National Cancer Survivorship Initiative - Models of Care The South - - PowerPoint PPT Presentation

National Cancer Survivorship Initiative - Models of Care

The South West Regional CYP Oncology Shared Care Network

Partner Organisations

• Bristol Royal Hospital For Children
• University Hospitals Bristol NHS Foundation Trust
• Avon Somerset and Wiltshire Cancer Services

Network

• Peninsula Cancer Network
• South West Specialist Commissioning
• South West Cancer Hub
• South West Children’s Cancer Research Registry

Bristol to: Manchester 168 miles London 119 miles Lands End 195 miles Truro 163 miles Plymouth 116 miles

‘Safe care as locally as possible …’

Aims

• Explore models of follow up shared with

secondary care

• Project will include:

– continuity of care – transition to adult services – individual care planning

Scope of testing – phase 1

• Define population at risk – who needs the service?
• Service mapping – what is currently being provided

and who is providing it?

• Assessing patient attitudes to follow up – what do

patients want?

• Assessing professional attitudes to follow up – what

do professionals think patients want?

• Gap analysis – who is actually available to contribute

to the service and what resources are missing

Phase 1 – work packages

• WP 1 – Population

– Identify survivors – Map locations to possible hubs

• WP 2 – Focus groups

– Evaluate survivors current experiences and evaluations to FU – 3 groups – Exeter, Plymouth, Truro – Psychologist led

• WP 3 – Questionnaires and tools

– Delphi process – professionals attitudes – Questionnaire – involvement of professionals in peninsula – Identify evaluation tools – Discuss project with LREC

• WP 4 – Service mapping

– Available resources – Gap analysis – Inspire and motivate others

• WP 5 – Service design and work

force planning

– Appoint project manager – Appoint and train CNS – Design service – Develop late effects MDT

• WP 6 – Dissemination

– Promote model to users and professionals – Share and publish findings

• WP 7 – Database
• WP 8 – Pilot (phase 2)
• WP 9 – Evaluation (phase 2)

End of phase 1

• Define the optimal service model based on

patient and professional expectation and available resources Phase 2 – implementation and testing

Phase 2

• Negotiate resources to deliver model as

agreed

• Pilot model
• Evaluate model
• Adjust and implement final model of care

Phase 2 – testing of model

Hypothesis

‘ EFFECTIVE long term follow up can be delivered with high levels of SATISFACTION in a shared care setting under the guidance

• f

the principal treatment centre and the support of staff with specialist knowledge’

Phase 2 - testing

• Effectiveness

– Attendance and DNA rates – Audit of treatment summary availability and risk profile – Audit of provision of relevant information to patient / GP / other relevant health workers – Evidence of negotiated plan of follow up – Change in patient’s knowledge and attitude to follow up – Improved HRQL – SF12

Phase 2 testing

• Satisfaction

– Consultation satisfaction – PMH tool – Assessment of satisfaction with other aspects of process using self designed criteria measured on Likert scales – Evidence of spontaneous positive and negative feed back received

Progress so far

• Steering group convened
• Project Manager appointed
• Youth support worker and psychologist

recruited to run focus groups

• Care plan and long-term follow up module

almost complete