UCLH Members Meet Pituitary disorders UCLH Department of Diabetes - PowerPoint PPT Presentation

UCLH Members Meet Pituitary disorders UCLH Department of Diabetes & Endocrinology 15 th November 2016

The pituitary journey- behind the scenes of a multidisciplinary team • Dr Umaira Aziz, SpR in Endocrinology • Dr Umasuthan Srirangalingam, Consultant Endocrinologist • Miss Joan Grieve, Consultant Neurosurgeon • Inma Serrano, Clinical pituitary nurse Specialist • Afizah Nobeebux, Specialist nurse in Endocrinology • Dr Stephanie Baldeweg, Consultant Endocrinologist

Program An introduction into the healthy pituitary gland and its hormones The pituitary gland: what can go wrong? Pituitary surgery The role of the specialist pituitary nurse Lifestyle and pituitary disease The pituitary journey- how to navigate your condition Questions and Answers

A pituitary experience: can we make it more positive ?

Ingredients • Patient • Medical/ surgical team • Hospital • Treatment(s) • Future

The Patient

The patient ’ s journey • Long • Complicated • Not pleasant • Not of my own choosing • Uncertainties all along • ********

The patient ’ s journey starts • Dentist • GP • Orthopaedic surgeon • Psychiatrist • Optician/ ophthalmologist • Friends • A stranger on the bus/ train/golf course • Casualty/ ER • Internet The Patient

Patient meets the team

The team • Biochemist • Receptionist • Pathologist • Consultant Neurosurgeon • Specialist Nurse • Radiologist • Consultant Endocrinologist • Ophthalmologist • Staff Nurses • Radiotherapist • Junior doctors • Pharmacist • Porters • Secretary • Theatre staff

The team • Biochemist • Receptionist • Specialist Nurse • Pathologist • Consultant Endocrinologist • Radiologist • Consultant Neurosurgeon • Ophthalmologist • Staff Nurses • Radiotherapist • Junior doctors • Pharmacist • Theatre staff • Secretary

The Team The Patient

A pituitary experience: can we make it more positive? Tip No 1: Join the team The Team

A pituitary experience: can we make it more positive? Tip No 2: Check who is who • How experienced are they? • Are they familiar with your notes/ story ? The Team • Who is making the decisions? • Will they discuss with the consultant ? • Can you meet the Consultant? • How will you hear of the outcome?

The endocrinologist ’ s journey 5-6 years Medical students Pre-registration House Officers 1 year Senior House Officers (SHO) 2-4 years Specialist Registrars ( SpR) 5-8 years Diabetes, bone disease, fertility, pituitary, oncology, thyroid, pregnancy, general internal medicine Consultants Total training 13-19 years Experience as consultant 1-30 years

The place / the visit

• Specialised centres in the UK • 1- 2 dedicated surgeons • Joint pituitary clinic with surgeons and endocrinologists

A pituitary experience: can we make it more positive? Tip No 3: Check the place out • Is this a specialist centre? • Is your surgeon doing most of the pituitary operations there? • Is there a joint clinic with endocrinologists & neurosurgeons?

A pituitary experience: can we make it more positive? Tip No 4: Invite your GP The Team into the team GP

A pituitary experience: can we make it more positive? Tip No 5: The Team Get the most out of your clinic visit • A friend or relative (Introduce them) • Copies of letters/ scans (This clinic, Other clinics, Names of doctors) • List of medication • Prepare list of questions • Communicate how you feel • How to communicate in the future

A pituitary experience: can we make it more positive? Tip No 6: The Team Ask all you want to know about surgery! • What is your cure rate? • How likely are you to cure me? • What are the possible complications and how likely are they? • How long will I be in hospital for? • Will I need other treatments afterwards? • Is there any written information I can take home? • What happens next?

A pituitary experience: can we make it more positive? Tip No 7: The Team Ask all you want to know about drugs! • What are they for? • How effective are they? • What are the possible side effects and how likely are they? • How long will I be taking these? • Is there any written information I can take home? • What happens next?

A pituitary experience: can we make it more positive? Tip No 8: The Team Ask all you want to know about radiotherapy! • Why do I need this? • How effective is radiotherapy? • What are the possible side effects and how likely are they? • Where and how will I be treated? • Is there any written information I can take home? • What happens next?

The state of pituitary care today • Complex • Multidisciplinary • Patient -centred • Consultant- led • Cost-driven • Communication is central

A pituitary experience: can we make it more positive? • Join the team • Check who is who • Make your GP an ally • Get the most out of your clinic visit • Ask all you want to know about your treatment • Communicate