Critical Social Futures: Querying Systems of Disability Support 19 - - PowerPoint PPT Presentation
Critical Social Futures: Querying Systems of Disability Support 19 th June, 2015 University of NSW, Kensington Querying Support and Support Needs: Individualising the Supports Paradigm Samuel Arnold Vivienne Riches Roger Stancliffe How
19th June, 2015 University of NSW, Kensington Samuel Arnold Vivienne Riches Roger Stancliffe
In comparison to the happy times in your life, how happy were you in the past two weeks?
5
Very Happy
4
Happy
3
A Little Happy
2
A Little Unhappy
1
Unhappy Very Unhappy
Proxy Respondent
In comparison to the times in you life when you felt healthiest, how healthy have you felt in the past two weeks?
5
Very Healthy
4
Healthy
3
A Little Healthy
2
A Little Sick
1
Sick Very Sick
The supports paradigm “shifts the focus from caregiving to investing time in creating and nurturing support networks;” (Thompson et al., 2004, p. 5) “The New Supports Paradigm suggests that individuals should first, without restriction, define the lifestyles they prefer and the environments they want to access” (Buttsworth, 2002, p. 85)
The supports paradigm “shifts the focus from caregiving to investing time in creating and nurturing support networks; thus, this paradigm shift redefines, but does not eliminate the role of paid staff” (Thompson et al., 2004,
“The New Supports Paradigm suggests that individuals should first, without restriction, define the lifestyles they prefer and the environments they want to access. Their goals and priorities then become the basis for intensity and types of support they need to succeed in those environments” (Buttsworth, 2002, p. 85)
Five component support needs assessment and planning process. Reproduced from Thompson, Wehmeyer & Hughes, 2010, p. 173.
Normalisation Normalisation Normalisation Normalisation Social Role Social Role Social Role Social Role Valorisation Valorisation Valorisation Valorisation SRV Person Person Person Person-
Centrednesss Centrednesss Centrednesss Centredness Yes PCPlanning not quite Social Model Social Model Social Model Social Model
Disability Disability Disability Strong social model focus on societal change Supports paradigm discourse focused on individualised supports, available support needs assessment do not measure ‘social change needs’ International International International International Classification Classification Classification Classification
(ICF) (ICF) (ICF) (ICF) Supports are implied within the environment component of ICF. (Supports central in AAIDD model) Person-Environment interaction (standardised environment) Universal model not specific to people with disability. United United United United Nations Nations Nations Nations CRPD CRPD CRPD CRPD
Rights basis for entitlement to individualised supports. Provides some normative standard of reasonable and necessary
America hasn’t ratified
Samuel Arnold Vivienne Riches
The Instrument for the Classification and Assessment of Support Needs (I-CAN) “a support needs assessment designed to assess and guide support delivery for people with a disability including mental illness. It provides a support services and family friendly holistic assessment, conceptually based upon the internationally recognized WHO ICF framework.”
Ally’s I Can Contribute Statement: “I give to Médecins Sans Frontières every month. I work in an industry that is focused on helping
when I meet someone new I am always willing to
and looking after my husband. I only buy cage free and free range chicken.”
Aspirations
Relationships
– Is this a met need?
– Source of support?
– Improvement since last assessment?
– Support with or for? – Other possibilities…
The Amount of Support we Need How old we are and what’s going on in our life
The Supports Continuum
Rug rat Here comes dementia Midlife Crisis Car Accident
“Supports are resources and strategies that aim to promote the development, education, interests, and personal well-being of a person and that enhance individual functioning.” (Luckasson et al., 2002, p. 151) “Supports are people, resources, tools, equipment, education or strategies that enable a person to interact with their environment and pursue a valued life.” (Arnold, n.d., p. 12)
“a psychological construct referring to the pattern and intensity of supports necessary for a person to participate in activities linked with normative human functioning” (Thompson et al., 2009, p. 135) “a psychological construct referring to the frequencies, types and overall amounts of supports that are reasonable and necessary for a person to pursue a chosen life of quality.”
“How much support would you need to fully engage in all aspects of this activity to a contemporary community standard?” even if the person “does not” and “has no intention of doing” the activity “How frequently, and what level of support, does this person need from another person, in order to complete this activity, or because of this health need, in supporting them to have a life of quality of their choosing?”
n Frequency % Percent Gender Male Female 89 74 54.6 45.4 Age Groups
20 48 65 30 12.3 29.4 39.9 18.4 Primary Disability Neurological Physical (50) and sensory (2) ABI Intellectual 31 52 21 59 19.0 31.9 12.9 36.2 Living Arrangements
45 21 97 27.6 12.9 59.5 Geographic remoteness
23 140 14.1 85.9 Annual Individual Funding level
61 46 56 37.4 28.2 34.4
– H&WB, I-CAN A&P
– Broad Independence, ICAP Maladaptive Index
– Motor Skills, Social & Communication Skills, Personal Living Skills, Community Living Skills, ICAP Maladaptive Index
Enter method
– Physical Health, Mental & Emotional Health, Behavior of Concern, Major Life Areas, Mobility, Communication, Self Care, Domestic Life, Community Social & Civic Life, Learning & Applying Knowledge, General Tasks & Demands, and Interpersonal Interactions & Relationships
Block 1 – Demographics: R2 = .11 Block 2 – Demographics + I-CAN: R2 = .35
No “Bootstrapping”
Samuel Arnold Vivienne Riches Trevor Parmenter Roger Stancliffe Gwynnyth Llewellyn Jeff Chan Gabrielle Hindmarsh
Robert Thensel longest non stop wheelie in a wheelchair
Founder of Beyond Limitations Week