LIVING Sherry L. Dupuis , Ph.D. Professor and Co-Director - - PowerPoint PPT Presentation

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LIVING Sherry L. Dupuis , Ph.D. Professor and Co-Director - - PowerPoint PPT Presentation

Oct 16, 2022 278 likes •775 views

Just Dance with Me The Power of Relationships in LIVING Sherry L. Dupuis , Ph.D. Professor and Co-Director Partnerships in Dementia Care Alliance In nursing homes, assisted living facilities and adult day programs we supply our elders

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‘Just Dance with Me’ The Power of Relationships in

LIVING

Sherry L. Dupuis, Ph.D.

Professor and Co-Director Partnerships in Dementia Care Alliance

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In nursing homes, assisted living facilities and adult day programs we supply our elders with the necessities

  • f survival, but they are too often

deprived of the necessities of LIVING

(Fagan, 2003, p. 127)

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Being Me Being With Having Fun Growing and Developing Making a Difference Seeking Freedom Finding Balance

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Being ing Me Me

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Being ing With

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Seek eking ing Free eedo dom

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Finding ding Balance lance

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Making ng a a Diffe ference rence

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Growi wing ng & & Develo eloping ping

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Having ing Fun

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Personal Reflection

  • What would YOU need to LIVE well – to

flourish – with dementia?

  • Use the post-it notes on your table to

write down what you would need to have a good life with dementia

  • Post your ideas in the centre of your

table

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“Many think it is the disease that causes us to withdraw, and to some extent I believe this is

  • true. But, for many of us, we withdraw because

we are not provided with meaningful

  • pportunities that allow us to continue to

experience joy, purpose, and engagement in life.” Person living with Dementia

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Researchers in Collective Disruption

Sherry Dupuis, Christine Jonas-Simpson, Julia Gray, Gail Mitchell, and Pia Kontos

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Ideas/ Values Time Space/Physical Environment People Animals/Other Living Beings Higher Being(s) Objects Our Bodies

Experiences IN Relationship

Relational Context

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L

Team Members

Workplace Practices Local Community Political System

Adapted HATCh Model, Quality Partners of Rhode Island (2006)

Immediate Environment

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https://www.youtube.com/watch?v=-HA8MFfl5z0

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L

Team Members

Workplace Practices Local Community Political System

Adapted HATCh Model, Quality Partners of Rhode Island (2006)

Immediate Environment

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Small Group Reflection #1

  • On your tables, locate the handout entitled ‘Small

Group Reflection #1’

  • Choose a note taker
  • Together identify and document specific threats to

LIVING for persons with dementia that you know

  • f or have witnessed/experienced at different

relational layers (i.e., individual, organisational, community, political, broader cultural)

  • After 10 minutes, we will share some examples

with the larger group

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Individual Layer Threats to LIVING

  • Assumptions/misunderstandings
  • Task focus
  • Focus on disease, symptoms and

bodies

  • Attitudes “it’s not my job”
  • Sense of powerlessness
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Organisational Layer Threats to LIVING

  • A risk averse culture
  • Focus on routines and structured activities
  • Care practices that prioritise physical care
  • No opportunities for relationship building
  • Institutional physical environments
  • Traditional organisational structures
  • Reliance on quality indicators misaligned

with supporting LIVING

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Community Threats to LIVING

  • Community prejudice

–Ageism –Stigma –Fear

  • Lack of meaningful activities and
  • pportunities in the community
  • Lack of access to community programs and

services

  • Unwelcoming environments
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Systemic/Political Layer Threats

  • Measurement tools/indicators that focus on

deficit, disease and physical care

  • Policies misaligned with supporting LIVING
  • Compliance officers/regulators with a focus on

physical care and clinical treatments

  • Lack of incentives for organisations to change
  • Funding models that privilege managing

bodies over supporting LIVING

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Challenging the Culture

https://www.youtube.com/watch?v=saRWpSqQpPA

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https://vimeo.com/109648409

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https://www.youtube.com/watch?v=hO8MwBZl-Vc

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Small Group Reflection #2

  • On your tables, locate the handout entitled ‘Small

Group Reflection #2’

  • Choose a note taker
  • Together identify specific things that YOU can do

to support LIVING for persons with dementia

  • What changes would need to happen to support

LIVING and how can you work to facilitate those changes?

  • What possibilities do you envision?
  • After 10 minutes, we will share some examples

with the larger group

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Life is for LIVING

So So DAN ANCE CE

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You and me, our life is driftin' along Watchin' the world as it's singin' its song High above, someone is callin' to me Life is for livin' and livin' is free

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You to me, are like the sun in the sky See how you fly, you have wings of your own You and me, our love will last without end Ride with the wind, won't you follow me home?

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Turn around and see the circles we spin And we're takin' our chances on where we begin Up above, the rain is fallin' on me Life is for livin' and livin' is free

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You to me, are like the sun in the sky See how you fly, you have wings of your own You and me, our love will last without end Ride with the wind, won't you follow me home?

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Takin' up time tryin' to write a line till the break of day Given a sign, can you make it rhyme, tell me what to say? Makin' it fine, can you ease my mind, help me drift away?

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Turn around and see the circles we spin Takin' our chances on where we begin Up above, the rain is fallin' on me Life is for livin' and livin' is free

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You to me, are like the sun in the sky See how you fly, you have wings of your

  • wn

You and me, our love will last without end Ride with the wind, won't you follow me home

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YOU can do it! WE can do it! Create a relational culture

  • f LIVING
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Thank You!

PartnershipsInDementiaCareAlliance CrackedonDementia @pidcalliance @crackeddementia Sherry L. Dupuis, Ph.D. sldupuis@uwaterloo.ca 519-888-4567, ext. 36188 http://www.uwaterloo.ca/pidc

Life is for Livin’ by Barclay James Harvest from the Album Turn of the Tide (1981)

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References

Dupuis, S.L., Whyte, C., Carson, J., Genoe, R., Meschino, L. & Sadler, L. (2012). Just dance with me: An authentic partnership approach in understanding leisure in the dementia context. Special issue on Leisure, Health and Disability of World Leisure Journal, 54(3), 240-254. Dupuis, S.L., Gillies, J., Carson, J., Whyte, C., Genoe, R., Loiselle, L., & Sadler, L. (2012). Moving beyond ‘patient’ and ‘client’ approaches: Mobilising authentic partnerships in dementia care. Dementia, 11(4), 428- 450. Dupuis, S.L., McAiney, C., Fortune, D., Ploeg, J., & deWitt, L. (2014). Theoretical foundations guiding culture change: The work of the Partners in Dementia Care Alliance. Dementia. doi:10.1177/1471301213518935

  • Dupuis. S.L. (2015, October). From “challenging behaviours” to relational understandings of personal
  • expressions. Invited keynote at the 26th Provincial Conference of the Alzheimer Society of Nova Scotia:

Shifting focus in dementia care. Halifax, Nova Scotia, Canada. Dupuis, S.L. (2016, January). Relational understandings of personal expressions. Invited Webinar for BrainXChange. Fagan, R. (2003). The Pioneer Network : Changing the culture of aging in America. Journal of Social Work in Long-Term Care. 2(1/2), 125-140. Quality Partners of Rhode Island. (2006). The holistic approach to transformational change. Nursing Home Quality Improvement Support Centre. Swaffer, K. (2014). Australian Journal of Dementia Care. Retrieved from: http://journalofdementiacare.com/reinvesting-in-life-is-the-best-prescription/.