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All-Party Parliamentary Group Meeting New congenital heart disease review Professor Sir Bruce Keogh, National Medical Director Michael Wilson, Programme Director The Challenge The Best Outcomes Consistently Meeting Standards The


  1. All-Party Parliamentary Group Meeting New congenital heart disease review Professor Sir Bruce Keogh, National Medical Director Michael Wilson, Programme Director

  2. The Challenge • The Best Outcomes • Consistently Meeting Standards • The Best Patient Experience

  3. The Challenge (2) • Standards Driven • No Pre-conceived Answers • The Health of the Service • Delivery at Pace Inclusivity • Scope

  4. Scope In scope a) Improving the quality of care for people with suspected or diagnosed CHD along the whole patient pathway: • Fetal diagnosis of CHD • Pre-natal care • Care for children and young people • Transition from children’s services to adult • Care for adults • End of life care b) Care and support for families suffering bereavement or poor outcomes c) All care for CHD commissioned by the NHS for people living in England.

  5. Scope (2) To be decided • Relationship to devolved administrations? • Intensive care services? • Other related clinical services?

  6. Developing the Proposition No decisions have been taken What do we need to do? 1. Service specification 2. Activity / Capacity 3. Change management approach

  7. Openness & Transparency • Blog • Engagement Groups • Publication Scheme • Targeted Engagement • Managing Interests • Consultation on Specification • Seeking Input As We Go

  8. Decisions and advice Decision Making NHS England Board Advisory Board Task and Finish Engagement Group Programme Board Clinical Advisory Panel Patient and Clinical Clinician Group Provider Group Public Group Reference Groups

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