Trudie Lobban MBE Founder and Trustee Todays Meeting Brief overview - - PowerPoint PPT Presentation

trudie lobban mbe founder and trustee today s meeting
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Trudie Lobban MBE Founder and Trustee Todays Meeting Brief overview - - PowerPoint PPT Presentation

Arrhythmia Alliance International Project HRC, 6 th October, 2010 Trudie Lobban MBE Founder and Trustee Todays Meeting Brief overview of A-A to date New Partners Global role of A-A Europe, Asia & Latin America


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SLIDE 1

Trudie Lobban MBE Founder and Trustee

Arrhythmia Alliance International Project

HRC, 6th October, 2010

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SLIDE 2

Today’s Meeting

  • Brief overview of A-A to date
  • New Partners
  • Global role of A-A – Europe, Asia & Latin

America

  • Establishment & Role of A-A International

Medical Advisory Committee (IMAC)

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SLIDE 3

The A-A supports and promotes the aims & objectives of the individual groups.

Arrhythmia Alliance

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SLIDE 4

Mission Statement

  • “Every person affected by an arrhythmia will receive

information, support and rapid access to appropriate treatment”

  • Will achieve this through advancing

Awareness Diagnosis & Treatment Improved Quality of Life of those affected

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SLIDE 5

International Partners and Affiliates

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SLIDE 6

Aims of A-A International Project

  • Provide access to knowledge and skills of

health professionals specialising in arrhythmia care

  • Provide support and education to patients,

carers and medical professionals

  • Improve quality of life for all those affected by

cardiac arrhythmias

  • Share and exchange ideas and best practices
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SLIDE 7

International Partners and Affiliates

  • A-A in the UK is a coalition of charities, patient

groups, patients, carers, medical groups and allied

  • professionals. These groups work together under

the A-A umbrella to promote timely and effective diagnosis & treatment of arrhythmias.

  • A-A International is a platform for unifying best

practices in arrhythmia services, and advocating for equal patient access to high quality services in countries around the world.

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SLIDE 8

International Toolkit

The Toolkit explained :

Enlist missions Enlist Leadership Strategic Plan Register as charity Awareness WHRW Fundraising Outreach Website

7 3 4 5 8 6 2 1 8 Steps for Establishing an A-A group

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SLIDE 9

Toolkit Aims and Objectives

  • Unified approach
  • Establishing A-A National

Partners in other countries

  • Provides support and

information

  • Acts as a guide – a

working document that will evolve

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SLIDE 10

International Website

  • Tools to support Partners

and Affiliates

  • Patient Medical Area
  • News and Events
  • Projects and Campaigns
  • Secure Area – Forum
  • Overseas Affiliate Groups
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SLIDE 11

Overview A-A International Partners

A-A Portugal – Bate Bate Coracao

Is working very hard on raising awareness and has won the 2009 Health Award

A-A Sweden – Arythmi Alliansen

Is in the process of organising patient meetings - 180 patients attended of which 80 had an ICD implant

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SLIDE 12

Overview A-A International Partners

A-A Japan

Arrhythmia Alliance Japan celebrated World Heart Rhythm Week 2009 with the launch of their new website. Their partnership to A-A through The Health Policy Institute of Japan has provided a platform for advocacy (Commission on Citizens and Health) and leadership in providing awareness and education on arrhythmias. A-A China A-A China was established in 2009 in collaboration with cardiologist from the Peoples Hospital Beijing. Translations have been completed and added the education material to the web. A-A China established the Teleheart Rhythm Monitor Centre and introduced A-A in the SCD and Syncope Prevention Meeting, May 2010.

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SLIDE 13

NEW A-A International Partners

A-A Argentina – PRONETAC The Rotary Club in Buenos Aires is supporting A-A Argentina who now have their own offices and are translating our materials. Trudie will attend the first anniversary-cocktail party

A-A Italy – ANA Aritmie Italy has completed the registration process and will have translations ready by December 2010. The website will be promoted with the emphasis on GPs

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SLIDE 14

A-A Argentina Offices

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SLIDE 15

NEW A-A International Partner

A-A Australia

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World Heart Rhythm Week

  • Organised by A-A in partnership with

the International Cardiac Pacing and Electrophysiology Society

  • Supporters, organisations and

individuals around the globe focus attention on heart rhythm disorders

  • Participating countries make

WHRW an international awareness event

  • A WHRW Toolkit is available to

guide countries participating in this exciting opportunity

  • WHRW was used as an opportunity to

raise awareness of sudden cardiac arrest during the FIFA World Cup

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SLIDE 17

Summary of Results WHRW

  • 334 pieces of coverage generated wor
  • rld

ldwi wide de

  • Audience of over 91,013,021 reached
  • 203

203,098 ,098 downloads of the Know Your Pulse online app, to date

  • 1,550 downloads of the Know Your Pulse iPhone app, to date
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SLIDE 18

Results Overview WHRW

334 articles generated to date An audience of over 91,013,021 reached

Details of media audience

Social media 1% Medical 4% Consumer 95%

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SLIDE 19

Articles Generated Per Country

192 30 23 53 1 35 20 40 60 80 100 120 140 160 180 200 Number of articles Global Italy Portugal UK Spain South Africa Country

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World Heart Rhythm Week 2010 Highlights

  • Organised by A-A in partnership with the

International Cardiac Pacing and Electrophysiology Society

  • WHRW was used as an opportunity to

raise awareness of sudden cardiac arrest during the FIFA World Cup

PACE South Africa - A-A S Africa :

Organised a new world record supported by Lucas Radebe

Bate Bate Coracao – A-A Portugal :

„Beat Beat of your heart-feel the rhythm‟ was promoted during WHRW and was a big success with more then 5000 people

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SLIDE 21

World Heart Rhythm Week 2010 Overview

Pronetac – A-A Argentina :

  • Representatives from Pronetac with the Minister of

Public Health from Buenos Aires.

  • Press coverage – 24 articles, 9 radio interviews, 5 TV

Interviews and organised CPR courses

  • Endorsement of famous national footballer

recommending medical control of „your pulse‟.

Alleanza Nazionale contre le aritmie (ANA) – A-A Italy :

Launched a successful media campaign with full media coverage across Italy.

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SLIDE 22

A-A Global Coverage

Over 192 global media outlets replicated the English press release

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SLIDE 23

A-A International Medical Advisory Committee (A-A MAC)

  • Who is it made-up of
  • A-A Medical Partners input
  • Aims of A-A MAC
  • Advisory on A-A Literature

Role of A-A MAC

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SLIDE 24

Any questions?

  • Outcomes/Actions
  • AOB

Trudie Lobban MBE www.heartrhythmcharity.org.uk

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SLIDE 25
  • International Roundtable - October 6th
  • Live Cases
  • Patient Day
  • Devices and Intervention Courses

www.heartrhythmcongress.com

HEART RHYTHM CONGRESS 2011