RAREDISEASEDAY.ORG 1 Rare Disease Day 2020 13 th edition on - PowerPoint PPT Presentation

RAREDISEASEDAY.ORG 1

Rare Disease Day 2020 13 th edition on Saturday 29 February • 2020 • A rare day for rare diseases in this leap year! • Key campaign message: Rare is many. Rare is strong. Rare is proud! RAREDISEASEDAY.ORG 2

Campaign coordinated by EURORDIS and 60 national alliance partners representing 53 countries. 3 RAREDISEaSEDAY.ORG

Policy communication Calling for increased equity • On Rare Disease Day we call for increased equity for people living with a rare disease and their families. • New fact sheet released on ‘Advocating for equity for people living with a rare disease’ RAREDISEASEDAY.ORG 4

Rare Disease Day campaign materials The Rare Disease Day campaign materials for print, online and social media were made editable and adaptable and available to download from rarediseaseday.org/downloads The materials were translated into over 30 languages! RAREDISEASEDAY.ORG 5

Thousands of events organised in over 100 countries + regions 7

New Countries in 2020 Kosovo Gabon Iraq Rwanda Pediatric Teaching Hospital Sulaymaniyah RAREDISEASEDAY.ORG 8

Monuments and buildings Pisa, Italy Mexico Australia Rome, Italy RAREDISEASEDAY.ORG 9

Monuments and buildings Genova, Italy Mexico Chicago, USA Peru Valencia, Spain Murcia, Spain RAREDISEASEDAY.ORG 10

Monuments and buildings Peshawar, Pakistan New York City, USA Vancouver, Canada Vancouver, Canada RAREDISEASEDAY.ORG 11

Rare Disease Day on social media! #RareDiseaseDay trended in at least 13 countries. Support from social media influencers @tummyandgummy, 132K followers @j__vedder, 97,9K followers @oddlyyyvie, 876K followers RAREDISEASEDAY.ORG 12 @sarageurts, 94,5K followers

Support from policy makers and public figures Pope Francis President of Tanzania Statement from EU Commissioner for Health and Food Safety President of Austria Minister for Health Czech Republic President of Ireland Frédérique Ries, MEP RAREDISEASEDAY.ORG 13 Prime Minister of Italy

Support from EU Health RAREDISEASEDAY.ORG 14

International media coverage World Economic Forum Forbes RAREDISEASEDAY.ORG 15 The Lancet