Our Agenda 1 immediate of public policies. private & state - PDF document

Advocate Collaborate Educate NJCDD Introduction Our Vision What are Developmental Disabilities? Five-Year Plan Programs Grants Collaborations & Partnerships Publications Contact Us 12/19/2018 Our Agenda 1

immediate of public policies. private & state agencies , advocacy organizations, Disability Rights NJ, plus greater independence in their communities. family The NJCDD fosters leadership and advocacy for people with disabilities working towards members a voice in the planning and implementation developmental disabilities (I/DD) and their family NJCDD gives individuals with intellectual and mandated disability rights and advocacy organization. Developmental Disabilities (NJCDD) is a federally- and territories, The New Jersey Council on Assistance and Bill of Rights Act (DD Act) in all US states Established in 1971 by the Developmental Disabilities 12/19/2018 Who we are Members, 40% of Organizations members are and Public Meetings Boggs Center on and NJCDD has Developmental Disabilities 30 members appointed by the Governor 60% of members are people with developmental disabilities or 2

Manifests before age 22. learning, mobility, self-direction, and capacity Is likely to continue indefinitely. Is attributed to an intellectual or physical impairment, or a combination of both. Limitations in three or more areas of life, self- care, receptive and expressive language, independent living or economic self-sufficiency. What are Reflects the need for a combination and sequence generic care, treatment, or of special interdisciplinary or other services, which are of lifelong or extended duration and are individually planned and coordinated. What are citizenship as does any other person. responsibilities, opportunities of control over their own lives; NJCDD’S VISION NJCDD’S VISION That all individuals with developmental disabilities: are contributing members of their neighborhoods and communities; make real choices and have have the freedom to strive, excel, and make mistakes; are in a position to achieve personal goals; are in a position to influence policy and process decisions that affect their lives; have the same rights, privileges, 12/19/2018 developmental disabilities ? developmental disabilities ? 3

PEOPLE FIRST NJ Disability Advocacy, Leadership Development, Peer Support Fellowship, efforts, on their own terms, and with leadership that is chosen by them. Bergen County People First Burlington County People First Camden County People First Hunterdon County People First Morris County People First Major Activities People First NJ Chapters: Disability Awareness and Education, Community Inclusion NJ chapters across the state. People First NJ’s philosophy states that all For more information www.facebook.com/PeopleFirstNJ jaymes.brill@njcdd.org | 609-984-4513 JaymesBrill , People First New Jersey Coordinator njcdd.org/peoplefirstnj NJCDD PROGRAMS people with i/DD are capable and entitled to pursue their own advocacy In 2014, the NJCDD and self-advocates establish county-wide People First leadership and advocacy skills. Advocacy people with I/DD. Direct Support Staffing Issues Employment The Developmental Disabilities Assistance and Bill of Rights Act mandates that all DD Special Education Five-Year Plan Information Councils operate under a Five-Year Plan. The plan focuses on key issues leading to systems Self-Advocate and Family Training and Housing Transportation Health and Wellness NJCDD’s programs are developed to meet the goals of the NJCDD’s Five-Year Plan. These programs create a supportive environment while building change and capacity building to promote self-determination, integration, and inclusion of 12/19/2018 • • 4

njcdd.org/youth-leadership-program kyoko.coco@njcdd.org | 609-341-3112 4: Essex 5: Hunterdon, Middlesex, Mercer 7: Burlington, Camden 8: Cumberland, Salem, Gloucester 9: Atlantic 10: Cape May For more information Kyoko Coco, Statewide Family Support Coordinator 2: Bergen, Hudson, Passaic rebekah.novemsky@njcdd.org | 609-984-4510 Rebekah Novemsky, Statewide Family Support Liaison njcdd.org/the-regional-family-support-planning-councils | www.facebook.com/njfspc & Self-Determination? For more information Youth Leadership Program Coordinator, Frank Latham frank.latham@njcdd.org | 609-292-3453 3: Somerset, Union 6: Monmouth, Ocean 1: Sussex, Warren, Morris Regional Map of families. to policymakers about the needs The Regional Family Support Planning Councils (RFSPC) were established provide information and feedback current family support issues, and services, inform families about evaluate I/DD supports and RFSPC members monitor and by Family Support Act of 1993 and coordinated by the NJCDD. The RFSPC are volunteers and family members caring for a person with I/DD at home. RFSPC also works closely with: 12/19/2018 • NJ Division of Developmental Disabilities (DDD) • Department of Children & Families (DCF) • Division of Disability Services (DDS) • Ombudsman • Other state agencies  Tips for Leadership & Team Work  Public Speaking  How Government Works  You Can Vote  Person-First Language  What is Self-Advocacy  Disability Culture  Developing A Student Profile 5

RECENT GRANTS Advocate for opportunities and supports that promote self-determination, developmental disabilities. services and broaden opportunities for individuals with Plan to organizations and programs that provide NJCDD awards grant funding outlined in our Five-Year NJCDD GRANTS PARTNERS IN POLICYMAKING independence, and inclusion in all aspects of community life Nearly 500 Partners graduated in NJ Create meaningful positive changes in our state Work alongside policymakers and state agencies Be members of advisory boards and committees Jamie Zahid, Project Staff at the Boggs Center processes at the local, state, and national level. Brought to New Jersey by the NJCDD in 1996, the Partners in Policymaking program is a nationally-recognized leadership and advocacy training program for adults with developmental disabilities and their families. Participants (Partners) gain https://rwjms.rutgers.edu/boggscenter/projects/NJPartnersinPolicymaking.html knowledge and skills that allow them to influence public policy. jaime.zahid@rutgers.edu | 732-235-9613 During this eight-month program, Partners have access to the latest information on disability issues and best practices in the field of advocacy, which they learn from nationally-known experts. They become familiar with policymaking and legislative For more information 12/19/2018 • • • • • 6

Education NJ Self-Advocacy Disabilities Advocacy Network (DDAN) NJ Transit ADA Taskforce & Citizens Advisory Committee NJ Coalition for a DSP Living Wage NJ DDD Family Advisory Council (FAC) Advisory Board common goals can we hope to create positive change and significant progress in our community. NJ Department of Children Families NJ Protection and Advocacy DD Advisory Board NJ Family Support Coalition Children’s InterAgency Coordinating Councils NJ Dept. of NJ Developmental community groups, and volunteer organizations, believing that only by working together toward reaching Reflect the values, preferences, languages and cultures of the engaged communities Successful Community Innovation Projects will : Be related to the Council’s Five-Year Plan Focus on advocacy, local capacity building, systems change, social change, equal access, community competence or education of families and self-advocates Create and strengthen relationships with local associations and groups Position people with I/DD or their families as active and engaged participants Have a plan for dissemination of successful practices The NJCDD collaborates extensively with advocacy groups, public and private agencies, educators, Leadership Training community-based projects that provide meaningful benefits for people with Funds individuals with I/DD and their families to attend conferences, seminars, and other advocacy training/information building activities. Support Fund Community Innovation Projects (CIP) fund new and innovative local Community Innovation Projects developmental disabilities and their families. 12/19/2018 Collaborations and Partnerships Collaborations and Partnerships 7

For more information contact : NJCDD Presenter Frank Latham | frank.latham@njcdd.org | 609-292-3453 join us @ prepared for a natural disaster. with I/DD the skills need to presentation guides people Emergency Preparedness in the community and media. the word ‘retard’ and ‘retarded’ awareness for the eradication of R-Word presentation raises people with I/DD and how to stop it. recognize bullying targeted towards techniques school aged children can Bullying presentation focuses on Together We Are Stronger Than njddan.org Quality Assurance KEY ISSUES advance the rights,opportunities, and service systemsfor people withI/DDin New Jersey. The New Jersey Developmental Disabilities Advocacy Network brings advocates together to protect and 12/19/2018 • Person-Centered Services • Medicaid • Employment • Self-Directed Services • SystemFunding • Communications • Housing • Health, Safety,& • Transportation 8