Netherlands Autism Register Marlies van Wijngaarden, MSc Research - PowerPoint PPT Presentation

Feb 11, 2024 •130 likes •278 views

Netherlands Autism Register Marlies van Wijngaarden, MSc Research & Project management NAR Netherlands Autism Register Collaborative project of: VU University Dutch Association for Sander Begeer Autism Marlies van Wijngaarden

Netherlands Autism Register Marlies van Wijngaarden, MSc Research & Project management NAR
Netherlands Autism Register Collaborative project of: VU University Dutch Association for Sander Begeer • Autism Marlies van Wijngaarden • Bernadette Wijnker • Marianne Vreugdenhil • Swanet Woldhuis • Hans Koot •
Netherlands Autism Register Longitudinal register Data of ± 2500 respondents with autism • spectrum disorders (ASD) Annual online survey, so far data from • 2013, 2015, 2016 & 2017 1837 active respondents, average • response rate each year: ± 65% (≈ 1200)
Netherlands Autism Register Topics Demographics, family • Diagnosis, comorbidity, treatment • Living, education, employment • Social skills, relationships, wellbeing • Specific topics (e.g. sensory perception, • sexuality, special interests, cognitive functioning)
Netherlands Autism Register Demographics Gender • ♀ ♀ ♂ ♂ Children (18-) Adults (18+)
Netherlands Autism Register Demographics Age range (4y0m – 84y8m) • Girls (18-) Boys (18-) Woman (18+) Man (18+) N 120 510 630 577 Av. age 13,1y 13,1y 40,1y 44,9y
Netherlands Autism Register Respondents One respondent per person with ASD Adult under legal Adult (16+) Child (16-) representation (16+) Parent/caregiver Legal representative Self report report report N = 89 (5%) N = 1132 (62%) N = 616 (33%)
Netherlands Autism Register Results Factsheets •
Netherlands Autism Register Participation & Individual feedback “Together we know more”
Netherlands Autism Register Scientific output
Netherlands Autism Register “Clinical” output
Netherlands Autism Register Collaborations UvA • UMCG • King’s College London • University of New South Wales • Rutgers stichting • NTR • NHB-Psy •
Netherlands Autism Register NEW! Control group “To help people WITH autism, we are looking for people WITHOUT autism”
Netherlands Autism Register Thank you for you time! Check www.nederlandsautismeregister.nl for more information!

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