Then and Now 20 years ago there wasnt a mechanism in place to share - - PowerPoint PPT Presentation

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Apr 15, 2023 224 likes •412 views

| CLAE Conference - September 21, St. Johns, NL 1 T H E N E X T G E N E R AT I O N Presented by: Gail Dempsey | Past President Canadian Epilepsy Alliance Executive Director, Epilepsy Newfoundland and Labrador NP2 | CLAE Conference -

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| CLAE Conference - September 21, St. John’s, NL

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T H E N E X T G E N E R AT I O N

Presented by: Gail Dempsey | Past President

Canadian Epilepsy Alliance Executive Director, Epilepsy Newfoundland and Labrador

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| CLAE Conference - September 21, St-John’s NFLD

Then and Now

20 years ago there wasn’t a mechanism in place to share resources across the county…

Now there is: A national agency comprised of 27 community agencies coast to coast helping Canadians with epilepsy

NP2

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Slide 3 NP2 I increased the space between the lines so it's easier to read

Nikki Porter, 9/7/2018

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| CLAE Conference – September 21, St. John’s, NL.

Founded 1998: To make life better for all Canadians living with epilepsy

Who We Are

NP13 PR1

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Slide 4 NP13 In the speaking notes, can we change "individual and group counselling" to individual and group support"? From my Ontario survey, most of the agencies here explicitly do not provide counselling. Counselling means something very specific. We don't want doctors to start referring patients to us for counselling we don't provide.

Nikki Porter, 9/7/2018

PR1 done!!!

Paul Raymond, 9/10/2018

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| CLAE Conference – September 21, St. John’s, NL

What We Do

Together we provide direct support to individuals and families living with epilepsy

System Navigation
Advocacy – Partnerships are key to our success
Working with like agencies:
Canadian League Against Epilepsy
Neurological Health Charities Canada
Best Medicines Coalition
Matthew’s Friends Canada
International Bureau for Epilepsy
Canadian Police Knowledge Network

NP4 PR2

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Slide 5 NP4 There are two lines about expressing the concerns of people with epilepsy. Should remove at least one. This is one of the things I'd like to talk to you about. I think this could be tightened up and I'm not sure that the way it's expressed is complete accurate (e.g. we don't revise the terms for epilepsy, we promote the ILAE's revised terms. Are partners the community agencies? Do they develop new topics or new material? Once this list is edited down, I would add space between the bullet points

Nikki Porter, 9/7/2018

PR2 removed one!!!

Paul Raymond, 9/10/2018

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| CLAE Conference – September 21, St. John’s, NL

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| CLAE Conference – September 21, St. John’s, NL

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| CLAE Conference - September 21, St-John’s NFLD

20 Impactful Years

Key partner in national drug shortage reporting and advocacy Providing daily access to relevant epilepsy education through social media channels Report and act quickly when an issue occurs anywhere in Canada

NP7 PR4

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Slide 8 NP7 I edited some of the wording and added more space between bullet points

Nikki Porter, 9/7/2018

PR4 txs

Paul Raymond, 9/10/2018

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| CLAE Conference – September 21, St. John’s, NL. Astro Ricky – Member of NASA’s 55/56 Mission Control Crew Purple Day – International Space Station

CEA | ACE Education out of this World

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| CLAE Conference - September 21, St. John’s, NL

Working together – Past, Present & Future

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| CLAE Conference - September 21, St. John’s, NL

T H A N K Y O U Honouring the Past | Planning for the Future

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Slide 11 NP16 What does it mean that we're highlighting advocacy topics?

Nikki Porter, 9/7/2018

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