National Cancer Survivorship Initiative - Models of Care The South - PowerPoint PPT Presentation

National Cancer Survivorship Initiative - Models of Care The South West Regional CYP Oncology Shared Care Network

Partner Organisations • Bristol Royal Hospital For Children • University Hospitals Bristol NHS Foundation Trust • Avon Somerset and Wiltshire Cancer Services Network • Peninsula Cancer Network • South West Specialist Commissioning • South West Cancer Hub • South West Children’s Cancer Research Registry

Bristol to: Manchester 168 miles London 119 miles Lands End 195 miles Truro 163 miles Plymouth 116 miles

‘Safe care as locally as possible …’

Aims • Explore models of follow up shared with secondary care • Project will include: – continuity of care – transition to adult services – individual care planning

Scope of testing – phase 1 • Define population at risk – who needs the service? • Service mapping – what is currently being provided and who is providing it? • Assessing patient attitudes to follow up – what do patients want? • Assessing professional attitudes to follow up – what do professionals think patients want? • Gap analysis – who is actually available to contribute to the service and what resources are missing

Phase 1 – work packages • • WP 1 – Population WP 4 – Service mapping – Identify survivors – Available resources – Map locations to possible hubs – Gap analysis • – Inspire and motivate others WP 2 – Focus groups • – Evaluate survivors current WP 5 – Service design and work force planning experiences and evaluations to FU – Appoint project manager – 3 groups – Exeter, Plymouth, – Appoint and train CNS Truro – Design service – Psychologist led – Develop late effects MDT • WP 3 – Questionnaires and tools • WP 6 – Dissemination – Delphi process – professionals – Promote model to users and attitudes professionals – Questionnaire – involvement of – Share and publish findings professionals in peninsula • WP 7 – Database – Identify evaluation tools • WP 8 – Pilot (phase 2) – Discuss project with LREC • WP 9 – Evaluation (phase 2)

End of phase 1 • Define the optimal service model based on patient and professional expectation and available resources Phase 2 – implementation and testing

Phase 2 • Negotiate resources to deliver model as agreed • Pilot model • Evaluate model • Adjust and implement final model of care

Phase 2 – testing of model Hypothesis ‘ EFFECTIVE long term follow up can be delivered with high levels of SATISFACTION in a shared care setting under the guidance of the principal treatment centre and the support of staff with specialist knowledge’

Phase 2 - testing • Effectiveness – Attendance and DNA rates – Audit of treatment summary availability and risk profile – Audit of provision of relevant information to patient / GP / other relevant health workers – Evidence of negotiated plan of follow up – Change in patient’s knowledge and attitude to follow up – Improved HRQL – SF12

Phase 2 testing • Satisfaction – Consultation satisfaction – PMH tool – Assessment of satisfaction with other aspects of process using self designed criteria measured on Likert scales – Evidence of spontaneous positive and negative feed back received

Progress so far • Steering group convened • Project Manager appointed • Youth support worker and psychologist recruited to run focus groups • Care plan and long-term follow up module almost complete