Ra Racial cial and nd Et Ethn hnic ic Differences erences in - - PowerPoint PPT Presentation
Wha hat t Do N o National tional Cor ore e In Indicat dicator ors Data ta Tel ell l Us Us Abou out t Cultura ltural, l, Ra Racial cial and nd Et Ethn hnic ic Differences erences in Civi vic c and d Com ommunity
Data a Sour urce
Describe National Core Indicators™ as a dataset that can be used to assess disparities in outcomes
Finding ings
Look at NCI data on civic and community engagement by race/ethnicity
states (including DC) and 22 sub-state areas
systems for people with intellectual and developmental disabilities by looking at
es
program/receiving funding, measuring the consequences/results of that program.
choice, rights, health, safety, relationships, service satisfaction etc.
measure the outcomes of state DD services from the perspective of the consumer
that did not take into account needs
HI WA AZ OK KY AL NC PA MA TX AR GA NM NJ MO NH OH* IL LA NY Wash DC FL CA* SD OR MN UT CO KS MS TN SC WI MI IN VA DE MD
46 states, the District of Columbia and 22 sub-state regions
ME
VT CT RI WY AK NV ID NE MT ND IA WV
Please se not
participate in all NCI surveys each year.
Adult Consumer Survey (ACS*) Family Surveys
Guardian Survey, Child Family Survey)
Staff Stability Survey
agencies providing info on the stability and quality of the DSP workforce working with adults with IDD
*In 2017-18, survey name
changed to the In-Person Survey (IPS)
Section I and Section II together take 50 minutes (on average) Conducted with adults only (18 and over) receiving at least one service in addition to case management No pre-screening procedures Background Information Section: demographic and personal information taken from existing records Standardized, face-to-face interview with a sample of individuals receiving services
Section I (no proxies allowed) Section II (proxies allowed)
services
including whether they are working
that they receive (e.g., with case managers, ability to make choices, self-direction)
community involvement, safety
NCI can be used to look at disparities in personal characteristics and outcomes of people with IDD.....
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1) Do White, non-Hispanic adults with IDD, Black/African American, Non-Hispanic adults with IDD and adults with IDD who identify as Hispanic experience disparities in outcomes regarding community inclusion and engagement? 2) Do the families of individuals with IDD report disparities in outcomes?
Data from 2016-17; 36 states Only included respondents that were identified as one of the three race/ethnic categories. N: 19,786 Race information is collected in BI section, from existing system records
Number mber of respond
ents ts Percen ent t of tota
White, non- Hispanic 15,235 77.0% Black/African American, Non- Hispanic 3,542 17.9% Hispanic 1,009 5.1% 19,786 The rest of this presentation will refer to:
White Black ck Hi Hispanic ic P-value ue Age 42.9 41.4 37.4 <.001 Gender=Male 57.2% 60.2% 58.5% <.05 Guardianship=No 40.4% 58.4% 51.7% <.001 ID level Severe or Profound (of those with ID level reported) 23.5% 29.5% 30.2% <.001 DX Psychotic disorder 10.0% 19.8% 13.1% <.001 DX Down Syndrome 10.2% 5.8% 10.2% <.001 DX High Blood Pressure 20.5% 31.4% 14.1% <.001 Primary Language=English 99.2% 98.9% 73.3% <.001 Preferred means of communication=Spoken 80.2% 78.0% 72.2% <.001 Has paid community job 21.9% 14.6% 12.4% <.001 Self-Directed Supports Option 10.8% 6.2% 13.5% <.001
P value: Anova for age, chi square tests for the rest of the table
White Black ck Hispanic anic Residence type (p<.001) Intermediate Care Facilities 8.1% 9.3% 15.2% Group residential settings 32.7% 29.4% 18.8% Own home or apartment 18.9% 16.9% 10.2% Parent/relative’s home 33.5% 39.7% 53.5% Foster care/host home 6.8% 4.7% 2.3% P value: Chi square test
79.2% 73.5% 76.3% 70.0% 70.1% 62.7% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% Has friends who are not staff or family** Can date or is married/living with partner** White Black Hispanic **= p<=.001
11.2% 82.4% 36.0% 48.0% 13.2% 82.5% 36.4% 46.5% 17.1% 76.7% 49.4% 39.7% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% Mail is opened by others without asking** Can be alone with friends and visitors at home* There are rules against having friends or visitors in the home** Has a key to home** White Black Hispanic **= p<=.001 *= p<=.01
90.3% 88.1% 44.8% 47.7% 88.4% 85.0% 61.9% 42.3% 88.6% 84.0% 52.3% 43.0% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% Went shopping at least
Went out to eat at least
Went to religious service/spiritual practice at least once in the past month** Went on vacation in the past year** White Black Hispanic **= p<=.001 *= p<=.01
adults with IDD living in family home. (N=11419; 16 States)
families/guardians of adults with IDD not living in family home. (N=9194; 12 States)
children with IDD living in family home. (N=3352; 9 States) All family members with IDD are receiving at least
management,
64.0% 18.2% 17.8% 84.0% 10.1% 5.9% 82.9% 9.9% 7.2% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% White Black Hispanic AFS (N=9612) FGS (N=8121) CFS (N=2826)
Respondents reported the race/ethnicity
member with IDD. The percentages demonstrate the percentage of those reporting to be one of the three categories.
61.8% 67.7% 63.6% 62.8% 52.4% 65.1% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% AFS** FGS
Family member with ID has enough supports (for example, support workers, community resources) to work or volunteer in the community
White Black Hispanic **= p<=.001 *= p<=.01
90.2% 91.2% 87.5% 86.9% 89.7% 80.3% 76.5% 83.9% 74.1% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% AFS** FGS** CFS
Family member takes part in activities in the community (For example, going to a restaurant, movie or sporting event)
White Black Hispanic **= p<=.001 *= p<=.01
78.2% 79.8% 82.4% 71.9% 78.8% 71.2% 67.8% 70.3% 81.2% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% AFS** FGS* Chid Fam. S*
Are there resources that family can use that are not provided by the I/DD agency? (For example, recreational programs, community housing, library programs, religious groups, etc.)
White Black Hispanic **= p<=.001 *= p<=.01
17.7% 16.3% 21.1% 29.4% 29.4% 23.4% 19.6% 19.9% 24.6% 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% 90.0% 100.0% AFS** FGS** CFS
Does s your r fa family y take e part in any fa family-to to-family mily net etwor
ks in your r commu munity? nity? (For r example, e, Pa Parent nt to Pa Parent nt, siblin ing g net etwor
ks, et etc.) )
White Black Hispanic **= p<=.001 *= p<=.01
Black k and Hi Hispa panic nic respon
dents s more likely ely to be i in guardi dian ansh ship Black k respon
dents more likely ely to be diagnose nosed d with h psycho hoti tic c disor sorde der Hispan anic c respo ponden ndents ts less s likely ely to speak k English sh as the preferred rred language ge and less s likely y to use spoken en communi nica cati tion White e respon
dents s are more likely ely to have a paid d job in the communi nity ty Hispan anic c respo ponden ndents ts more likely y to use a s self f direct ected ed suppo ports ts option
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Hi Hispanic nic respo ponden ndents ts less s likely ely to have friends nds that are not
f or fa family and less s likely ely to be ab able to date witho hout ut restri tricti ctions
Hispan anic c respo ponden ndents ts are less s likely ely to have their r rights hts respect ected ed
e their ir mail l read ad withou thout t permiss missio ion
ere e are e rules es about
sitor
Africa can n America can n respon
dents more likely ely to have gone to a r religiou
s servi vice/spi e/spiri ritu tual l practi tice ce in the past t month White e respon
dents s are more likely ely to have gone on va vacati tion
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Families of Hispanic service recipients less likely y to report that their family member has enough support to work or volunteer in the community. (AFS) Families of Hispanic service recipients less likely y to report that their family member participates in activities in the community (all Family Surveys) Families of Hispanic service recipients less likely y to report that their family has access to community resources that are not provided by the DD agency.(AFS & FGS) Families of Black service recipients less likely y to report that their family has access to community resources that are not provided by the DD agency. (CFS) Families of Black service recipients less likely y to report that their family participates in Family-to-Family networks. (AFS & FGS)
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characteristics by which respondents may differ
contribute to these differences.
from the state agency. Results cannot be generalized to the IDD population as a whole.
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President Emerita
Valerie ie Bradle dley
Vbradley@hsri.org
HSRI Project Director for NCI
Alixe Bonar ardi di
Abonardi@hsri.org
www.hsri.org www.nationalcoreindicators.org
TM TM