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See discussions, stats, and author profiles for this publication at: https://www.researchgate.net/publication/327781106 Presentation for the Brazilian Federal Council for Medicine on public campaigns ad patient advocacy Presentation September


  1. See discussions, stats, and author profiles for this publication at: https://www.researchgate.net/publication/327781106 Presentation for the Brazilian Federal Council for Medicine on public campaigns ad patient advocacy Presentation · September 2018 CITATIONS READS 0 13 1 author: Valeria Guimaraes ENNE-ENDOCRINOLOGIA E NEFROLOGIA 30 PUBLICATIONS 1,121 CITATIONS SEE PROFILE Some of the authors of this publication are also working on these related projects: Public campaigns and patient advocacy View project All content following this page was uploaded by Valeria Guimaraes on 20 September 2018. The user has requested enhancement of the downloaded file.

  2. Endocrinologia e seus ciclos

  3.  Um grupo de endocrinologistas que decidiu educar sua comunidade......

  4. Activities for Patients Public Campaigns

  5. Activities for Patients Diabetes technology / Islets of Langerhans transplants Alberto Hayek , MD (San Diego) Everything you wanted to know about growth hormone (GH) and never had the opportunity to ask Berenice Mendonça, Ana Claudia Latrônico, Ivo Arnhold (University of Sao Paulo)

  6. Diabetes technology Islets of Langerhans Transplants

  7. Everything you wanted to know about GH (Growth Hormone) and never had the opportunity to ask

  8. SBEM (Brazilian Society of Endocrinology and Metabolism) SBEM and the Public Sector Public Campaigns

  9. National day dedicated to adequate nutrition and ideal weight

  10. Public Campaigns The T connection - 1999 The D connection - 2000 National day dedicated to adequate nutrition and ideal weight - 1999

  11. SB SBEM EM - DF DF The T Connection Project The relationship between the Thyroid and ERT (Menopause)

  12. SBEM M - DF DF SBEM M - GO GO SBEM M - MG MG The D Connection Project The relationship between the thyroiD and Dyslipidemia

  13. Objectives 1. Present the evidence of thyroid diseases in discussions with the general public and physicians who are not specialists in the area. Emphasis of the discussion will be hypo/ hyperthyroidism. 2. Teach how to do a self-examination.

  14. The Self- Examination Procedures Materials needed : Glass of water and preferably a mirror with a handle 1. Hold the mirror and find the area under the Adam’s Apple on your neck. Your thyroid gland is located there. 2. Bend your head back so that the region is more exposed. Bring the mirror close to the area. 3. Drink and swallow some water. 4. When you swallow the thyroid will move up and down. Observe to see if there are any protuberances or nodules on the thyroid. Do not mistake the thyroid for the Adam’s Apple. Repeat the procedure various times until you are sure you have examined the area carefully. 5. If there are any protuberances see your endocrinologist.

  15. The Self- Examination Purposes a. To understand that we all have a thyroid gland. b. To locate its position in the cervical region c. To understand that symptoms may be related to a dysfunction. d. To understand that diagnosis and treatment should be done by an endocrinologist. e. Through education the proper authorities can be asked to resolve problems related to the dysfunction.

  16. Materials and Methods 1 ) Awareness groups - Doctors/medical students - Newsmedia/ newspapers, radio and television - Private sector (health plans/drugstores/car dealers etc..) - Clinics and laboratories - Federal District government agencies - Religious groups, volunteers, scouts, etc...

  17. Materials and Methods 2) Identification of the public to be targeted Women over 40 : creation of public opinion (T) Men (D) Locations: Drugstores, churches, newspapers, gas stations, supermarkets, central bus station, city parks

  18. Materials and Methods 3) Indirect means of disbursing information - Pamphlets - News media : newspapers, radio and television - Institutional propaganda :the self-examination

  19. An actress shows how to do the self- examination ( click inside the square) First propaganda

  20. An actress shows how to do the self- examination ( click inside the square) Second propaganda

  21. The T Connection Pamphlet Life is like a butterfly, beautiful and delicate FRONT AND BACK PAGE

  22. The D Connection Pamphlet FRONT PAGE

  23. The Pamphlet (Inside) Protect your life A simple thyroid check can save it ! Explanations on the importance of the Thyroid Symptoms of hypo and hyperthyroidism

  24. The T connection Pamphlet Inside ( Variable part depending on the theme) Thyroid diseases in women Thyroid diseases in men and children

  25. The D Connection The thyroid and excess fat in the blood The diagnosis and treatment

  26. Materials and Methods 4) Indirect means of discussing the problem Iodine in the salt of Brazil Neonatal Screening Subclinical Hypothyroidism

  27. The Campaign in the streets Setting up for Thyroid Examinations At the information center people fill out a questionnaire before the thyroid examination. The self- examination is taught to the public.

  28. The Questionnaire The questionnaire asks questions related to personal information, medical past history, possible symptoms, and where they heard about the campaign.

  29. The campaign is set up in various public locations such as in supermarket parking lots and bus stations.

  30. The Campaign Our first lady learning the self- examination The public is examined by various members (Endocrinologists and students ).

  31. The Campaign The self- examination is taught to women and men alike

  32. Results of the T Connection Approximately 3500 examinations were performed. 35% showed morphological alterations: more than half of these with dysfunctions. - Lists of endocrinologists at SBEM (Phone # and Society home page address were distributed) . - Results of the study were distributed to various entities including the Endocrine Society, AACE, ATA, the World Health Organization and the Ministry and Secretaries of Health.

  33. Results The society receives a thank you letter from a woman who had a thyroid nodule discovered in a supermarket parking lot . She saw her specialist in time (Papillary Cancer). She pleads with the society to continue and intensify its work.

  34. Results: Supporting a healthy life. “Quero ...... principalmente A woman receives a pamphlet Deus agradecer à que guiou aquela senhora que deu o panfleto in a church from a complete à minha sobrinha e aos idealizadores e organizadores da stranger about campanha realizada . Este ano ela se realizará novamente em Agosto, the need to do the self- no dia 26, não poderei participar pois estarei viajando, mas esteja examination and onde estiver, estarei apoiando-a fervorosamente e espero que ela se decides to do the exam. She repita todos os anos e ajude várias pessoas assim como me ajudou. ” finds nodules REGINA AMÉLIA and later was diagnosed as PINHEIRO GALVÃO . having thyroid cancer . Em 18 de agosto de 2000.

  35. The attorney general requests information Results about the iodine problem in salt. Carta ministério público

  36. Results A local newspaper pressures the Ministry of Health to determine why some salt had a low iodine content. “A amarga tragédia do sal” , Correio Braziliense, 10/30/99

  37. Results “Under Investigation” The headlines of the newspaper ask for an explanation from the Minister of Health Correio Braziliense, 10/28/99

  38. Results “Six months for an emergency : The Ministry of Health has ignored earlier warnings ” Correio Braziliense, 10/27/99

  39. Results “ The Minister of Health warns the manufacturers of salt that they will be shut down if they don’t place the correct amount of iodine in their product. ” Correio Braziliense, 10/29/99

  40. Results “ The Ayrton Senna journalism award is given to the newspaper for its series of articles exposing the iodine deficiency in salt and its consequences ” Correio Braziliense, 03/22/00

  41. Respect and improved credibility The organizers receive the congratulations of the news media for volunteer work Jornal de Brasília 29/8/00

  42. Respect and improved credibility The Brazilian Medical Association congratulates the organizers of the campaign

  43. Who is being helped by the campaign? - General public - patients - Supporters of the campaign - News media - Analytical Laboratories - Ultrasound clinics - Nuclear medicine clinics

  44. Who was helped? SBEM - Improved credibility and respect - Medical Speciality -More patients for Endocrinologists ( Endocrinologists are heading for private practice and leaving health insurance links)

  45. Revista Foco, 50 ed. 11/99

  46. O trabalho foi selecionado como um dos seis melhores abstracts do ATA SB SBEM EM - DF DF Vicente Nunes Correspondente Internacional Washington CB-NY 12 a 15 de Setembro de 2001

  47. SBEM SB EM - DF DF 11 de Setembro de 2001

  48. Estratégia Global sobre Dieta, Atividade Física e Saúde da Organização Mundial de Saúde Relatório do Grupo de Apoio Técnico do Ministério da Saúde

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