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Doug Fridsma MD PhD FACMI President & CEO, AMIA
Blue button is a campaign to empower patients to get electronic access to their data
- Supported by a portfolio of standards
Blue Button: An opportunity to engage patients in precision - - PowerPoint PPT Presentation
Blue Button: An opportunity to engage patients in precision - - PowerPoint PPT Presentation
Blue Button: An opportunity to engage patients in precision medicine and a national cohort Doug Fridsma MD PhD FACMI President & CEO, AMIA Blue button is a campaign to empower patients to get electronic access to their data -- Supported
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Blue Button Pledge Program
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Full list at healthit.gov/pledge
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Today >50% of us can get our health records via Blue Button partners
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Characteristics of national cohort data “ecosystem”
- Decentralized control
- Federation and data sharing (via standards)
- Patient will be the one common feature
- Unknowable and diverse requirements
- Iterative, incremental development, since we will learn as we go
- Continuous evolution and deployment
- Tolerate differences in semantics, syntax, and sophistication
- Path of least regret
- Normal failures
- Security is important, recovery and restoration even more so
- Orchestration rather than command and control
- We will be helping to orchestrate this work, rather than playing all
the instruments
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Semantic Interoperability Syntactic Interoperability
Meaning Content Structure
How can we leverage the blue button?The five things to standardize
How should well-defined values be coded so that they are universally understood? How should the message be formatted so that it is computable? How does the message move from A to B? How do we ensure that messages are secure and private?
Transport Security Services
How do health information exchange participants find each other?A
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Blue Button standards portfolio
VA (V 1.0) Clinical care summary “View, Download, Transmit (MU2) Explanation
- f benefits
Care summary (pub/sub) Full extract Proposed S4S Meaning National vocabularies National vocabularies National vocabularies Free text/national vocabularies National vocabularies Structure Free text CCDA CCDA CDA CCDA CDA wrapper FHIR – CDE plus “container” Transport http/ download http/ download SMTP /
- thers?
http/ download ReSTful Atom/FSS http/downloa d ReSTful Security Portal/passw
- rd
Portal/passw
- rd
X.509 certificates Portal/ password OpenID/ OAuth Portal/passw
- rd
OpenID/OAut h API/Services yes
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Structured vs Unstructured Data
S4S can leverage granular data through the CDE
standard, FHIR resources, APIs, and industry best practice authentication and transport protocols
HOWEVER Also need to include unstructured, comprehensive data
Still not possible to get a complete extract of your medical
record from an EHR and import it into another EHR or another application
But the standards are nearly there to get us started
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What we need to get started that will enable patients to contribute their data to a national cohort
A way to extract ALL patient data from an
Many of the standards are ready to test and use “wrappers” around free text A “begin file”/”end file” specification Structure what you can, but don’t let perfect be the enemy of
good