Advancing)Health)Equity)in)Asian)American) - - PowerPoint PPT Presentation

advancing health equity in asian american communities
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Advancing)Health)Equity)in)Asian)American) - - PowerPoint PPT Presentation

Advancing)Health)Equity)in)Asian)American) Communities:))Context,)Challenges,)and) Opportunity American)Academy)of)Health)Behavior March)6 th ,)2018 Nadia)Islam,)PhD Associate)Professor Department)of)Population)Health NYU)School)of)Medicine


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Advancing)Health)Equity)in)Asian)American) Communities:))Context,)Challenges,)and) Opportunity

American)Academy)of)Health)Behavior March)6th,)2018 Nadia)Islam,)PhD Associate)Professor Department)of)Population)Health NYU)School)of)Medicine

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  • To$ demonstrate$the$role$of$context'and'
  • pportunities'for$advancing$health$equity$
  • To$explain$how$community1based'

participatory'research'can$advance$health$ equity

  • To describe$the$lessons'learned in$

advancing$health$equity$in$Asian$American$ populations

Learning'Objectives

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Source:(Woolf(SH,(Purnell(JQ.(The(Good(Life:(Working( Together(to(Promote(Opportunity(and(Improve(Population( Health(and(WellCbeing. JAMA. 2016I315(16):1706C1708.

“Opportunity—the(chance(to(thrive(in( health(and(other(aspirations—is(unevenly( distributed(across(society.”

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IDENTITY CONTEXT AGENCY

OPPORTUNITY

Context'&'Opportunity

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Context

Asian&Americans

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Asian&Americans:&The&fastest&growing&minority& group

AA&population&is& projected&to&be& 43.2%million%in& 2050&– or&10%&of& the&entire&U.S.& population

Source:&Pew&Research&Center

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Asian&Immigrants&&&Their&Children

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LEP$Rates$among$AA$and$NHPI$Subgroups

In$NYC,"60%"of"Asians"citywide"are"LEP"with"rates"varying"across" Asian"ethnic"groups"(Chinese:"67%@"Korean"63%@"Vietnamese"61%@" Hindi"30%).

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Asian&American&Diversity

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  • Aggregated)data)– lack)of)or)limited)subgroup)categorization
  • Small)sample)sizes
  • Inconsistent)definitions)of)Asian)Americans)
  • Uneven)distribution)by)geographic)region
  • Barriers)to)participation)due)to)immigration)status)and)language)access)(limited)English)

proficiency)

  • Lack)of/or)inconsistent)collection)of)race/ethnicity)data

Data$on$Asian$Americans$are$Sparse

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Identity

The$Model$Minority$Stereotype

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Asian&Americans&are&popularly&believed&to&have:

  • High&educational&attainment
  • High&median&family&income
  • Low&crime&rates
  • Lack&of&juvenile&delinquency
  • Lack&of&mental&illness
  • Close&family&ties
  • Law@abiding
  • Hard&work&ethic

What%is%the%Model%Minority% Stereotype?

Sources:&Cheng,&J&of&Applied&Behavioral&Science&1997H&Kawai,&The& Howard&Journal&of&Communication.&2005.

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Aug$31,$1987

The$“Model$Minority”$Stereotype

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The$Scripps$National$Spelling$Bee$Has$Co5Champions,$Again

Katy%Steinmetz @katysteinmetz May%28,%2015

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–Success'isn’t'evenly'distributed'across'and' within'Asian'American'subgroups –Inequalities'are'obscured'and'masked'among' subgroups'– those'who'suffer'are'invisible –Stigma'and'self>hatred'among'those'who' underperform'or'suffer'from'poor'mental'and' physical'health

Challenges)of)the)Model)Minority)Stereotype

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Example(1: Are(Asian(Americans(Healthier( and(Are(We(All(Alike?

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Age$adjusted+diabetes+prevalence+among+ select+racial/ethnic+subgroups:++NYC+2009$2001

14.3 16.5 10.7 19.0 10.8 9.3 Blacks Hispanics Asians

  • verall

Asian Indians Koreans Chinese

Islam&N,@Wyatt@L,@Kapadia@S,@Marian@R,@TrinhIShevrin@C,@Kwon@S.@Diabetes@and@Associated@Risk@Factors@among@Asian@American@ Subgroups@in@New@York@City.@Diabetes@Care.@2013T@36:@e5.@@PMCID@3526197

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Diabetes(provider.management(by(select( racial/ethnic(subgroup,(NYC:(2009.2011

3.23 3.06 3.31 2.56 2.91 1.83 2.73 2.00 2.14 0.81 1.16 1.98 Mean0yearly0HbA1c0checks0by doctor Mean0yearly0feet0checks0by doctor Blacks Hispanics Asians0overall Asian0Indians Koreans Chinese

Islam&NS,0et0al.0Asian0Americans0in0New0York0City0Face0Disparities0in0Diabetes0Management0Compared0to0Other0Racial/Ethnic0Minority0Groups0 (2014).0American&Journal&of&Public&Health.[Supplement03,02015,0Vol0105,0No.0S3

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“We…focused+on+non-Hispanic+ Whites,+non-Hispanic+Blacks,+and+ Hispanics+in+line+with+much+of+the+ literature+on+health+disparities.”

DATA$USE:$REAL$WORLD$EXAMPLE

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Example(2: Are(Asian(Americans(Wealthier(&( Wiser?

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Value&of&Disaggregated&Data

Source:(Ahmad,(Farah(Z,(and(Christian(E.(Weller,(Reading(Between(the(Data:(The( Incomplete(Story(of(Asian(Americans,(Native(Hawaiians(and(Pacific(Islanders,(Center(for( American(Progress(,(February(2014. Source:(Asian(American(Center(for(Advancing(Justice,(A(Community(of(Contrasts:( Asian(Americans(in(the(United(States:(2011.

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14 22 25 29 5 10 15 20 25 30 35 2012$Poverty$Rate,$% Non+Hispanic2White Non+Hispanic2Black Hispanic Non+Hispanic2Asian

Asian$Americans$are$a$Low$Income$Group$in$New$York$City

Source:(The(Center(for(Economic(Opportunity((CEO)(Poverty(Measure,(2005(@ 2012.(An( Annual(Report(from(the(Office(of(the(Mayor.(

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Intervention)approaches)for) advancing)health)equity

Community)Engagement)&)CBPR

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We#will# keep#you# informed

We#will# consider# your#input# and#give# feedback# about#how# it#informed#

  • ur#

decisions We#will# ensure#that# your#input# is# considered# among#the# choices#we# implement We#will# work# together# and# incorporate# your#views# as#much#as# possible (CBPR)

We#will# implement# what#you# decide (CBPR)

Spectrum)of)Community)Engagement

INFORM CONSULT INVOLVE

COLLABORATE EMPOWER

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! Fundamental*Principles*of*CBPR:

" promotes(active(collaboration(and( participation(at(every(stage(of( research " facilitates(co5learning " ensures(research/interventions(are( community5driven " disseminates(results(in(useful(ways( for(community(stakeholders " ensures(research(and(intervention( strategies(are(culturally(appropriate " defines(community(as(a(unit(of( identity. CBPR*GUIDING*PRINCIPLES

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Project(Overview

Diabetes(Research,(Education,(&(Action(for( Minorities((DREAM)(Project(

Funder(s): NIMHD(&(CDC

Overall(Goal: To(develop,(implement,(and(test(the(efficacy(of(a( CHW(intervention(designed(to(improve(diabetes(control(and( management(in(the(Bangladeshi(community(of(NYC

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Background

Bangladeshi Community

  • f NYC: ≈ 64,000*

! 54% LEP ! 31% live in poverty ! 74% foreign-born

US-Census,-2010*

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Background

Bangladesh/is/one/of/the/top/10/countries/estimated/to have/the/highest/cases/of/diabetes/worldwide/by/2030

List of countries with the highest number of estimated cases of diabetes for 2000 and 2030

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DREAM&Community&Coalition

DREAM& Project& Coalition

Ethnic&Media Faith6Based& Organizations Community& Leaders&and& Representatives&

  • f&Target&

Community

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Who$are$CHWs

CHWs%are%frontline%public%health% professionals%who%have%an%unusually% close%understanding%of%the%communities% they%serve%through%shared%ethnicity,% culture,%language,%and%life%experiences. Also%referred%to%as%… Promotor.es/.as Outreach$Workers Community$Health$Representatives Patient$Navigators/

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CHW$Approaches$

! Improve(access(to(health(care(resources ! Improve(the(quality(and(cultural(appropriateness(of(service(delivery ! Help(others(integrate(disease(prevention(and(management(into(their( daily(lives( ! Organize(communities(to(improve(environmental,(physical(and(social( wellbeing ! Negotiate(cultural(&(linguistic(barriers(to(health ! Help(others(become(active(participants(in(their(own(health

USAID,(Community)and)Formal)Health)System)Support for)Enhanced)Community)Health)Worker Performance)Report,(2012 http://www.coregroup.org/storage/Program_Learning/Community _Health_Workers/chw%20evidence%20summit%20final%20rep

  • rtP19dec2012.pdf
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DREAM&CHWs

Shared&Experiences&of& working&with&the& Bangladeshi&community

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Social'Determinants'of'Health' Approach

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Study&Design&and&Methods

I/E&Eligibility: ! Bangladeshi&NYC&resident,&ages&25&– 85 ! Confirmed&Hemoglobin&A1c&of&≥&6.5 ! Cannot&be&pregnant,&on&renal&dialysis,&or&have&had&coronary& event&within&the&3&months&preceding&the&intervention

Study&Design:&RCT& Treatment Control+ 5&monthly&education&sessions&&&&&&&&&&&&&&&&&&&&&Introductory&Session&Only& 2&1v1&Visits&with&a&CHW “Wait&list”*Control*group*receives*introduction*education*session*only.**

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CHW$Levels$of$Intervention Policy

Systems

Community

Individual

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Individual)Level

! Culturally(tailored(health(education ! Linguistically(tailored(access(to(care(and(patient(navigation ! Culturally(tailored(health(promotion(strategies ! Empowerment(&(enhancing(self:efficacy ! Providing(linkages(to(housing,(immigration,(and(other(services

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Community)level

!Promoting)positive) health)contexts)that) changes)access)to) material)resources " Increasing)access)to) affordable)physical) fitness)opportunities " Environmental) changes)in)faith: based)organizations,) ethnic)grocery) stores,)and) restaurants !Building)organizational) capacity

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Systems'&'Policy'Level

! Promoting)cultural) competency)within) healthcare)systems ! Advocating)for) responsive)healthcare) system)&)data) disaggregation)) ! Mechanisms)for)CHW) reimbursement)and) sustainability ! Integration)of)CHWs) within)primary)care) teams

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Results:((Recruitment(&(Retention

Randomized (n = 336, 38%)

Allocated to Treatment Group (n = 176) Completed Intervention (n =135, 77%) Received Partial Intervention (n = 41, 23%) Allocated to Control Group (n = 160) Received BL Session (n = 160, 100%)

Screened for Eligibility (n =879)

Completed 6-month survey (n=144) Lost to follow-up (n=31) HbA1c Analyzed (n = 132, 75%) HbA1c Analyzed (n = 115, 72%) Completed 6-month survey (n=127) Lost to follow-up (n=14)

Total Excluded (n = 543), 62% I/E Criteria (n = 106), 20% Declined (n = 126), 23% Lost to Follow-Up (n = 311), 57%

*Moher D, Schulz KF, Altman DG. The CONSORT statement: revised recommendations for improving the quality of reports of parallel-group randomized trials. Ann Intern Med 2001;134:657-62.

Allocation Follow-Up Analysis Enrollment

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Results:((Diabetes(Control(at(the(Follow(Up

36.3 35.0 37.2 24.6 28.3 22.2 Overall0(p=0.034) Females0(p=0.446) Males0(p=0.035)

Proportion0of0Study0Participants0that0Achieved0 HbA1c0Control0at0Follow0Up

Intervention Control

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Results:((Average(Decrease(in(HbA1c( between(Baseline(and(69Months

0.2 0.7* 1.3** 2.4*** 0.0 0.2 0.4 0.6 0.0 0.5 1.0 1.5 2.0 2.5

Overall HbA1c5≥58.0 HbA1c5≥59.0 HbA1c5≥510.0

Treatment Control

*P=.0155A5**p=.001A5***p=.0115

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Shifting(Opportunity,(Enhancing(Agency

52(y/o(Bangladeshi((Female,( Diabetic(for(3½((Years Initially(felt(uncomfortable(traveling(to( and(from(the(hospital(by(herself.(( Empowered(by(a(CHW(to(learn(how(to( travel(via(public(transportation,(and( take(charge(of(her(own(health.((Since( 2011,(she(has(referred(several(friends( and(family(members(into(the(project( and(remains(an(active(volunteer.

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Dissemination*&*Sustainability

Reporting*of*results*to*all audiences Academics*&*Clinicians* Community*&*Patient* Stakeholders

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Advancing)Equity)through)Dissemination,)Replication,) and)Scale

  • DREAM'Coalition
  • CSAAH'CVD/diabetes'track'and'

replication'of'CHW'model

  • Multi?modal'dissemination'

strategy

  • Publicly'available'toolkit:'

https://med.nyu.edu/asian> health/research/dream/dream>project> materials

  • Media'Dissemination
  • Healthcare'setting'translation
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Lessons&Learned&&& Opportunities

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Lessons&Learned

Asian&Americans&are& understudied&and&clear&lack&of& evidence&base&of&what&works& and&doesn’t&work Asian&American&communities&have& the&capacity and&desire to& engage&in&health&research.

Opportunities

!

Addressing&the&Knowledge&Gap

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Lessons&Learned

Model&Minority&Stereotype& remains&a&persistent&challenge.

Opportunities

Support&for data&disaggregation&and&policy& translation

!

Shifting&the&Paradigm&and&Perceptions

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Lessons&Learned Improving&Access&&&Systems&Change&through& Community&Health&Worker&Approaches Opportunities

Community.health.worker. approaches.are.feasible,. acceptable,.and.effective. Place>based&strategies&&& community>clinical&linkages to. reach.LEP.and.linguistically. isolated.communities Harnessing.EHR.and.healthcare. reform.efforts

!

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Context'matters'

but$opportunities$can$shift$context

CONTEXT OPPORTUNITY

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Nadia%Islam,%PhD

Nadia.islam@nyumc.org

NYU%Center%for%the%Study%of%Asian%American%Health% (CSAAH)

med.nyu.edu/asianChealth |%facebook.com/NYU.CSAAH |% @NYU_CSAAH

This%presentation%was%supported%in%part%by%the%NYU%Center%for%the%Study%of%Asian%American%Health%(NIH% National%Institute%for%Minority%Health%&%Health%Disparities%grant%#%P60MD000538),%the%NYUCHHC%Clinical% and%Translational%Science%Institute%(NIH%National%Center%for%Advancing%Translational%Sciences%grant% #UL1TR001445),%and%the%NYUCCUNY%PRC%(Centers%for%Disease%Control%and%Prevention%cooperative% agreement%number%#U48DP005008).

Thank&You!