georgia office

Georgia Office - PDF document


  1. �������������������� ����������������������� ��������������������� ��������� ���������������������������������� ������������������������ ��������������������������������� ������������������ ���������������������� ��������!����" ��#$%����&��%����������'������& www.advocatesforresponsiblecare.org 404-633-5843 ��������������������������� �������������������� ������������������������ ������� ���������������������������������������� Arthritis Foundation Advocacy ������������������������������������������ Priorities include: ��������������������������������������� � Increasing funding for arthritis research and � ���������������������������� community programs/public health initiatives � ������������������������������������������ � ������������������������ ��!���������"�������� � Encourage GA legislators to sign on to PATA (HR ���#��� 4209) -The Patients' Access to Therapies Act Strategic Plan Impact Objectives Georgia Office � ������������������������� �� � ���������������� ������������������! ��������� ������ � Located in Atlanta �������������� ����������"���"�#�������"������$����������� ��������� ����� � Office in Columbus � %�����������������������������������������������"�&��� � Serve: 1 in 4 adults (1.6 ����$���$������� ��!��������'������(�� million) � ��$ �������� ��������������������������������������� �����"���$������� ��!�������������� � 9,200 children � ������������������� ����������������������� ���������� ��� ������ �

  2. Patient Resources '����� ��������������������������"� )�""������(������� � SAK (Supporting Arthritis Kids) Program ��������������������� � Newly diagnosed children receive SAKs (backpacks with � ���������������������������������� informative info) and families are connected to the AF through physicians � ��������������� � JA Family Education Weekend � ����������������������� � Mini weekend conference for parents, children and siblings � Camp Ache Away � ������� ���� � !�������"����������� ������ � 5 day sleepover camp for children ages 6-15 � no cost to families in Georgia � #$������������� � JULY 1-6 (still in need of medical support staff ) � !��$�������%��������&���������������� � '�"����������%��"�������������� ������� ������������*�������� ������� ������������*�������� ����������������������� ����������������������� � No longer require physician consent � AF provides training to leaders/oversight � Cost is set by host facility ~ approximately $3 - $5 per class � AF maintains list of programs around the state Specialty Tiers Impact In Georgia ������ Cost –Shifting practice that prevents doctors from treating ��������� � Advocates for Responsible Care (ARxC) patient effectively and prevents patients from having access to ���� their medications _ Writes Op-Ed _ Sent letter to Ga. Insurance Commissioner _ Spear-heads forming Specialty Tiers Coalition of The establishment of Health Benefit Exchanges could result in expanded use of specialty tiers. In Medicare, even with the Georgia with Georgia Bio: 18 medical orgs as ����������� Donut Hole discount program, significant out-of-pocket costs members remain for beneficiaries with high-cost chronic conditions. _ Gains Press/Media coverage as Coalition _ Addresses Georgia Health & Human Services Committee In Medicare, even with the Donut Hole discount program, ������ significant out-of-pocket costs remain for beneficiaries with high-cost chronic conditions . �

  3. Specialty Tiers Coalition of Georgia What is Happening? � Advocates for Responsible Care (ARxC) � American Cancer Society of Georgia � Arthritis Foundation, SE region � Atlanta Black Nurses Association � Specialty Tiers Coalition of Georgia � Georgia Society of Clinical Oncology - Partnering with 18 health and illness centered � Georgia Bio � groups in Georgia and national affiliates to pass Georgia AIDS Coalition � legislation to stop discrimination and prohibitive cost of Georgians for a Healthy Future � Georgia Pain Initiative these medications. � Hemophilia of Georgia - Member organizations have issued Policy � LACES statements � Leukemia & Lymphoma Society, Georgia � � Georgia/National Specialty Tier survey Lupus Foundation of America, Georgia, Inc. � Lung Cancer Alliance, Georgia � Assisted with recommendations for MAG � M.A.R.S. Metropolitan Atlanta Rheumatology Society Resolution on Specialty Tiers � Mental Health America � National Multiple Sclerosis Society, Georgia � U.S. Pain Foundation What is Happening? What is Happening? � We reach out to the administration and health reform committees with HHS to correct oversight for reform � Coalition assists Rep. Hank Johnson to stop this cost- benefits shifting practice for Medicare � MS has Georgia Tech students to study ST legislation strategy � Creates Briefing and materials to educate Congress for Georgia and the Press/Media � American College of Rheumatology and Arthritis Foundation � Sent Coalition letter to Pharmacy Caucus, Medical take action toward legislation of HR 4209 Association of Georgia and members of Congress who � Over 400 signatures of petition at AF and Lupus Walks 2012 are pharmacists and some committee chairs What is Happening Now? A Call to Action Strategy: What’s Next? � Call to Action : Public Awareness Campaign � U.S. Representative David McKinley (R-WV) has introduced legislation, known as H.R. 4209-The Patients' Access to The Invisible Project: Photo Journalist Patient Stories Therapies Act (PATA), to end this discrimination by requiring who take ST drugs. Creates large press, media and legislators insurers to impose the same co-pay obligations for Tier attention with public events. IV/specialty drugs, biologics, as they do for Tier III medications. The original bipartisan cosponsors of PATA are � Specialty Tiers Coalition needs patient stories for Awareness Rep. Lois Capps (D-CA), Rep. Henry Cuellar (D-TX), Rep. campaign and legislative testifying. Patient Story Flyer Appeal Barney Frank (D-MA), and Rep. C.W. Bill Young (R-FL). Currently 9 Dems and 6 Republicans. � Support Coalition members activities with LTEs and Op-eds . � Rep. Johnson meeting with Senate Health committee; Inform staff of our mission. looking to adopt legislation. � ST Coalition seeking support for Georgia legislation. (

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