NHS GGC Safe Haven A local Safe Haven Roma Armstrong Senior R&D - - PowerPoint PPT Presentation
NHS GGC Safe Haven A local Safe Haven Roma Armstrong Senior R&D Manager Governance of NHS GGC safe haven Concept Approval from Board Corporate Security Management Team High level + One-off Approval from Board Caldicott CG
CG principles Core datasets
Risk to patients
(NHS GGC)
(Glasgow University)
Db1 Db5 Db2 Db3 Db4 Clinical Data sets Clinical Portal Patient Care TrakCare Individual patient view (CHI) Clinical Data Warehouse (CDW) CHI linked Safe Haven Data Repository Clinical Data Stores efeasibility eRecruitment eData Safety Epidemiology Pharmaco-epi Real world cohorts Health economics Data flows, extraction and staging Identifiable Pseudo-anonymised N H S
Application approved Local Privacy Advisory Committee Make Application Dataview created Researcher access dataview via dumb terminal or remote access Researchers
Project :Maternity-related outcomes in women with a diagnosis of non- affective psychotic disorder: a data linkage study in two Scottish cohorts. Research question What are the maternity related outcomes of women with a lifetime diagnosis of psychotic disorders? Project Pattern and prevalence of Drinking alcohol in Pregnancy by infant biomarkers Research question To describe the pattern and prevalence of excessive alcohol consumption by pregnant women in Glasgow during the second and third trimesters of pregnancy by assay of FAEEs in meconium. Project :Children entering foster care: what are they like and how do they contribute to foster care relationships?. Research question to identify child characteristics which relate to how a child is able to form relationships with their foster carer
Datasets in Safe Haven – SMR00 - Outpatient Attendance – SMR01 – Acute inpatient & Day Care – SMR02 – Maternity – SMR04 – Mental Health – CHI – GG&C patient population (1.3 million) – GRO – Births and deaths date for GG&C – ePrescribing – encashed prescriptions for Glasgow – Heart Failure – locally held national Heart Failure database – Rheumatology – local clinical database – SCI DC – GGC population of national Diabetic database – SCI Store results for GGC – Parkinson – local clinical database for Movement disorders – LES/Keep Well data – Weight Management – PsyCIS – Clozapine – TRAK - A&E, Outpatients – Lung Cancer – SERPR – GGC element of Regional Renal application – Pain Management – Homecare Database – Scottish Birth Records – PNBS (Pregnancy booking & newborn screening data) – Substance Abuse Infants (Infants born to substance abusing mothers in PRMH) – CORE-net (Anxiety & Depression Questionnaires data)
ADVANCE of attending clinics or surgery
inclusion/ exclusion criteria
adding information from referral letters
patients identified as likely to fit criteria