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Rare Disease Day 2020
- 13th edition on Saturday 29 February
2020
- A rare day for rare diseases in this leap
year!
- Key campaign message: Rare is many.
RAREDISEASEDAY.ORG 1 Rare Disease Day 2020 13 th edition on - - PowerPoint PPT Presentation
RAREDISEASEDAY.ORG 1 Rare Disease Day 2020 13 th edition on - - PowerPoint PPT Presentation
RAREDISEASEDAY.ORG 1 Rare Disease Day 2020 13 th edition on Saturday 29 February 2020 A rare day for rare diseases in this leap year! Key campaign message: Rare is many. Rare is strong. Rare is proud! RAREDISEASEDAY.ORG 2
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Campaign coordinated by EURORDIS and 60 national alliance partners representing 53 countries.
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Policy communication Calling for increased equity
- On Rare Disease Day we call for increased equity for people living with a rare
disease and their families.
- New fact sheet released on ‘Advocating for equity for people living with a
rare disease’
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Rare Disease Day campaign materials
The Rare Disease Day campaign materials for print, online and social media were made editable and adaptable and available to download from rarediseaseday.org/downloads The materials were translated into over 30 languages!
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Thousands of events organised in over 100 countries + regions
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New Countries in 2020
Kosovo Gabon Iraq Rwanda
Pediatric Teaching Hospital Sulaymaniyah
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Monuments and buildings
Australia Mexico Pisa, Italy Rome, Italy
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Monuments and buildings
Genova, Italy Mexico Chicago, USA Murcia, Spain Valencia, Spain Peru
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Monuments and buildings
New York City, USA Vancouver, Canada Vancouver, Canada Peshawar, Pakistan
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Rare Disease Day on social media!
#RareDiseaseDay trended in at least 13 countries.
Support from social media influencers
@j__vedder, 97,9K followers @tummyandgummy, 132K followers @sarageurts, 94,5K followers @oddlyyyvie, 876K followers
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Support from policy makers and public figures
President of Ireland Pope Francis President of Tanzania Frédérique Ries, MEP
President of Austria Prime Minister of Italy
Statement from EU Commissioner for Health and Food Safety
Minister for Health Czech Republic
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Support from EU Health
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International media coverage
World Economic Forum Forbes The Lancet