How to Educate Doctors About Rare Diseases Educating doctors - How - - PowerPoint PPT Presentation

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How to Educate Doctors About Rare Diseases Educating doctors - How - - PowerPoint PPT Presentation

May 22, 2023 364 likes •628 views

How to Educate Doctors About Rare Diseases Educating doctors - How hard can it be? Educating doctors - How hard can it be? Educating doctors - How hard can it be? Reaching Doctors - Online Educating Doctors Key Points 1. Know the community

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SLIDE 1

How to Educate Doctors About Rare Diseases

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SLIDE 2

Educating doctors - How hard can it be?

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SLIDE 3

Educating doctors - How hard can it be?

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SLIDE 4

Educating doctors - How hard can it be?

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SLIDE 5

Reaching Doctors - Online

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SLIDE 6

Educating Doctors – Key Points

  • 1. Know the community
  • 2. Parents and patients
  • 3. KOLs
  • 4. Multiple channels
  • 5. Things to avoid – assumptions
  • 6. Specialists and specialty centers
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SLIDE 7

Know the Community

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SLIDE 8

Know the Community

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SLIDE 9

Be Part of the Community

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SLIDE 10

Educating Doctors – Key Points

  • 1. Know the community
  • 2. Parents and patients
  • 3. KOLs
  • 4. Multiple channels
  • 5. Things to avoid – assumptions
  • 6. Specialists and specialty centers
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SLIDE 11

Parents and Patients

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SLIDE 12

Educating Doctors – Key Points

  • 1. Know the community
  • 2. Parents and patients
  • 3. KOLs
  • 4. Multiple channels
  • 5. Things to avoid – assumptions
  • 6. Specialists and specialty centers
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SLIDE 13

KOLs

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SLIDE 14
  • 1. Know the community
  • 2. Parents and patients
  • 3. KOLs
  • 4. Multiple channels
  • 5. Things to avoid – assumptions
  • 6. Specialists and specialty centers

Educating Doctors – Key Points

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SLIDE 15

Multiple Channels

Website Email

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SLIDE 16

Social Media Conferences

Multiple Channels

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SLIDE 17

Multiple Channels

Newsletters Resource Guide Supplements

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SLIDE 18

Multiple Channels – Patient Stories

Website Partnering Conference Partners

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SLIDE 19

Multiple Channels – Patient Stories

Email Print Patient Magazines

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SLIDE 20

Educating Doctors – Key Points

  • 1. Know the community
  • 2. Parents and patients
  • 3. KOLs
  • 4. Multiple channels
  • 5. Things to avoid – assumptions
  • 6. Specialists and specialty centers
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SLIDE 21

Assumptions

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SLIDE 22

Educating Doctors – Key Points

  • 1. Know the community
  • 2. Parents and patients
  • 3. KOLs
  • 4. Multiple channels
  • 5. Things to avoid – assumptions
  • 6. Specialists and specialty centers
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SLIDE 23

Specialists and Specialty Centers

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SLIDE 24

Resource Guide Resources

  • FDA
  • NIH
  • NORD
  • Orphanet
  • UDN
  • Find Zebra
  • Genetic Alliance
  • Global Genes
  • RareConnect
  • EURORDIS
  • CORD
  • Everylife Foundation
  • RDLA
  • Lysosomal Disease Network

Specialists and Specialty Centers

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SLIDE 25

Conclusions

  • Each rare disease is unique and requires unique way to

educate doctors

  • Many resources are available to help
  • Do not waste doctors’ time
  • Do not waste patients’ time