CDC Report to the HHS CFS Advisory Committee December 13-14, 2017 - - PowerPoint PPT Presentation

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CDC Report to the HHS CFS Advisory Committee December 13-14, 2017 - - PowerPoint PPT Presentation

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National Center for Emerging and Zoonotic Infectious Diseases CDC Report to the HHS CFS Advisory Committee December 13-14, 2017 Ermias Belay, MD Associate Director for Epidemiologic Science Division of High-Consequence Pathogens and Pathology

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SLIDE 1

National Center for Emerging and Zoonotic Infectious Diseases

CDC Report to the HHS CFS Advisory Committee

December 13-14, 2017

Ermias Belay, MD Associate Director for Epidemiologic Science Division of High-Consequence Pathogens and Pathology (DHCPP) ex officio Member CFSAC

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SLIDE 2

Progress Report on ME/CFS Webpages

  • Sections for general public were posted

June 2017

  • Fact sheets in

pediatric section available in downloadable PDF (one sheet, two sides) October 2017 – Fact Sheet for Education Professionals – Fact Sheet for Healthcare Professionals – Fact Sheet for Parents and Guardians

  • Section

for Healthcare Professionals nearly complete – December - final review planned – January/February – clearance; posting once content is cleared

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SLIDE 3

Stakeholder Engagement & Communication Call (SEC)

  • 10th call Thursday, November 2, 2017 at 3:00 pm - 4:00 pm EDT
  • Invited speakers – Lucinda Bateman MD; Ellen Clayton, MD, JD; Peter

Rowe, M D (2 members and c hair

  • f

IOM Committee

  • n M

E/CFS) – Take Home Messages from the 2015 Institute of Medicine Report on ME/CFS

  • Transcript and audio file of call are available on CDC ME/CFS web page:

https://www.cdc.gov/me-cfs/programs/meetings.html – Posted November 21, 2017 – Transcript of 9th call also available

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SLIDE 4

Live Continuing Education Event in Atlanta

  • Held N
  • vember

30, 2017; 6:30 – 8:30 p.m. in S avannah C

  • llege
  • f

Art and Design, S CADshow Theater, A tlanta GA Free admission, Free CE units for physicians, nurses, pha rmacists, veterinarians, he alth e ducation specialists, p ublic health professionals

  • PBS-edited version of

documentary “Unrest” followed by panel discussion – Jen Brea, Nancy Klimas, Elizabeth Unger, Robin Curtis (moderator)

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SLIDE 5

Presentations Since June 2017

  • Immunogenomics 2017, October 2-4, 2017, Huntsville AL

– “Can the Immune Repertoire Lead to Understanding ME/CFS?”

  • Solve ME/CFS Initiative Think Tank, October 13-14, 2017, Tysons

Corner, VA – “Summary of CDC’s Activities and P lans”

  • 2017 Annual Meeting and Expo of American Public Health

Association, November 4-7, 2017, Atlanta – Several presentations (next slide)

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SLIDE 6

APHA 2017 Presentations

  • Special symposium organized by Dr. Lily Chu –

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Fact, Fiction, Findings – “Epidemiologic Approaches to Capturing Heterogeneity of ME/CFS”

  • Oral and Poster Presentations: “Stress and disease: Examining the

relationship be tween allo static load a nd M E/CFS”; “Application o f tensor factorization t echnique to identify subgroups in M E/CFS: population- and tertiary-based samples”

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SLIDE 7

Other Programmatic Activities Since June 2017

  • Meeting of MCAM Investigators scheduled for December 8, 2017

– Supplement MCAM with c linics enrolling children or adolescents with ME/CFS and other illnesses as comparison groups (with Eagle Global Scientific)

  • Planning

CE module with W ebMD/Medscape – target launch M ay 2018 – “Spotlight” activity (moderated pa nel discussion be tween he althcare providers)

  • n c

linical methods to assess ME/CFS using IOM recommendations

  • Planning

next Roundtable process for stakeholder engagement – Identify additional educational materials meeting needs

  • f

healthcare providers (with M cKing Associates)

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SLIDE 8

Collaborative Activities

  • Active

participation o n C FSAC workgroups – Pediatric Education W

  • rking

Group – Medical Education W

  • rking

Group

  • ME/CFS

Common D ata Element Project – Collaboration w ith N IH/NINDS – Co-funded b y CDC and N IH/NINDS

  • FDA

Drug Development Tool Qualification P rogram – Sharing MCAM data to advance work for Qualification f

  • r

Clinical Outcome Assessment (COA) DDT#080: ME/CFS/SEID

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SLIDE 9

Progress on CFSAC Recommendations

  • Center

for Parent Information a nd R esources (CPIR) developing ME/CFS landing page in c

  • llaboration w

ith C DC including links to – CDC ME/CFS website – DOE and C PIR resources

  • Gathering

information a nd g uidance

  • n o

ptions for process leading to development

  • f

federal treatment guidelines for ME/CFS – Early 2018 target date for plan pr

  • posal

to HHS ex

  • fficio

members

  • f

CFSAC

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SLIDE 10

Thank you

https://www.cdc.gov/me-cfs

For more information, contact CDC 1-800-CDC-INFO (232-4636) TTY: 1-888-232-6348 www.cdc.gov The findings and conclusions in this report are those of the authors and do not necessarily represent the

  • fficial position of the Centers for Disease Control and Prevention.