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Group 6 Empowering the Public to Drive Policy Development: Role of - - PowerPoint PPT Presentation

Feb 01, 2024 256 likes •997 views

Group 6 Empowering the Public to Drive Policy Development: Role of Media, Government and Non-Profit Organizations Pankaj Chaturvedi (Chair), Terry Day, Mark DeLacure, March 4 th /5th 2016 Brian Hill, Matthew Myers, Michael Walton, Hiroshi

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March 4th/5th 2016

Group 6

Empowering the Public to Drive Policy Development: Role of Media, Government and Non-Profit Organizations

Pankaj Chaturvedi (Chair), Terry Day, Mark DeLacure, Brian Hill, Matthew Myers, Michael Walton, Hiroshi Ogawa (Moderator) ,

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Pankaj Chaturvedi FAIS, FICS, FACS, MAMS Head and Neck Cancer Surgeon, Tata Memorial Hospital, Mumbai, India Chair, Group 6 chaturvedi.pankaj@gmail.com Terry A. Day MD Professor, Department of Otolaryngology, Head and Neck Surgery Medical University of South Carolina dayt@musc.edu Mark D. DeLacure, MD FACS Associate Professor, Otolaryngology, Head and Neck Surgery & Plastic Surgery New York University Langone Medical Center mark.delacure@nyumc.org Brian Hill Founder and Executive Director, The Oral Cancer Foundation bhill@oralcancerfoundation.org Matthew L. Myers President, Campaign for Tobacco-Free Kids mmyers@tobaccofreekids.org Michael Walton NDD, ATD, MBE Founder/ Chair, The Ben Walton Trust, UK m.k.walton1@btinternet.com

Dental Officer, World Health Organization

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March 4th/5th 2016

Group 6

Empowering the Public to Drive Policy Development: Role of Media, Government and Non (For) -Profit Organizations

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Introduction and Setting the theme -

  • Pankaj Chaturvedi - 15 mins
  • Brian Hill - 10 mins
  • Terry Day - 5 mins
  • Michael Walton - 5 mins
  • Mark DeLacure - 5 mins
  • Matt Myers - 5 min

Panel Discussion - 45 mins

Moderator - Hiroshi Ogawa

  • Pankaj Chaturvedi
  • Brian Hill
  • Terry Day
  • Michael Walton
  • Mark DeLacure
  • Matt Myers

KNOW Oral Cancer!

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Too much but too little !

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Diagnostic Adjuncts – long way to go!

http://www.cdxdiagnostics.com/ http://www.exodontia.info/

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Chemoprevention – needs course correction

  • Cis Retinoic Acid – doesn’t work
  • Vitamin E – word of caution!
  • Bowman-Birk inhibitor concentrate (BBIC) -

little role

  • Curcumin – No Clinical response
  • Green tea polyphenol epigallocatechin-3-

gallate.

  • Spirulina
  • NSAIDs
  • Targeting COX-2 and EGFR
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Oral Cancer – Health issue Oral Cancer Control – Socio Political issue

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Medical Societies should engage in lobbying Pulitzer’s Iron triangle

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Mr Obama is asking Congress for $309 Million next year to scale up the initiative

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Keyan Salari et al. Eur Heart J 2012;33:1564-1570

Cost of genome sequencing

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Accident Terrorism Corporate Greed Oral Cancer is a crime against humanity! Personal choice?

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It is an voluntary advocacy campaign to support the MOHFW to achieve it’s tobacco control

  • bjectives
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Sensitization of Ministers

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Media / Outdoor Campaign

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Politically beneficial activity

20

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Dec 2010 SC seeks Health report & bans plastic Feb 2011 Health report submitted April, 2012 MP – 1st state to ban Gutka April, 2013 SC bans Gutka all over July 2013 Maharashtra bans flavored SLT

Thousand Tonnes Million INR Source - Euromonitor 2014

IMPACT??

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10 20 30 40 50 60

2013 2014 2015 2016 2017 2018 Forecast of SLT from 2013-18 (INR Million)

Source - Euromonitor 2014

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  • Study conducted in 7 states of
  • Gutka virtually disappeared from display in retail
  • utlets
  • 99% in agreement that bans have a positive impact

in reduction.

  • 92% support for gutka ban
  • Of the respondents that quit since the bans, a

substantial portion in each state (41-88%) reported quitting because of ban. (*Johns Hopkins University Bloomberg School of Public Health & WHO Study, December 2014)

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Areca nut Policy

  • Areca Nut is a food substance
  • Oral cancer and Submucus Fibrosis are

food borne disease

  • Several states have started banning

Flavored Areca Nut

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Pictorial Warning in India

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300 Doctors wrote to Prime Minister Met Finance Minister / Secretary Media Advocacy

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The game changer!

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When will doctors rise against alcohol??

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Promote Oral Health!

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Beauty lies in simplicity!

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ATA Control Tobacco Cessation Visual Inspection

Primary Prevention Secondary Prevention Screening

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Lets break the silos and be strategic!

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Previous date: 16 to 19 August 2017

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Brian Hill

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  • Empowering the public to drive policy development - the role
  • f media, government and non-for-profit organizations.
  • Chair: Dr. Pankaj Chaturvedi, Tata Memorial Hospital Mumbai

(India)

  • Moderator: Hiroshi Ogawa, World Health Organization
  • Panelist: Terry Day
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Global Awareness and Advocacy in Oral Cancer Prevention

Evren Erkul, Terry Day 4-5 March 2016, New York, USA

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Conflicts or Supporting Interests

  • Head and Neck Cancer Alliance, Inc
  • American Head and Neck Society, Inc.
  • International Association for Oral Oncology
  • Medical University of South Carolina
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The Crete Declaration

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Did Yul ever dream that he would be facing the facts of legalized marijuana, E-Cigs, vaporized combinations, packaged chew/dip/snuff/edibles ???

History

The Yul Brynner Head and Neck Cancer Foundation

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Why are we here?

  • Control oral cancer

– Prevent oral cancer – Early detection of oral cancer

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What is the problem?

  • High incidence
  • Preventable Risk factors but not public

knowledge

  • Late stage at diagnosis results in higher mortality
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Why is Oral Cancer Awareness Important?

  • A recent cross sectional study of general US

population (Luryi et al. 2014) showed a lack of knowledge of oral, head and neck cancer types

Figures courtesy of Yale School of Medicine

Each of these cancers were identified by less than 5% of respondents

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Why Oral Cancer Awareness is Important (Luryi et al. 2014)

  • When asked respondents could not correctly identify

many signs and symptoms of oral, head and neck cancer

These signs and symptoms were identified by less than 3% of respondents The most common response was incorrect

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Why Oral Cancer Awareness is Important (Luryi et al. 2014)

  • Furthermore, respondents did not show

much knowledge of risk factors for head and neck cancer

  • Of a total of 2126 respondents:

Risk Factor for Head and Neck Cancer % of respondents aware Smoking 54.5 Alcohol 4.8 Chewing/spitting tobacco 32.7 Sun exposure 0.5 HPV infection 0.8

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ORAL CAVITY ONLY

SEER HNSCC 68,000 + Patients

Fritsch, et al, AHNS, NYC, 2014

FLOOR OF MOUTH

TONGUE

ALVEOLAR RIDGE BUCCAL

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ORAL CAVITY ONLY

Zhan, et al, 2016. Unpublished Data

Stage 1 Stage 2 Stage 3 Stage 4

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What can advocacy groups do?

  • Use media, internet, TV, celebrity
  • Support ideas that are common sense but don’t

have a p value < .00000005

  • Advocate for legislation
  • Obtain funding from industry, NIH, private sector
  • Work together with govt, dental and medical

societies, industry, academia, WHO…

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Support/Advocacy/Detection/ Prevention/Education/Research

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Advocacy in HN Oncology

And others

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Vested Organizations

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Legislation

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Global Partnerships: Screening & Education

United Kingdom Pakistan Phillippines

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Opportunities for NGOs and NPOs

  • Expand education and awareness to public and health professionals by

working closely with international government supported agencies(WHO, IARC, CDC, NCI, etc)

  • Work with academic dental and medical centers to study the role of

curricula changes and institute standardized board exam and CME/CDE questions into national exams

  • Collaborate with corporate/pharma to study new diagnostic aids to

enhance early diagnosis

  • Agree to disagree on the “screening question” and revert back to a

minimum common denominator(ie, “oral examination”)

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Summary

  • Non profit and advocacy groups have
  • pportunities to:
  • Expand knowledge and awareness
  • Support interventions not government approved
  • Move the stage at diagnosis lower
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THANK YOU!

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Empowering the public to drive policy developments

 Speaker: Michael Walton,

Founder/Chair of The Ben Walton Trust

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The Ben Walton Trust

 Trust established in 1996

after the death of Ben, aged 22, from oral cancer.

 www.benwaltontrust.org

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Aims of The Trust

 To raise awareness of

mouth cancer amongst general public and health professionals

 To fund research  To encourage appropriate

palliative care

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The Facts

 Mouth cancer kills  7700 new cases per annum in the UK

(Scotland, 770)

 Almost 2000 people die of the

disease per annum (one person every five hours)

 Early detection and rapid treatment

dramatically improve survival

 Increasing number of younger men

and women affected

 Traditional risk factors do not always

apply

 If in doubt, check it out

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What The Trust Does

 Funds research into mouth

cancer in the under 45s

 Collaborates with the media

and health professionals to increase awareness

 Provides emotional and

financial support to vulnerable patients

 Develops training resources for

healthcare professionals

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What can you do?

Be vigilant – any suspicious lesions, get a second opinion and where appropriate refer rapidly.

Ensure referral pathways are clear and consistent.

Encourage patients to have regular dental checks, with a full check of the

  • ral mucosa as part of a healthy lifestyle.

Keep an open mind – do not stereotype patients – mouth cancer can occur at almost any age and in either sex. Traditional risk factors may not apply.

If in doubt – check it out.

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Matthew Myers