HSPC and CIIC September 13, 2018 1 Agenda Why semantic - - PowerPoint PPT Presentation

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HSPC and CIIC September 13, 2018 1 Agenda Why semantic - - PowerPoint PPT Presentation

HSPC and CIIC September 13, 2018 1 Agenda Why semantic interoperability? What would the architecture of an interoperable system look like? Background and history of HSPC and CIIC The merger of HSPC and CIIC Current activities


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HSPC and CIIC

September 13, 2018

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Agenda

  • Why semantic interoperability?
  • What would the architecture of an interoperable system look like?
  • Background and history of HSPC and CIIC
  • The merger of HSPC and CIIC
  • Current activities and future plans

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Why? “To help people live the healthiest lives possible.”

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Why interoperability ?

  • Improve the quality and safety of care
  • Decrease the cost of care
  • Enable a Learning Health System
  • Make providers happier and more effective
  • Make patients happier and healthier
  • There are many more reasons…
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Patient

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Sir Cyril Chantler

James # 6

Medicine used to be simple, ineffective, and relatively safe Now it is complex, effective, and potentially dangerous.

Neal G. Reducing risks in the practice of hospital general medicine. In Clinical Risk Management, 2nd edition. British Medical Journal, 2001. Chantler, Cyril. The role and education of doctors in the delivery of health care. Lancet 1999; 353:1178-81.

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Core Assumptions

‘The complexity of modern medicine exceeds the

inherent limitations of the unaided human mind.’ ~ David M. Eddy, MD, Ph.D. ‘... man is not perfectible. There are limits to man’s capabilities as an information processor that assure the occurrence of random errors in his activities.’ ~ Clement J. McDonald, MD

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Medical errors

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Deaths during inpatient admissions: ~251,454

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Heterogeneous Systems

Others…

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FHIR Profiles from CIMI detailed clinical models

Real Impact

  • Occult sepsis
  • Community Acquired Pneumonia
  • Pulmonary Embolus
  • ICU Glucose
  • Ventilator management

Real Impact

  • Occult sepsis
  • Community Acquired Pneumonia
  • Pulmonary Embolus
  • ICU Glucose
  • Ventilator management
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Imagine….

Semantically Interoperable Healthcare focused Apps

Healthcare App Store

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Repository of Shared Models in an approved Formalism Model Review

SOLOR

SNOMED CT LOINC RxNorm Core Reference Model

Standards Infusion Model Dissemination

Translators HL7 FHIR Profiles

Practicing Clinical Subject Matter Experts

ACOG – OPA modeling FPAR Application Development

FPAR Application

Open, shared repository of detailed models

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The Interoperability Pyramid (voluntary adherence to a higher standard)

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HL7 Version 2 Compliance HL7 FHIR Compliance Argonaut Compliance HSPC Compliance

Structure, No terminology Constraints Structure(s), Generic LOINC

Common resources, extensions and some specific LOINC and SNOMED

1 Preferred structure, standard extensions, explicit LOINC and SNOMED, units, magnitude, …

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About HSPC and CIIC

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HSPC History

  • HSPC was incorporated as a not‐for‐profit corporation on August 22,

2014

  • Meetings (two or three each year)
  • May 2013 Salt Lake City
  • July 2016 Washington DC, hosted by the ACS
  • November 2016 New Orleans, hosted by LSU Health
  • March 2017, New Orleans, hosted by LSU Health
  • August 2017, Washington DC, hosted by the ACS
  • November 2017, Indianapolis, hosted by Regenstrief Institute

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Improve health by creating a vibrant, open ecosystem of interoperable applications, content, and services. Be a provider‐led organization that accelerates the delivery of innovative healthcare applications that improve health and healthcare.

HSPC Mission HSPC Vision

Organizational Guiding Principles

  • Provider‐driven
  • Patient‐centered
  • Standards based
  • Business focused
  • Open Architectures
  • Accelerated Innovation
  • Vendor‐agnostic
  • Collaborative
  • Adaptable
  • Sustainable
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Clinical Information Interoperability Council

(HL7 hosted first meeting in 2009)

  • We want to create ubiquitous on demand sharing of standardized data

across the breadth of medicine for:

  • Direct patient care
  • Research and learning
  • Public health
  • Clinical trials
  • Data from devices
  • Post market surveillance
  • Quality and disease specific registries
  • Billing and health administration
  • Any where that we share health related data and information …..
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The July 13th 2017 CIIC meeting in Bethesda

  • Jointly sponsored by HL7 and HSPC
  • Keynote speaker – Don Rucker, MD (National Coordinator for HIT)
  • About 120 attendees
  • Representing – AAN, AAO, ACOG, ACS, ACC, ACP, APTA, ANA, FDA, CDC,

NCI, AHRQ, NIAID, DoD, VA, PCPI, AMIA, SPM, HIMSS and many other

  • rganizations
  • Presentations and breakout groups
  • Conclusion: There was important work we could do and we should

continue

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Tasks for expert clinicians

  • Determine what data should be collected
  • It will be different for different situations
  • Determine a preferred information model for a given kind of data
  • How should the data be modelled? Two fields or one (the degree of pre

and post coordination)

  • Define what the data means
  • Make computable definitions for diabetes mellitus, myocardial

infarction, heart failure, chronic renal failure, etc.

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How do we relate to other interoperability activities?

  • Argonauts
  • We build on the HL7 FHIR profiles that the

Argonauts create

  • Sequoia
  • We depend on Sequoia to create the network,

trust agreements, and data exchange infrastructure

  • SMART
  • We depend on SMART for integration into EHRs
  • HL7
  • FHIR – the approved API for sharing patient data
  • CIMI – provides the detailed information models

that are essential for interoperability

  • Federal Health Information Model (FHIM)
  • We use FHIM classes as the patterns for CIMI

models

  • NLM Value Set Authority Center (VSAC)
  • we are aligning and placing SOLOR refsets in

VSAC

  • SOLOR
  • SOLOR is the source of coded concepts used in

CIMI models

  • SDOs (HL7, OMG, NCPDP, X12, ISO, CEN)
  • We use their standards whenever possible
  • Commonwell, Center for Medical

Interoperability, AMA Integrated Health Model Initiative, CDEs, openEHR, OMOP (OHDSI)

  • We want to work together as partners with all

groups with whom we have overlapping interests

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Merger Background and Context

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High Level Motivation for the Merger

  • Achieving “true” interoperability requires many activities
  • Three key activities are:
  • Front line clinical expertise and support (as represented by CIIC)
  • Technical innovation including modeling, terminology, SOA, platform, tooling,

and knowledge sharing (as represented by HSPC)

  • TEFCA, security, privacy, access, policy, regulation, legislation and other issues
  • High degree of overlap in leadership and activities of the two
  • rganizations
  • CIIC needed a business entity to transact business and hold IP
  • Conclusion: We neednto merge the two activities and get more done

and make faster progress

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Merger Committee

  • 12 individuals agreed to be part of merger committee
  • April 19, 2018 face‐to‐face meeting in Washington
  • Conference calls every two weeks
  • Topics of discussion
  • Adding clinical representatives to the HSPC Board
  • Purpose of the Board
  • Organizational structure of the merged organization
  • Staffing
  • Funding and financial stability
  • A (new) name for the merged organization

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Merge Discussion Participants

  • Oscar Diaz ‐ HarmonIQ
  • Emory Fry ‐ Cognitive
  • Steve Hasley ‐ ACOG
  • Stan Huff – Intermountain
  • Chuck Jaffe – HL7
  • Laura Heermann Langford ‐

Intermountain

  • Russell Leftwich ‐ Intersystems
  • Jonathan Nebeker ‐ VA
  • Frank Opelka ‐ ACS
  • Jimmy Tcheng – Duke, ACC
  • Steve Waldren ‐ AAFP
  • Keith White – Imaging,

Intermountain

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Transition Board

  • Current board members approve additional new members
  • Current HSPC board members remain
  • 3 Benefactors and CEO Ex Officio (Stan Huff, Wayne Wilbright, Jonathan Nebeker, Oscar Diaz)
  • Initial board for approximately 2 years
  • The Initial board will then select new board members as the
  • rganization evolves
  • Proposed new Board members
  • Clinical representatives = 3 (Frank Opelka – ACS, Steve Waldren – AAFP, Jimmy Tcheng – ACC)
  • 2 board advisors (Steve Hasley – ACOG, Keith White – Imaging (I4)

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Board Technical Steering Committee Nominates Candidates to Board Executive Leadership

  • Develop and ensure that the mission

and values of the organization are carried out

  • Drive strategy
  • Ensure financial viability
  • Advocacy
  • Hires and fires senior management
  • Audit
  • Represents entity back to external

community

  • Board members represent the entity,

not the stakeholder group that they come from Clinical Steering Committee Specialty Societies Provider Organization Nominates Candidates to Board

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Merger things that we plan to work on next

  • Governance and organizational structure
  • Including staff positions and organization
  • Plan for funding and financial sustainability
  • Evolve and strengthen the organization
  • Engagement with Weber Shandwick
  • Supported by contributions from the American College of

Surgeons

  • Three phase plan for growing the organization
  • Create a new name for the combined organization

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Key Technical Activities

  • Development of consistent information models
  • HL7 Clinical Information Modeling Initiative
  • FHIR Profiles
  • Definition of reference SOA platform architecture
  • Creation of reference implementation
  • Application development site (sandbox)
  • Strategy for conformance testing
  • Development of a healthcare community cloud and vendor neutral

ecosystem

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Key Clinical Projects

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Improving Healthcare Data Interoperability ‐ Duke Clinical Research Institute Pew Project

James E. Tcheng, MD Rebecca Wilgus, RN, MSN Grant support provided by the Pew Charitable Trusts

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Improving Healthcare Data Interoperability – The Pew Project

Convening the Registry Community

  • Current state of registries
  • How well are data standards implemented?
  • Current state of national data models
  • [same question!]
  • Authoring the “Easy Button”
  • All in one package of best practice

recommendations (for db developers)

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Scope

  • Patient ID (family name, given name)
  • Sex (birth sex)
  • Date of birth
  • Race, ethnicity
  • Smoking status, EtOH, illicit substances
  • Risk factors
  • Vital signs
  • Laboratory results
  • Medications
  • Care team members (attending physician, physician operator)
  • Procedures
  • Unique device identifiers (UDI)
  • Vital status (alive / dead)
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OPA/ACOG FPAR 2.0 project

Steve Hasley, ACOG CMIO

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7.2 million encounters annually 4.1 million clients 4,127 Service delivery sites 1,134 Sub recipients 50+ States & territories funded by 94 Grantees monitored by 20 Regional OPA FTEs supported by 10 Regional Health Administrators 5 National Training Centers 1 OPA HQ

Title X: A diverse and wide network

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Source: Family Planning Annual Report: 2014 (Aug 2015)

The 10 HHS Federal Regions

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Converge: Draft 2.0 Data Elements

  • Client ID
  • Provider ID
  • Visit date
  • Date of birth
  • Sex
  • Ethnicity
  • Race
  • Limited English Proficiency

status

  • Household size
  • Income
  • Health insurance coverage
  • Pregnancy intention
  • Current pregnancy status
  • Sexually active status
  • Contraceptive method at

entry & exit or Reason for no method

  • Date of last pap and/or HPV

test

  • Screening tests for

Chlamydia, Gonorrhea, and HIV

  • HIV positive test result
  • Linkage to HIV medical care
  • Systolic and Diastolic BP
  • Height and Weight
  • Smoking status

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FPAR2.0@hhs.gov

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7.2 million encounters annually 4.1 million clients 4,127 Service delivery sites 1,134 Sub recipients 50+ States & territories funded by 94 Grantees monitored by 20 Regional OPA FTEs supported by 10 Regional Health Administrators 5 National Training Centers 1 OPA HQ

Title X: A diverse and wide network

Source: Family Planning Annual Report: 2014 (Aug 2015)

The 10 HHS Federal Regions

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Approved for Public Release; Distribution Unlimited. Case Number 16-1988

Cancer Data Interoperability Project Every patient’s journey improves all future care

Steve Bratt

Leader, Health Standards and Interoperability Group The MITRE Corporation sbratt@mitre.org Presented at the 17th General Meeting of HSPC Joint with CIIC / Bethesda, MD / 31 July 2018

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| 38 |

Approved for Public Release; Distribution Unlimited. Case Number 16-1988

Cancer Data Interoperability Project

[integrating the MITRE-funded Standard Health Record (SHR) for Oncology initiative]

Flux Notes

Capture: Collect and Visualize

Goal: Demonstrate low burden, incentivized collection of high-quality, standardized treatment data at point of care

ICAREdata Study

Use: Validate Approach

Goal: At cancer centers, demonstrate that collection of real-world data (RWD) can be as complete and accurate as clinical trials data

Oncology Spec

Breast Cancer

Define: Right Data in Standard Format

Goal: Advance detailed clinical model and FHIR IG for breast cancer as HL7 standard (CIC, CIMI)

Objective

  • Enable capture of structured cancer care data (Real World Data) that is as

high-quality complete, accurate and computable as clinical trials data

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The incredible value of interoperability?

  • Save 100,000 lives a year?
  • Make the right decision 80% of the time?
  • Save $5 billion in chart abstraction costs?
  • Learn something from the $3.2 trillion that we spend each

year on healthcare?

  • Install a new EHR for millions instead of billions?
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HSPC Internet Sites

  • Website:

http://hspconsortium.org

  • Wiki:

https://healthservices.atlassian.net/wiki/display/HSPC/ Healthcare+Services+Platform+Consortium

  • Developer Website:

http://www.developers.hspconsortium.org/

  • Sandbox:

https://sandbox.hspconsortium.org

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Questions and Discussion

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

Scott Stuewe

President and CEO, DirectTrust

Autumn 2018 Introduction and Update

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

What is DirectTrust? A Network.

  • A growing, federated network for healthcare data exchange

– 1.7 Million individual accounts, nearly 250,000 consumer accounts – Over 120,000 provider organizations – Over 400 EHRs (any CEHRT) can send and receive direct messages – 200 million direct messages sent annually, 431 million sent to date

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

  • Ensures secure healthcare

exchange

– Network Rules of the road – Technical Public Key infrastructure for:

  • Identity credentials
  • Message encryption

– Accreditation of organizations that operate on the network

  • Health Internet Service Providers

– (HISPs operate like an ISP on the open internet)

  • Certificate Authorities and

Registration Authorities (for digital certificates and identity proofing)

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What is DirectTrust? A Trust Framework.

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

  • A not for profit trade association (501c-6)

– 120 members including HIT companies, provider organizations, governmental agencies and others – Some members operate or support the network

  • Health Internet Service Providers, Certificate Authorities and Registration Authorities

– Others want to help shape the direction of the trust framework

Members

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What is DirectTrust? A Membership Organization.

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

Metrics Demonstrate Consistent Growth (20%)

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1.7 Million Addresses! 200 Million Messages a Year!

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

ONC 2nd Interoperability Forum

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CMS Administrator Seema Verma calls for an end to physician fax machines by 2020 "If I could challenge developers on a mission, it's to help make doctors' offices a fax free zone by 2020," Verma said to applause.

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

Your Help with Seema’s ”#AxeTheFax” Vision

  • Advocate with your EHR Company for Improvements to Direct

Workflows

– Some companies implemented only what was necessary for Meaningful use – need support for clinical messaging – An ability to send and receive both patient specific and general messages including all attachment types – Send documents as attachments and store them when received

  • Do referrals by Direct with anyone you can

– It’s easier for you – just need to see which partners can do it

  • Advocate for communication with payers via Direct

– It’s WAY easier than logging onto their web-site and uploading charts

  • r reports.

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006 8

DirectTrust Success Stories

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006 9

DirectTrust Success Stories

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www.DirectTrust.org 1629 K Street NW, Suite 300, Washington, DC 20006

Discussion

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Scott Stuewe President and CEO, DirectTrust.org Scott.Stuewe@DirectTrust.org 913-222-0630 David C. Kibbe MD MBA Senior Advisor David.Kibbe@DirectTrust.org kibbedavid@mac.com 913.205.7968

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Interoperability and TeleHealth

Brian Levy MD

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Agenda - Telehealth Interoperability

Bio Sample Cases Telehealth Interoperability Problem Use cases Solutions Conclusion

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William Osler

It is much more important to know what sort of a patient has a disease than what sort of a disease a patient has.

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Bio

 Physician Informatacist  Internist  Telehealth provider  Hospitalist  Interoperability specialist –

former CMO at Health Language for 17 years

 Member of HIMSS HIE and

Interoperability Committee

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Case 1

CC: Rash HPI: 55 yo man complains of a rash for the last couple of days. Before the rash started, he had pain in the area. The rash is limited to one area on the back. PMH: HTN ALL: PCN Meds: HCTZ Objective: Assessment: Likely shingles. Differential: contact dermatitis, tinea, cellulitis, folliculitis Plan: Valacylovir

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Case 2

CC: Sore biceps HPI: 45 year old man who did 100 pullups yesterday and is very sore. He also complains of red urine. PMH: None MEDS: None ALL: Penicillin Objective: On the video, appears in no acute distress.

Assessment: Rhabdomyolysis Plan: Send to ER right away.

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Telehealth Definitions

 ‘Telehealth encompasses a broad variety of technologies and tactics

to deliver virtual medical, health, and education services. Telehealth is not a specific service, but a collection of means to enhance care and education delivery.’ (from CCHPCA)

 ‘The use of electronic information and telecommunications

technologies to support long-distance clinical health care, patient and professional health-related education, public health and health administration.’ (from HRSA)

http://www.cchpca.org/what-is-telehealth

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Telehealth is Broad

Live video Phone calls Store and forward Remote patient monitoring Mobile health

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Telehealth Use Cases

Urgent care Specialists Behavioral health Telestroke Dermatology Kiosk

Hospital Clinic Home Kiosk

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Telehealth State Laws

 Telemedicine advancing faster

than States can keep up

SOURCE: American Telemedicine Association

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What is Interoperability

 ‘Electronically exchanged information’  HIMSS: Interoperability is the ability of different information technology

systems and software applications to communicate, exchange data, and use the information that has been exchanged.

 ONC: Interoperability: the ability of a system to exchange electronic health

information with and use electronic health information from other systems without special effort on the part of the user.

Foundational Structural Semantic

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What should be Interoperable?

Allergies

Appointments/scheduling

Devices

Event Notification

Medications

Notes

Orders

Prescriptions

Problem Lists

Encounter summaries / Patient summaries

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Challenge

Lack of interoperability Disparate data spread across multiple patient charts Separate platforms - even in the same hospital system Duplicating documentation practices Timing is critical for Telestroke Telehealth visits will become just as important as in person

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Medical Device Interoperability

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Putting it into Practice – Personal Experience

Secure video Phone Scheduling Waiting room EMR Patient portal Billing Medical malpractice

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EMR – Getting stuff in and out…

HL7 FHIR SMART on FHIR CDAs Proprietary APIs

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Foundational Interoperability

PDF Images

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Core Syntactic Standards

  • Demographics
  • ADT
  • MDM
  • Test results

HL7

  • API access

FHIR

  • Progress notes
  • Discharge
  • Patient summaries

CDA

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What is FHIR?

Fast Healthcare Interoperability Resources (FHIR) is a standard describing data formats and elements (known as "resources") and an application programming interface (API) for exchanging electronic health records.

Faster to learn and implement, Lower cost, Scales well from simple to complex, Flexible, Free

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SMART on FHIR

Substitutable Medical Applications and Reusable Technologies SMART on FHIR is a set of open specifications to integrate apps with Electronic Health Records, portals, Health Information Exchanges, and other Health IT systems.

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Core Semantic Standards

SNOMED LOINC RxNORM Proprietary pharmacy terminologies ICD-10-CM CPT Proprietary

  • rder catalogs

Problem Lists Lab results Medications Allergies CPOE Billing Lab, Radiology Orders

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More Terminology Standards

 Value sets of existing standards  CVX  Race and Ethnicity (CDC, OMB)  FDA Device Identifiers  Unified code for units of measure  CDISC  NCI  HCPCS, APC, DRG

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Allergy Example

CDA

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Allergy - FHIR

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Allergy – FHIR JSON

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How would your order a procedure and pass it into the EMR to fulfill?

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Order a MRI using SNOMED

MRI of left hip MRI of hip MRI of left lower limb Procedure on hip MRI of lower extremity MRI Left hip region structure MRI - action

Laterality Left

Entire hip region CPT 73721: MRI extremity lower joint W/O contrast knee, ankle, mid/hindfoot, hip CPT 73723: MRI extremity lower joint W W/O contrast knee, ankle, mid/hindfoot, hip MRI of left hip with contrast

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FHIR as the Information Model

There is overlap between the terminology and information model

The FHIR information model can also be used to represent anatomy context

For example, the Procedure Request resource (https://www.hl7.org/fhir/procedurerequest.html) has a slot for bodySite with location values that can used the SNOMED Body Structures.

Thus body site can be represented using the terminology model (SNOMED Procedure Site)

  • r the information model (FHIR bodysite)

Laterality context can be represented in the terminology concept itself, in the terminology model, or the FHIR information model

MRI of left hip is a pre-coordinated SNOMED concept

MRI of left hip uses a laterality relationship (where laterality itself is a SNOMED concept) to left

 FHIR also has a laterality object which uses the SNOMED concepts of left, right, and

bilateral as its terminology binding

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FHIR Procedure Resource

Most EMRs though would have a proprietary code for ordering the procedure

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Terminology and Information Models

 Grey area between information model and terminology where the context of

a concept can be represented in either model

 Consider

 Use terminology model for concepts (MRI, left, hip)  Use information model for context (laterality, allergy, family history)

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Interesting Interoperability Options

HIEs Universal EMR Blockchain

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Conclusion

Telehealth is here to stay

But adds to the multiple records for a patient

Existing interoperability standards can be used.

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Thank-you!

Brian.Levy@peakinformatics.com