Dr Humphrey Pullon Mr Matthew Eby Haematologist Senior Support - - PowerPoint PPT Presentation

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Dr Humphrey Pullon Mr Matthew Eby Haematologist Senior Support - - PowerPoint PPT Presentation

Dr Humphrey Pullon Mr Matthew Eby Haematologist Senior Support Services Coordinator Hamilton Leukaemia & Blood Cancer Foundation New Zealand Hamilton 16:30 - 17:25 WS #64: Managing Haemopoetic Disease in the Community 17:35 - 18:30 WS


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Dr Humphrey Pullon

Haematologist Hamilton

16:30 - 17:25 WS #64: Managing Haemopoetic Disease in the Community 17:35 - 18:30 WS #76: Managing Haemopoetic Disease in the Community (Repeated)

Mr Matthew Eby

Senior Support Services Coordinator Leukaemia & Blood Cancer Foundation New Zealand Hamilton

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Leukaemia & Blood Cancer New Zealand Support Services

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Leukaemia & Blood Cancer New Zealand

Psychosocial support Education Practical Assistance Advocacy Research

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Leukaemia & Blood Cancer New Zealand

Every Day

LBC provides individualised support to over 50 patients

  • r family members

Every Week

LBC distributes over 36 financial assistance vouchers

Every Year

LBC actively supports over 4,000 patients and their whānau

Every Year

LBC holds over 220 education and support groups

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SLIDE 5

Information and Resources

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LBC’s Online Presence

  • Website – includes PDFs of all our information booklets, children’s books and

fact sheets as well as resources for health professionals.

  • Referral Forms – now available on our website for easy submission online.
  • Facebook groups - a forum for patients to connect.
  • Myeloma patients group
  • Lymphoma patients group
  • Chronic Leukaemias
  • Acute Leukaemias
  • Carers group
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What do you need to apply? ▪ Quotes for any expenses associated with the activity, including accommodation, flights and other travel, conference registrations, and other expenses for which you are applying for funds. ▪ A copy of the abstract for the paper or poster you are presenting at the conference, if you are presenting. ▪ A letter of recommendation from your Clinical Director or Academic Supervisor. The letter of support should be detailed and outline the benefit for you to attend this event/conference. ▪ Details of the conference or workshop you are planning to attend (in the form of a conference programme or something similar). ▪ A brief outline of your contribution to the haematology field and why this conference would benefit your work.

Research and Travel Grants

www.lbcgrants.org.nz

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2017 Nationwide Survey

Our goals

  • 1. What are the challenges faced by our patients and carers?
  • 2. What needs arise from these challenges?
  • 3. What kinds of support do people need?
  • 4. How well is LBC meeting these needs?
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Survey Results

Survival and Survivorship

People with a blood cancer or blood condition need support in two broad areas; Survival and Survivorship. What this means and looks like for both patients and carers differs dependent on what stage of the cancer journey they are at.

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Survival

Types of support as needed by stage

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Education and Information

When did you most need information?

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Emotional Support

When did you most need emotional support?

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Survivorship

When did you most need survivorship support?

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Survivorship

Most patients needed information, someone to talk to and encouragement/ assurance to help them address:

  • Lack of energy/ fatigue (52%)
  • Protecting or improving my sense of wellbeing (42%)
  • Thinking about future treatment, including towards the end of life

(42%)

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Survivorship

Other ways LBC can help

  • Educate more about the condition and treatment options – what to

expect and how to prepare (in collaboration with health professionals).

  • Educate about side effects and late effects
  • Assistance with making choices
  • Support those feeling isolated and to help connect with others

going through a similar experience.

  • Assistance to cope with stress, fear and anxiety
  • Source more resources to ensure practical needs are met.
  • Help organise transport and provide vouchers to help meet costs
  • Initiate survivorship and rehabilitation programmes
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Health Professional Interviews

Main causes of non referral are:

  • Absence or low-visibility of policy and operating procedures
  • What services LBC and community care are able to offer
  • No knowledge of correct referral procedure
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Summary

How to best help the haematology patient

  • Reach more people at diagnosis
  • Provide more in-person support
  • Develop LBC’s relationships, profile and influence with key service

providers and networks

  • More support for carers
  • Segmenting support services
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Thank you Any questions?