the Roles of CHWs Chavely Conde, BHS Kyla Alsman RN, BSN - - PDF document

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the Roles of CHWs Chavely Conde, BHS Kyla Alsman RN, BSN - - PDF document

04/20/2018 Patient Navigation in Cancer Survivorship and the Roles of CHWs Chavely Conde, BHS Kyla Alsman RN, BSN Objectives Understand how cancer is a chronic disease and the impact cancer has on long term health Understand how CHW


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Patient Navigation in Cancer Survivorship and the Roles of CHWs

Chavely Conde, BHS Kyla Alsman RN, BSN

Objectives

  • Understand how cancer is a chronic

disease and the impact cancer has

  • n long term health
  • Understand how CHW can help

cancer survivors and education on available resources

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A Cancer Survivor is….

  • …. anyone who has

been diagnosed with cancer – from the time of diagnosis and for the balance of his

  • r her life.

NCCN: National Coalition for Cancer Survivorship http://www.canceradvocacy.org/

What Does a Cancer Survivor Look Like?

  • Living cancer-free for the

remainder of life

  • Living cancer-free for

many years but experiencing one or more serious, late complications

  • f treatment
  • Living cancer-free for

many years, but dying after a late recurrence

  • Living cancer-free after the

first cancer is treated, but developing a second cancer

  • Living with intermittent

periods of active disease requiring treatment

  • Living with cancer

continuously without a disease-free period

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Survivors Are Not One Size Fits All

  • Some draw closer to

family and friends – Some are abandoned by family and friends

  • Some are young –

some are old

  • Some are able to

resume normal activity – some might benefit from physical therapy

  • Some struggle with

depression, anxiety, fear

MDHHS Focus Groups, 2017

What is a Community Health Worker (CHW)?

  • Trusted member of the

community

  • Service to community

members regardless of race, age, gender, culture,

  • r religion.
  • Provide one-on-one

tailored services to address health and social needs

  • Guide and connect

community members to needed resources and services

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Understanding Community Health Workers

  • Serve as liaison for patients
  • Provide educational information, emotional support,

and advocacy

  • Empower community members
  • Engage with community members at local events
  • Raise prevention awareness for cancers
  • Navigate community members to screening

resources

CHWs working and engaging with their community

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Estimated and projected number of cancer survivors in the United States from 1977 to 2022 by years since diagnosis.

de Moor J S et al. Cancer Epidemiol Biomarkers Prev 2013;22:561-570

Ongoing Survivor Needs

  • Monitoring for late effects
  • What are late effects?
  • Health problems that happen because of cancer

and/or treatment

  • Can be both physical or psychological
  • May not develop until many years after cancer

treatment if finished

  • Financial Toxicity:

– Medical Bills – Supportive Care Services are not often a covered benefit or require specialist copays.

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Survivorship care

  • Risk of having late effects of treatment is

influenced by multiple factors – Treatment received – Health behaviors (both good and bad) – Pre-existing problems – Genetics

Physical Consequences of Cancer

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Health Behaviors

  • Diet
  • Exercise
  • Sun
  • HPV
  • Tobacco

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Programs and Resources

  • What resources are available

to CHWs for cancer survivors?

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Health Eating Resources

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Truman Medical Center

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Show Me Healthy Women

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LIVESTRONG at the YMCA

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  • 12-week program with two 75-90-minute sessions per

week

  • Includes cardiovascular conditioning, strength training,

balance, and flexibility exercises

  • Evaluation includes fitness and quality of life assessments

before and after participation

  • Facilitated by YMCA-certified instructors
  • Requires referral and medical clearance from a physician

Genetics

  • Some cancers are genetic (example: breast cancer in

adults, retinoblastoma in children) – Could increase risk of developing secondary cancer

  • Family history

– Example: patient has family history of heart disease and then receives cancer treatment that increases the risk for heart problems

  • Previvor-

– A survivor of a predisposition ( or increased risk) for a disease such as cancer

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Ongoing Survivors Needs

Physical Well Being Diet and Exercise Fatigue/ Pain Fertility Monitoring for late effects Psychological Well Being Anxiety Depression Fear of Recurrence Cognition/ Attention Survivor Guilt Social Well Being Family Distress Roles and Relationships Isolation Finances/Work Spiritual Well Being Meaning of Illness Hope Uncertainty Inner Strength Cancer Survivorship

Roles of CHWs

  • Health care providers can not measure

patient outcomes once they leave the office

  • CHWs can follow up with patient and

monitor their care plan.

  • CHWs motivate community members to:
  • Exercise
  • Eat healthy
  • Follow prescription directions
  • Find ways to help with financial

barriers

  • Make lifestyle changes
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Community Health Workers aren’t all alike

Paid CHWs

  • Hired as CHW- full or part

time

  • Certification
  • Specific training

(extensive)- per hiring

  • rganization
  • Skillsets vary per job

description

Volunteer CHWs

  • Volunteer their time
  • Limited hours to

serve/work*

  • Trainings by outreach
  • rganizations
  • Train the Trainer model

for retention

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Certification

  • Some states require certification
  • Certification is necessary for payment

purposes

  • MO- certification program: 160 hours, 60

service

Kansas

  • Kansas does not have a certification program
  • KS Community Health Worker Coalition
  • Education committee
  • Symposium committee
  • Advocacy committee
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Case Study JJ

  • 30 year old woman with a history of

Hodgkin’s Lymphoma at the age of 15.

  • Past treatment includes history of chest

radiation and chemotherapy that increases risk for heart problems.

  • Patient presents with no health insurance and

concern for a lump in her breast.

  • History of smoking 1 pack per day
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Survivorship care is multidisciplinary and take the whole community to provide care Follow Up

  • Based off JJ’s past treatment she would be due for the

following: – Echocardiogram (ultrasound of heart to check function) – Education on Diet and Exercise – Sun Safety- education – Smoking cessation Education – Breast Mammogram and Breast MRI every year

  • Needs education about resources due to lack of

insurance

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CHW role before, during and after cancer treatment

Before

Listen to needs of community members Guide to screening resources Address barriers to getting screened Help enroll eligible women into the state Breast and Cervical Cancer Program/Navigate them to the resource  Show Me Healthy Women in Missouri  Early Detection Works in Kansas

CHW role before, during and after cancer treatment

During Assist with medical appointments  Follow-up to ensure they get to their appointment  Transportation needs/ issues Find medical interpreting services when needed for diagnostics, and treatment Connect to social worker if needed Talk to family about issues and follow-up

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CHW role before, during and after cancer treatment

After  Follow-up with appointments  Follow-up with family members to see if any issues  Refer to social worker for financial assistance and psychosocial needs  Guide them to appropriate resources to continue positive health behaviors

Hispanic Women’s Survivorship Discussion on Barriers

  • Barriers described-
  • Language
  • Financial issues
  • Health Insurance
  • Emotional Support
  • Lack of education in

the community/family

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Barriers that CHW try to eliminate

  • Social determinants of health
  • Socioeconomic
  • Academic/education
  • Language
  • Physical
  • Psychological
  • Geographical
  • Cultural

Benefits of CHWs

  • Health services
  • Increase access to care
  • Less ER visits
  • Decrease no-show appointments
  • Help to gather data for research projects
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Questions?

Thank you