositisLIFE.org Email info@Understandingmyositis.org