HOW ARTIFICIAL INTELLIGENCE & DATA ANALYTICS ARE TRANSFORMING HEALTH & CARE ONE LONDON LOCAL HEALTH & CARE RECORD
12th March 2019
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HOW ARTIFICIAL INTELLIGENCE & DATA ANALYTICS ARE TRANSFORMING HEALTH & CARE ONE LONDON LOCAL HEALTH & CARE RECORD 12 th March 2019 INTEGRATED CARE & POPULATION HEALTH MANAGEMENT: SHARING DATA LEADERSHIP A LEARNING HEALTH
HOW ARTIFICIAL INTELLIGENCE & DATA ANALYTICS ARE TRANSFORMING HEALTH & CARE ONE LONDON LOCAL HEALTH & CARE RECORD
12th March 2019
INTEGRATED CARE & POPULATION HEALTH MANAGEMENT: SHARING DATA
LEADERSHIP – A LEARNING HEALTH SYSTEM FOR LONDON
What Do You Do With An Idea? Kobi Yamanda The story of one brilliant idea and the child who helps to bring it into the world. As the child's confidence grows, so does the idea itself. And then, one day, something amazing happens. This is a story for anyone, at any age, who's ever had an idea that seemed a little too big, too
….strive to become learning health systems by making clinical data research grade and lowering the cost of data acquisition and knowledge generation
Victor Dzau. Transforming Academic Health Centres for an Uncertain Future (2013)
Every consenting patient’s characteristics and experience is available to learn from Best practice immediately available Improvement is continuous This happens routinely and efficiently This is part of a culture
Charles Friedman. Toward Complete & Sustainable Learning Systems (2014)
ONE LONDON ENTERPRISE LAYERS
mechanisms both within STP footprints and pan London
where treatment is delivered via London providers in part.
to their data
and business intelligence (information service).
Minimum Required Optional
ONE LONDON STRATEGY – NEW MODELS OF CARE
New models of high quality, sustainable and integrated care Unscheduled care | Planned care | Population Health Management Robust digital operations in each organisation Ubiquitous viewing of records across care
Normalised data service for proactive care and population health management Patient access and control De-identified information for system planning & research
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We need to ensure that each provider of care has in place secure, reliable, user-friendly and inter-operable technology systems (and
time, making the right thing to do the easy thing to do We need to ensure that providers of care are able to work together as an integrated system of care, with all relevant information about a person being held in a way that it can be viewed so that vital information is available to view (according to staff role) and so that people don’t need to tell their story over and over again We need to ensure that integrated care systems can move from providing mainly reactive care, to a position where it is possible to analyse clinical information across a population in order to spot people with high need, complexity or deterioration, and to offer targeted support to them We need to ensure that people really are empowered to be at the centre of care, developing systems that allow people to access their
use new technology to self-manage, to plan their care, and where appropriate to consume care services We need to ensure that integrated care systems have in place the infrastructure and applications to allow information about the whole population to be used to understand patterns of need and service utilisation, to predict demand and flow and to improve quality, as part
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ONE LONDON TECHNICAL ARCHITECTURE
ENTERPRISE LEVEL 1 – LONDON PATIENT RECORD
ENTERPRISE LEVEL 2 – FRAILTY FLAG (NHS 111 API)
“As a London Ambulance Service (LAS) clinician who provides clinical expertise for NHS 111 … I want to obtain access to the local … information within the Discovery Dataset to determine whether the caller is potentially seriously frail.” Since the API went live on 27th November 2018, the Discovery Data Service has:
➢
handled 317,314 API requests
➢
matched 133,785 patients
➢
flagged 6,195 potentially frail patients as at 6th March 2019
AI?
Accelerating Artificial Intelligence in health and care: results from a state of the nation survey
the current solutions are using ‘lowest complexity’ advanced statistical techniques rather than more complex AI applications.
Autumn 2018 https://www.ahsnnetwork.com/wp-content/uploads/2014/12/AHSN-Network-AI-Report.pdf
Code of conduct for data-driven health and care technology
September 2018, updated February 2019 https://www.gov.uk/government/publications/code-of-conduct-for-data-driven-health-and-care-technology/initial-code-of-conduct-for-data-driven-health-and-care-technology
RECENT LHCRE-RELEVANT ARTICLES
Stella Creasy | London MP (Walthamstow)
“…it’s not for senior managers in the NHS to tell me what is going on [so I can] tell everybody else. My job is to create a platform on which a constructive conversation can happen about the kind of healthcare we need.” “[Public involvement is] not necessarily a trade-off between empowerment and equality. You get better decisions for the whole community and you hear voices you don’t hear in our current structures.” “if the NHS actively asked [the public] to make balanced decisions designed to “to help each other” rather than simply to meet their own needs it might be pleasantly surprised.”
Links: https://www.hsj.co.uk/comment/the-bedpan-its-difficult-for-people-to-imagine-different-could-be-good/7024439.article https://www.hsj.co.uk/expert-briefings/the-download-selling-patient-data/7024573.article
Ben Heather| The Download Column
“Senior NHS officials [have] insisted LHCREs will not be used to create a national patient “data lake” for researchers [but] NHS Digital told suppliers in October last year that the LHCREs will feed data directly into its central platform.” “…some local LHCRE [have said] it wasn’t what they’d ‘signed up for’” Quoting Dame Fiona Caldicott: “Dialogue with the public about data use has not grown at the same speed as the capacity of technology…Where there is a gap between expectations and reality, anxiety may grow” “Arguments for and against selling (or giving away) NHS patient data are complex and fraught. Is it exploiting confidential patient records for private profits or a public resource that, with the proper safeguards, can be used to save lives?.”
BUILDING PUBLIC TRUST
In all cases though, we must take the public with us … and avoid a complacency about the desire for digital and information sharing
Low levels of awareness, understanding and active support High levels of awareness, understanding and active support
LESSONS
1. Partnership working is hard (agreement first) 2. Expectation runs faster than delivery (at all levels-scope creep) 3. Public trust is critical (deliberative processes) 4. End point maturity is very variable (time to UPnP) 5. Technical Standards must prevail (FHIR API) 6. Some of what we are doing has not been done (invention vs procurement) 7. Align incentives and levers at all levels (hard & soft) 8. National data research approach must be aligned (DiH) 9. Land grab for data! (public vs commercial)
LEADERSHIP IN COLLABORATION (1)
LEADERSHIP IN COLLABORATION (2)
LEADERSHIP IN COLLABORATION (3)