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Welcome To the Ideas Exchange 2017 Consumer Action Responsive Empowerment Section One Workshop One 21 st Century Systems of Care: Participatory Design in Mental Health. Presentation Structure Participatory Design Example One: Young and


  1. Welcome To the Ideas Exchange 2017 Consumer Action Responsive Empowerment

  2. Section One Workshop One 21 st Century Systems of Care: Participatory Design in Mental Health.

  3. Presentation Structure Participatory Design  Example One: Young and Well CRC  Example Two: DVA High Resilience Website  Example Three: Digital Mental Health Gateway 1

  4. Youth Participation // Our Youth Brains Trust and First Peoples Youth Council 2

  5. OUR YOUTH BRAINS TRUST The Youth Brains Trust is a group of enthusiastic and committed young people from around Australia, who are passionate about improving their own wellbeing and that of their peers. 3 6

  6. Participatory Design of evidence-based online youth mental health promotion, intervention and treatment // A Young and Well Cooperative Research Centre innovative methodologies guide September 2012 Dr Penny Hagen 1 Dr Philippa Collin 2 Atari Metcalf 3 4 Young and Well CRC Mariesa Nicholas 4 Unit 17, 71 Victoria Crescent Kitty Rahilly 5 Abbotsford VIC 3067 Australia 7 youngandwellcrc.org.au Nathalie Swainston 6 24/04/2018 // Safe. Healthy. Resilient.

  7. WHY INVOLVE YOUNG PEOPLE? • Understand the issues from the perspective of young people • Young people are the experts of their own lives A participatory design • approach enables us to Provide meaningful participation in decision making about make mental health issues that directly affect them objectives MEANINGFUL • Build an empathy for, and connection to, the lives and lived and RELEVANT to young experiences of young people people so that our interventions have more • Understand proposed interventions from their perspective, IMPACT . how they integrate into their lives and their perception of the impact and benefits. References include: • Collin, P., Rahilly, K., Stephens-Reicher, J., Blanchard, M., Herrman, H., Burns, J., 2009. Youth Participation Evaluation: Meaningful participation for promoting mental health and wellbeing of young Australians. Inspire Foundation, Sydney. • James, A.M., 2007. Principles of youth participation in mental health services. Medical Journal of Australia 187, 57 – 9. • Monson, K., Thurley, M., 2011. Consumer participation in a youth mental health service: Consumer participation in a youth mental health service. Early Intervention in Psychiatry 5, 381 – 388. doi:10.1111/j.1751-7893.2011.00309.x 5

  8. YOUNG PEOPLE AS PARTNERS IN RESEARCH 6

  9. MYASSESSMENT // Lets get you started! 7

  10. MYASSESSMENT // How Technology Can Help 8

  11. GUIDING PRINCIPLES Effective participation must be well resourced Not just a pretty face Seek input and advice Manage expectations Feedback to the group Employ a diversity of methods Provide value to young people Include all stakeholders 9

  12. SUPPORTING PARTICIPATION Personal Wellness Plans - Minimise barriers - Maximise engagement Clinical support for staff and participants Consider unintended physical or cultural barriers Allow members to meet online prior to in person Provide space for reflection but avoid isolation Build group cohesion and culture of peer support 10

  13. KEEPING THEM INFORMED Active participation in planning Sufficient notice to be available Informed decision making Resourced to be involved Knowledge of available support Feedback on outcomes of involvement 11

  14. WORKING IN PARTNERSHIP 12

  15. EXAMPLES OF INVOLVEMENT Board sub-committees Research proposal reviews Project advisory groups Policy development and consultations Presentations and media commentary Digital content creation 13

  16. Presentation Structure Participatory Design  Example Two: DVA High Resilience Website 14

  17. DVA High Res Website 15

  18. Presentation Structure Participatory Design  Example Three: Digital Mental Health Gateway 16

  19. THE DIGITAL MENTAL HEALTH GATEWAY Reimagined 17

  20. PARTICIPATORY DESIGN CO-DESIGN APPROACH Design Test Develop Draft MVP Draft MVP Hypothesis Evaluate Design Design Design Design Define Position Concept Create Use Identify Phase 1 Develop hypotheses Phase 2 Develop draft MVP Phase 3 Test draft MVP 18 FOR OFFICIAL USE ONLY

  21. “Throughout the Alpha Stage you need to explore a bold future vision for the end to end service” - Digital Service Standard Digital Transformation Office FOR OFFICIAL USE ONLY 24/04/2018 19

  22. PHASE 1 DEVELOPING HYPOTHESES Hypotheses focussed on: Validate: Entry Points 1. Entry point – funnel shape 2. Strength based versus traditional symptom based structure 3. Design – browse, search and conversation Content 1. Structure – categories, groupings, visual representation, rankings 2. Evidence based, evidence informed, peer recommended 3. New format type Data 1. Sharing and storing 2. Registration – trustworthy Gateway Multi-channel 1. Content and tools in multi-channel environment FOR OFFICIAL USE ONLY 24/04/2018 20

  23. Phase 2 “I thought my life was completely over because I couldn’t find any info that Key insights resonated.” “You need a place where it’s safe to be vulnerable” 1. Whole of life journey 2. Multiple journeys 3. Different touchpoints “The Gateway should be a journey: different touch points, not static, for life, to try and grow.” 4. Community 5. Localisation 6. Accessibility 20

  24. Who? Primary users 1. Mental health consumer “Throughout the Alpha 2. Supportive other Stage you need to explore a bold future vision for the end Secondary users to end service” 3. Health Professionals - Digital Service Standard, Digital Transformation 4. Contact Centre Agents. Office FOR OFFICIAL USE ONLY 24/04/2018 21

  25. What? Support types 1. Information and advice “Throughout the Alpha 2. Self directed and Stage you need to explore a actionable bold future vision for the end to end service” 3. Community and peer support resources - Digital Service Standard, Digital Transformation Office 4. Professionally guided resources FOR OFFICIAL USE ONLY 24/04/2018 22

  26. Why? Entry points 1. I don’t know what I’m looking for or why I’m feeling, behaving or thinking this way. 2. I know why I’m here and what I’m looking for. 3. I’m looking for wellness based self-management tools and resources. 4. I’m supporting someone else. FOR OFFICIAL USE ONLY 24/04/2018 23

  27. Phase 3 1. How do I discover the Gateway? Discover 2. How do I consume 1. Information and advice Gateway content? 2. Self directed and actionabl 3. How do I engage with the Gateway? 3. Community and peer support resources Engage Consume 4. Professionally guided resources FOR OFFICIAL USE ONLY 24/04/2018 24

  28. “Throughout the Alpha Stage you need to explore a 1. Information and advice bold future vision for the end to end service” 2. Self directed and actionabl - Digital Service Standard, 3. Community and peer Digital Transformation support resources Office Discover 4. Professionally guided resources To truly engage this audience, the service needs to be multi-channel. The service needs to reach people in channels they use and feel comfortable in, rather than passively expect potential users to find it. FOR OFFICIAL USE ONLY 24/04/2018 People’s journey needs to transcend channels.

  29. NATURAL DISCOVERY RESEARCH The social audience is increasingly • focused on messaging. Facebook’s audience is maturing. • Consumers are smart and social. • FOR OFFICIAL USE ONLY 26

  30. Consume To bring the Gateway to life, content must be accessible and meaningful. The content model should be strengths based, follow a robust yet flexible framework, and have a respectful tone; enabling a person to navigate a system that is fragmented and confusing. 24/04/2018 FOR OFFICIAL USE ONLY 27

  31. Consume Language and tone 1. Respectful 2. Understanding 3. Honest 4. Empowering 5. Non- judgmental FOR OFFICIAL USE ONLY 24/04/2018 28

  32. CONSUME EXPLORING CONTENT Search Browse Converse FOR OFFICIAL USE ONLY 24/04/2018 29

  33. CONSUME CONVERSATION AND REAL-TIME SUPPORT Allows for: Distribution across multiple channels. • Multichannel real-time support. • 30 FOR OFFICIAL USE ONLY

  34. Engage Access to digital mental health content and real-time support encourages a consumer to realise the full value of the Gateway while allowing them to remain completely anonymous. 24/04/2018 FOR OFFICIAL USE ONLY For the gateway to evolve, engagement needs to focus on providing consumers with content in a channel of their choice rather than a traditional transactional and/or embedded website.

  35. The Service The ‘new way’ Some words here The way people find and use services are changing, becoming more streamlined and simplified – because this is what people expect. “The Gateway needs to be transformational not transactional” FOR OFFICIAL USE ONLY 24/04/2018 32

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