Then and Now 20 years ago there wasnt a mechanism in place to share - PowerPoint PPT Presentation

| CLAE Conference - September 21, St. John’s, NL 1

T H E N E X T G E N E R AT I O N Presented by: Gail Dempsey | Past President Canadian Epilepsy Alliance Executive Director, Epilepsy Newfoundland and Labrador

NP2 | CLAE Conference - September 21, St-John’s NFLD Then and Now 20 years ago there wasn’t a mechanism in place to share resources across the county… Now there is: A national agency comprised of 27 community agencies coast to coast helping Canadians with epilepsy

Slide 3 NP2 I increased the space between the lines so it's easier to read Nikki Porter, 9/7/2018

NP13 | CLAE Conference – September 21, St. John’s, NL. 4 PR1 Who We Are Founded 1998: To make life better for all Canadians living with epilepsy

Slide 4 NP13 In the speaking notes, can we change "individual and group counselling" to individual and group support"? From my Ontario survey, most of the agencies here explicitly do not provide counselling. Counselling means something very specific. We don't want doctors to start referring patients to us for counselling we don't provide. Nikki Porter, 9/7/2018 PR1 done!!! Paul Raymond, 9/10/2018

NP4 PR2 | CLAE Conference – September 21, St. John’s, NL 5 What We Do Together we provide direct support to individuals and families living with epilepsy • System Navigation • Advocacy – Partnerships are key to our success • Working with like agencies: o Canadian League Against Epilepsy o Neurological Health Charities Canada o Best Medicines Coalition o Matthew’s Friends Canada o International Bureau for Epilepsy o Canadian Police Knowledge Network

Slide 5 NP4 There are two lines about expressing the concerns of people with epilepsy. Should remove at least one. This is one of the things I'd like to talk to you about. I think this could be tightened up and I'm not sure that the way it's expressed is complete accurate (e.g. we don't revise the terms for epilepsy, we promote the ILAE's revised terms. Are partners the community agencies? Do they develop new topics or new material? Once this list is edited down, I would add space between the bullet points Nikki Porter, 9/7/2018 PR2 removed one!!! Paul Raymond, 9/10/2018

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NP7 PR4 | CLAE Conference - September 21, St-John’s NFLD 20 Impactful Years Key partner in national drug shortage reporting and advocacy Providing daily access to relevant epilepsy education through social media channels Report and act quickly when an issue occurs anywhere in Canada

Slide 8 NP7 I edited some of the wording and added more space between bullet points Nikki Porter, 9/7/2018 PR4 txs Paul Raymond, 9/10/2018

| CLAE Conference – September 21, St. John’s, NL. 9 CEA | ACE Education out of this World Astro Ricky – Member of NASA’s 55/56 Mission Control Crew Purple Day – International Space Station

| CLAE Conference - September 21, St. John’s, NL Working together – Past, Present & Future

NP16 | CLAE Conference - September 21, St. John’s, NL 11 Honouring the Past | Planning for the Future T H A N K Y O U

Slide 11 NP16 What does it mean that we're highlighting advocacy topics? Nikki Porter, 9/7/2018

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