Netherlands Autism Register Marlies van Wijngaarden, MSc Research - - PowerPoint PPT Presentation

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Feb 11, 2024 130 likes •279 views

Netherlands Autism Register Marlies van Wijngaarden, MSc Research & Project management NAR Netherlands Autism Register Collaborative project of: VU University Dutch Association for Sander Begeer Autism Marlies van Wijngaarden

SLIDE 1

Netherlands Autism Register

Marlies van Wijngaarden, MSc

Research & Project management NAR

SLIDE 2

Netherlands Autism Register

Collaborative project of:

VU University

Sander Begeer
Marlies van Wijngaarden
Marianne Vreugdenhil
Hans Koot

Dutch Association for Autism

Bernadette Wijnker
Swanet Woldhuis

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Longitudinal register

Data of ± 2500 respondents with autism

spectrum disorders (ASD)

Annual online survey, so far data from

2013, 2015, 2016 & 2017

1837 active respondents, average

response rate each year: ± 65% (≈ 1200)

Netherlands Autism Register

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Topics

Demographics, family
Diagnosis, comorbidity, treatment
Living, education, employment
Social skills, relationships, wellbeing
Specific topics (e.g. sensory perception,

sexuality, special interests, cognitive functioning)

Netherlands Autism Register

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Demographics

Gender

♂ ♀ ♂ ♀

Children (18-) Adults (18+) Netherlands Autism Register

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Demographics

Age range (4y0m – 84y8m)

Girls (18-) Boys (18-) Woman (18+) Man (18+) N 120 510 630 577

Av. age

13,1y 13,1y 40,1y 44,9y

Netherlands Autism Register

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Respondents

One respondent per person with ASD

Adult (16+) Child (16-) Adult under legal representation (16+) Self report Parent/caregiver report Legal representative report N = 1132 (62%) N = 616 (33%) N = 89 (5%)

Netherlands Autism Register

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Results

Factsheets

Netherlands Autism Register

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Participation & Individual feedback

“Together we know more”

Netherlands Autism Register

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Scientific output

Netherlands Autism Register

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“Clinical” output

Netherlands Autism Register

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Collaborations

UvA
UMCG
King’s College London
University of New South Wales
Rutgers stichting
NTR
NHB-Psy

Netherlands Autism Register

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NEW! Control group

“To help people WITH autism, we are looking for people WITHOUT autism”

Netherlands Autism Register

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Thank you for you time!

Check www.nederlandsautismeregister.nl for more information!

Netherlands Autism Register