Presentation to Adult Social Care, Health and Wellbeing - - PowerPoint PPT Presentation

Presentation to Adult Social Care, Health and Wellbeing Sub-Committee

Autism Strategy - Update

12 March 2020

Scott Woodhouse Strategic Commissioning Manager

Areas to cover

• Work undertaken to date
• Initial findings
• High level themes
• Governance
• Regional work

Background

• Autism Act 2009
• DH – Fulfilling and rewarding lives, national

plan (2010)

• DH – Think autism, update to national plan

(2014)

• DHSC – Consultation on a review of the

national autism strategy (2019)

School Census 2019

ASD as Primary Need 2019 382

Children with special education needs in education KS1 to age 18 79% Increase between 2016 -2019

ASD Population level changes Adults

Reduction in overall numbers over time Male / female split

2020 2035 Age 18-64 1197 1158 Male 1071 1039 Female 126 119

ASD Population level changes 65+

Increase in overall numbers over time Male / female split

2020 2035 Age 65+ 386 510 Male 338 448 Female 47 62

Work to date

• Established a Strategy working group of

health, social care, education, organisations that support people with autism and their families and also carers of people with autism

• Mapped current support, services and gaps

and issues

• Inclusion North held focus groups with

families to share initial findings

• Workshop held to agree high level priorities
• Draft Action Plan is being developed

What people are telling us - 1

• Need support to access diagnosis faster
• Its should be about needs, not diagnosis – the

diagnosis gets you nothing

• Support people with autism need support to

understand what it means to live with the condition and the impact on their families

• There needs to be awareness raising in

universal and specialist services – so people with autism can be supported appropriately

• People with autism and families want to be

listened to and taken seriously

• Want to have inclusive communities -

including school communities, where people are welcome, safe and able to contribute

• There is support available for people who are

going through life changes – small and large

What people are telling us - 2

Governance

Health and Wellbeing Board Future Care Programme Board Learning Disability / Autism Strategic Group Autism Group Parent / Carers and User Voice Links to Transforming Care - NHS

Role of the Autism Group is to progress the action plan, identify gaps and approach, ensure it is wider than adults with a disability and also covers autistic children

Regional work

• NHS England / Transforming Care team

leading on regional work with a focus on:

• Clear diagnostic pathways with timely access
• Post diagnostic support is available
• Competent staff team in place
• Crisis support available (with access to mental

health support)

• Transition into adulthood
• Education, employment and housing
• pportunities – fair and equitable

Next Steps

• Produce draft strategy - May 2020
• Develop Action Plan
• Final version - Summer 2020
• Establish task and finish groups