and its 2017 first french nation-wide Growth Awareness Campaign - - PowerPoint PPT Presentation

Peter Coopman (peter.coopman@grandir.asso.fr) ICOSEP Annual Meeting, April 19-21 2018, Warsaw

The « Grandir » association and its 2017 first french nation-wide Growth Awareness Campaign

« Grandir » association France

Structure & organization Publications Communication Activities 2017 Growth Awareness campaign

Structure & organization

President (Dr. Béatrice Demaret) Bureau (5 members) Administration council (20 members) Scientific advisory board (10 MDs) Regional responsables (12 in France, 1 in Switzerland) Relay families (~27) ALL ARE VOLUNTEERS!!

Founded March 1979, recognized by Ministry of Health Concerns all growth hormone-related pathologies

Publications

Newsletter/Journal

(members, hospitals, communication activities)

Information Flyer

(Physicians, hospitals, communication activities)

Publications

Information booklet « I’m too small »

(Educational nurses, Physicians, hospitals, communication activities)

Communication Written press & occasional interviews:

e.g. trial of the « contaminated growth hormone »

Internet

forum & discussion groups (open & anonymous)

web site

grandir.asso.fr

twitter.com/AssoGrandir

grandir.asso.fr

Activities

Local medical information meetings (given by MDs) Annual national family meeting

A « must » for kids, young adults, parents,… Key activity: self-injection workshop

Activities

Colonies for children / teenagers Fundraising activities: sport events,…

Next colony: Theix October 21-28 2018

How medical students and social media worked for the 2017 Growth Awareness campaign

Organized by: Romain Vankemmel romain.vankemmel@ grandir.asso.fr

How we involved our medical university in 7 steps :

1) Think how to make awareness efficient, plan, prepare, search for sponsorship (low budget)

2) Refer to specialist’s advice

(Pediatric Endocrinology Dpt.) (poster content, How to talk about growth disorders)

3) Ask for permission (vice-dean student affairs) 4) Display : contact University communication

department to display awareness messages indoors on video screens

5) Promote the event : official announcement by

the Dean of the University

6) Announce the campaign to medical students 7) Be present! (2h/day, during 1 week, sept. 19-23)

Who we targeted :

• All medical students, who are / will be doing internships in pediatric departments and in general practice
• In the Lille School of Medicine, North of France = more than 11,000 students

(largest medical university in France)

• WILL BE REPEATED IN 2018 by Romain!!! & in other universities???

Time frame

February to May May June Weeks before Days before

(See video)

Displayed Poster

(Univ. main entrance hall)

& 200 Flyers

(english) (Print shop sponsored)

For the next poster to medical students, your ideas are welcome !

romain.vankemmel@ grandir.asso.fr

Facebook movie

Good growth = good health Growth problems: act quickly Wednesday sept 20th: World’s Children’s growth awareness day Join us

Legend: number of persons

• blue & purple : < 30
• green : 30 to 49
• yellow : 50 to 79
• orange : 80 to 119
• red : 120 to 700

How we used social networks: 4 tools

• Whiteboard video on Facebook/Web page
• “Smart messages” on Facebook wall

(jpeg format, blue background)

• “Grandir profile picture” to use and share
• Request : “please share !” Facebook messages

Number of views of our Facebook page

A maximum of 5,000 views on the Awareness Day (September 20th )

Location of persons that reached the campaign by Facebook (Facebook stats)

Results of our 2017 first french nation-wide Growth Awareness campaign

• Novel initiatives of medical students during their internships (information, discussion, support)
• Increased awareness amongst physicians and students in the north of France (> 12 000 km2)
• At the national level: more followers on social media (Facebook)

More families contacted the “GRANDIR” association

• More actions have been initiated to raise funds and increase awareness (eg running competition)
• Support has been provided from other patient associations during the campaign : special thanks to

ICOSEP (Ashley & Jamie) MAGIC (Mary) Child Growth Foundation (UK) Turner Syndrome Global Alliance Des choeurs pour Grandir (Silver Russell Syndrome) Association Surrénales Craniopharyngiome Solidarité

president@grandir.asso.fr