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Updates to the LFA Support Group Facilitator Manual Goals for Updating the Manual Provide training that reflects the current needs of the lupus patient population as well as trends in support group facilitating. Improve the flow of


  1. Updates to the LFA Support Group Facilitator Manual

  2. Goals for Updating the Manual ▪ Provide training that reflects the current needs of the lupus patient population as well as trends in support group facilitating. ▪ Improve the flow of topics and presentation of information. ▪ Create a positive support group experience for facilitator and members.

  3. Building Upon the Information & Referral Guide Series

  4. Update Process ✓ 1 st Review - Update of content, flow of manual, added resources • Sharon Mack, Education & Research and Network Development departments ✓ 2 nd Review – Feedback of changes from the chapter perspective • DC/MD/VA Chapter, Georgia Chapter, Kansas Chapter, Mid-South Chapter, Philadelphia Tri-State, Piedmont Chapter • Members of Patient Education Committee ✓ 3 rd Review - Outside Editor ✓ 4 th Review – Cindy Coney, LFA Board Chair

  5. Section 1: Introduction Key Content Updates ▪ About the Lupus ▪ Made reference to LFA Foundation of America, Inc. Support Group Policies and ▪ LFA Support Group Guidelines in this section to give them greater visibility Philosophy and emphasis.

  6. Section 2: The Support Group Facilitator Key Content Updates ▪ LFA Support Group ▪ Made the criteria for Facilitator Criteria becoming a facilitator more ▪ An Effective Facilitator clear for prospective facilitators. ▪ Added facilitator qualities and responsibilities. ▪ Re-organized and elaborated on facilitator skills that are critical to an effective support group.

  7. Section 3: How-To Topics Key Content Updates ▪ Planning and organizing a ▪ Re-organized the flow of the information. support group ▪ Provided more instruction ▪ The support group meeting about the how, when, and ▪ Meeting the challenge where of promoting and running lupus support groups. ▪ Added more content describing a well organized and well run lupus support group and provided reasons why members may stop attending.

  8. Quick Reference Index

  9. Appendix: Policies & Guidelines Policy Updates Guideline Updates ▪ ▪ Clarified process for becoming a Strategically choosing when to create new support groups facilitator. ▪ ▪ Choosing the right facilitator Greater emphasis on privacy & ▪ How to utilize evaluations confidentiality. ▪ ▪ Terminating a group Prior approval of expenditures ▪ Speaker and topic selection ▪ Quarterly Activity Reporting ▪ Language on fundraising and social ▪ Use of promotional materials media promotion

  10. Appendix: Forms LFA Support Group Forms Improvements ▪ ▪ Asks new questions to identify Facilitator Application ▪ key skills and qualities desired in a Facilitator Agreement facilitator. ▪ Meeting Planner ▪ ▪ Clearer distinction between Guest Speaker Request Form facilitator and Chapter ▪ New Member Registration Form responsibilities ▪ Meeting Sign-In Sheet ▪ More formal planning, tracking ▪ Meeting Report and reporting forms to enhance ▪ Assessment Form dialogue between Chapters and ▪ Facilitator Evaluation Form facilitators.

  11. Appendix: Templates Calendar Notice - Flyer - Postcard - Print Ad All available for download on MyLFA www.lupus.org/mylfa

  12. Receiving the Manual ▪ One hard copy per chapter ▪ Find on MyLFA ( www.lupus.org/mylfa ) • Manual, Appendix: Tools & Forms, FAQ, PowerPoint

  13. Recommendations for Network Rollout ▪ Hold a meeting with current facilitators within the next 90 days. Hand out updated manuals, go over changes, each SG leader signs new facilitator agreement. ▪ All upcoming trainings for new facilitators should use the new manual. ▪ Contact your chapter field director with questions about the manual, facilitator trainings, etc. Field directors will notify you of upcoming National support group teleconferences and trainings.

  14. Questions?

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