Exercise in Place: Part 2 Information to help guide your local - - PowerPoint PPT Presentation

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Exercise in Place: Part 2 Information to help guide your local - - PowerPoint PPT Presentation

WELCOME TO Exercise in Place: Part 2 Information to help guide your local physical and occupational therapy teams and various exercises for myositis patients and how to modify them. An MSU webinar with Megan and Lauren, Occupational Therapy Fin


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Exercise in Place: Part 2

An MSU webinar with

Megan and Lauren, Occupational Therapy Fin and Ruben, Physical Therapy WELCOME TO

Information to help guide your local physical and occupational therapy teams and various exercises for myositis patients and how to modify them.

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SLIDE 2

Myositis Support and Understanding (MSU)

MSU is an all-volunteer, patient-centered nonprofit

  • rganization founded by myositis patients for myositis patients

and caregivers. We work to improve the day-to-day lives of those impacted by myositis.

WEBINAR PROVIDED BY

UnderstandingMyositis.org

Learn more at:

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Our Speakers

Megan McGowan Lauren Burgess

Johns Hopkins Myositis Center

Fin Mears Ruben Pagkatipunan Jr. Occupational Therapy Physical Therapy with the Johns Hopkins Myositis Center

Welcome back to MSU our speakers for today’s session, all who have joined us for past #MyositisLIFE video sessions, including part 1 of Exercise in Place.

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Resources in the next slides refer to the question: When I am ready to go back to physical therapy, what should be included in a physical therapy evaluation?

Question

Myositis Support and Understanding

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PT Functional Outcome Measures Used in Myositis

DM/PM IBM Necrotizing Myopathy ·TUG · 6 MWT · Sit to stand tests: (Five Times Sit to Stand/ 30 secs sit to stand)

  • Functional Index-2

· TUG · 2 MWT/6MWT · Five Times Sit to Stand or 30 sec sit to stand (depends

  • n severity of quad

weakness)

  • Timed Stair negotiation

Same as DM/PM

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Myositis Support and Understanding

Source: Alexanderson, H., Broman, L., Tollbäck, A., Josefson, A., Lundberg, I. E., & Stenström, C. H. (2006). Functional index-2: Validity and reliability of a disease-specific measure of impairment in patients with polymyositis and

  • dermatomyositis. Arthritis & Rheumatism, 55(1), 114–122. doi:

10.1002/art.21715 Functional Index-2:

Assessment tool for measuring muscle endurance for PM/DM

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Myositis Support and Understanding

Source: Alexanderson, H., Broman, L., Tollbäck, A., Josefson, A., Lundberg, I. E., & Stenström, C. H. (2006). Functional index-2: Validity and reliability of a disease-specific measure of impairment in patients with polymyositis and dermatomyositis. Arthritis & Rheumatism, 55(1), 114–122. doi: 10.1002/art.21715

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Myositis Support and Understanding

Source: Alexanderson, H., Broman, L., Tollbäck, A., Josefson, A., Lundberg, I. E., & Stenström, C. H. (2006). Functional index-2: Validity and reliability of a disease-specific measure of impairment in patients with polymyositis and dermatomyositis. Arthritis & Rheumatism, 55(1), 114–122. doi: 10.1002/art.21715

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Resources in the next slides refer to the question: Should I include cardio exercise and if so, how?

Question

Myositis Support and Understanding

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Myositis Support and Understanding

23/08/2016 5 Helene Alexanderson

Borg CR-10 scale – to rate perceived exertion

No exertion 0.5 Extremely week (light) 1 Very light 2 Light 3 Moderate 4 Somewhat strong 5 Strong (heavy) 6 7 Very strong 8 9 10 Extremely strong (almost maximal)

  • Maximal

To rate your perceived exertion after an exercise session, just register the number that you feel best represents your experience Lower number correspond to lower exertion, while higher number describes a higher level of exertion The anchor words are there to help, and you can always use numbers without an anchor word. For example: a 6 corresponds to an experience of exertion that is stronger than a 5, but not exerting enough to be described as a 7.

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Myositis Support and Understanding

Source: Myositis Support and Understanding webinar “Exercise as a treatment for myositis” by Helene Alexanderson, May 21, 2019

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#MyositisLIFE Website

www.MyositisLIFE.org

MSU Website

www.Understandingmyositis.org

Email

info@Understandingmyositis.org

WAYS TO CONNECT WITH MSU

Contact Information

Myositis Support and Understanding