Sustained and Meaningful Involvement in Health Research Warning: - - PowerPoint PPT Presentation

Sustained and Meaningful Involvement in Health Research

• Warning: This session is

highly interactive!

• Please help us get

started.

• Please sit at tables with

a min of 4 people and a max of 6 Agenda

• Introductions: to each
• ther and to the topic
• A series of exercises to

explore:

• Research Design
• Research management

/ governance

• Data Collection
• Dissemination

PREPARE TO ENGAGE!!

PPI

Sustained and Meaningful Involvement in Health Research

Maura Adshead Alphonse Basogomba

Find a stranger…

• And ask
• Who they are?
• Where they’re from?

(in terms of this workshop)

• Are they involved in a project?
• What is the project?

1

Engaged Research describes a wide range of rigorous research approaches and methodologies that share a common interest in collaborative engagement with the community and aim to improve, understand or investigate an issue of public interest or concern, including societal challenges. Engaged research is advanced with community partners rather than for them.

What is Engaged Research?

See: https://goo.gl/NPxHJz

Engaged Research Framework

PPI :– engaged research practice in health research

• PPI shares a common

values base with all Engaged Research in its focus on research:

• Co-design
• Governance
• Data collection
• Dissemination

Who is ‘the community’?

A great deal of engaged research refers to ‘community engagement’ Community refers to a range of research stakeholders, including public or professional service & product users, policy makers, and civil society individuals or

• rganizations

Identifying your project stakeholders

Project Stakeholders?

• Who is interested in your research?
• Who might be interested in your

research findings?

• Who could benefit from your research?
• Whose insights could your research

benefit from?

2

Implementing Engaged Research

• For the remainder of the workshop, we will

explore our project as a case study to help you think about your own potential PPI project. We’ll look at:

• Research Design
• Research management / governance
• Data Collection
• Dissemination

Choose a case study

• Take 10 minutes to view the projects.
• Put a green sticker on the one you’re

interested in developing.

• Red on the one that you are not interested in

– explain why

• Yellow on the one that you wouldn’t mind
• => this is the typical modus operandi for co-

design in engaged research

3

Count Me In Governance Structures

Project Management

• Design the governance structure
• Does it benefit from all relevant insights?
• How have you gained access to relevant

insights?

• Do you need specialist support?
• How are stakeholders represented?

4

Agreeing Project Outputs

For your chosen project – assign role play for your key stakeholders…

• what do you each want?
• what can you each deliver?
• do you need additional supports to deliver

some outputs? => Does the project structure need to change to accommodate this?

5

Data collection

• What will you do?
• Case study / Questionnaire Survey / Focus

groups / data analysis / pilot study

• How will you do it?
• Who will collect the data needed? How will

they be recruited?

• What methods will you use?
• How inclusive and/or representative is your

study?

6

Dissemination

• How will you get the results of your

research to all stakeholders?

• Compare the list of stakeholders from

Exercise 2 with the list of outputs you agreed in Exercise 5

• Are project findings being delivered to all of

your stakeholders? How?

• Do you need to think of additional outputs

to ensure a reach to all stakeholders?

7

• What evidence will there be for the impact
• f your work?

8